Incontinence has worsened

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Naps With Cats
Regular Member

Date Joined Jun 2009
Total Posts : 66
   Posted 7/21/2009 1:10 PM (GMT -7)   
I wrote about this in the IBS forum, but I think  it's a bad time and no one is there - I'm so freaked about this and not
sure what the diagnoses would be or what to wear or do.
Since I used to come on here as Here, Kitty, Kitty, Kitty - I'm hoping some of the people I feel trust with here might know how to direct me or what kind of doctor would I see (even though I believe it's stress related.  This is what I wrote in the IBS forum:
Hi guys. 
This is really embarassing.  about 4 months ago I started become nighttime incontinent regularly to the point I need to
wear diapees (I'm 49).  That actually isn't the embarassing part.  This past 2 weeks or so I've been becoming worse and
worse with fecal incontinence and today it was really bad (thank God I was still wearing my diaper which helped some). 
It came on so suddenly that I had just made it into the bathroom, but that was it, it was done.
Does anyone else have this problem or know what the diagnosis would be?  I have been through a lot of stress the past, well
a lot of trauma in my life and a big move a couple months ago.
I'm unemployed and have been looking for work for 1.5 years now, but if this gets worse I wouldn't be able to work - or is
there something special you wear for this type of inctontinence?  The regular diapees don't hold it and it comes on quick
as lightening.
Im' so embarassed.
When I was younger (in my 20's) I had a problem with colitis and have always had problems with GERD, morning diarrhea, etc.
I just don't know what to do.  Is this something, if it gets worse, I could go on disability for??  I can't imagine this happening
at work.
Anyways, any help would be deeeeeeeeeeeeeeeeeeply appreciated.  I'm leaving the house w/in the hour, but will be back later.
Thanks for anything anyone has to offer.  This is so unusual.
Julie O'

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/21/2009 1:25 PM (GMT -7)   
Well I think you need to get in with a gastroenterologist and have some tests run to get to the bottom of this. I have Crohns Disease and some people will have the incontinence problems while in the middle of a flare. Not saying that is what you have, but just letting you know you are not alone.

Are you having anyother symptoms other than the urgency? You said when you were younger you had problems with colitis, I am wondering if this is kicking up again. Best place to start is with the gastroenterologist. Sending healing prayers your way.

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Naps With Cats
Regular Member

Date Joined Jun 2009
Total Posts : 66
   Posted 7/21/2009 1:50 PM (GMT -7)   
Thanks so much for responding, Nanners!
I haven't had insurance (or a job) in so long I've put off going to doctors (other than Psychiatrist for PTSD/Anxiety/Depression) so I can keep those
meds going, but after this morning's episode, I think it is time to go to a doctor.  Just wasn't sure what kind. 
Do Gastroenterologists deal with both fecal and urine incontinence?
I have pretty severe anxiety when it kicks up which it has a lot since I've moved and before when I was the plaintiff of a lawsuit and from
some multiple traumas before that.  I have always had problems with my gastrointestinal tract and was diagnosed with GERD which just stopped after taking Protonix for a few months - it's starting back up again, but not yet as bad as it was.
Thank you so much for telling me which kind of doctor to go to, I should have figured that one, but - well, we're talking about me - lol.  AND thank you so much for sending the healing prayers, I certainly appreciate them deeply!

Julie O'

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 7/21/2009 5:57 PM (GMT -7)   

Hey Julie,

Nice to see you here.  This is Kitt. For a urine problem you would want to see a urologist as you could have a  prolapsed bladder.  Childbirth and menopause are the main risk factors for bladder prolapse. If you are incontinent of urine and stool, you could have many causes..............any back problems, herniated discs?

It may serve you well to see a Family medicine physician and see what they think as far as what may be going on and from there if you need a specialist you could go on.

I know with out insurance this is a tough one for you.

Attends Plus with leakage barrier is a good product.  My sister used this one when she had C-Diff.

Gentle Hugs to you hun,



Moderator: Osteoarthritis, GERD/Heartburn
Anxiety/Panic, & Depression
*~* *~*
"When you find peace within yourself, you become the kind of person who can live at peace with others."
Not a mental health professional of any kind

Naps With Cats
Regular Member

Date Joined Jun 2009
Total Posts : 66
   Posted 7/21/2009 6:15 PM (GMT -7)   
Hi Kitt!!!
Over the last year I've gone through serious night sweats for a time, intermittent hot flashes and mood swings - now my period was
3 weeks late this last month and a week late the month before (I'm always on time), so if peri-menopause is included, very likely could
be this.
I've been using (since the urine incontinence) the Equaline brand of overnight extra protection plus briefs.  The work 93% of the time.
Sometimes I must go twice in the night (this is even after I stop drinking anything after 6:00 p.m. excepting a sip with my night meds.
I had a horrible Gyno once (just once as I was trying to find a new one as mine went into a speciality field) and this new guy left the clamps
hanging out of me (very mean doctor, yelling at me not to cry even though it was hurting so much) and his nurse wouldn't come near me -
I was used to having my hand held and having understanding (having been attacked a couple times in my life), but I always wonder if that's
what's been causing much of my problems.  I lost my sex drive after that (now I'm asexual, happily).
I did herniate a disc years ago - could that be affecting me this many years later?   (about 8 years, I think?)  I still have back issues but don't take
pain medication - actually I have pain in a lot of places from injuries (carpal and cubital tunnel, degenerative arthritis in C-3 and lower lumbar, leftover pain from the herniated disc in the middle of my back (can't remember which disc), early signs of osteoporosis/hips (years ago I was diagnosed from a bone density test), some nerve damage in 2 of my fingers . . . ahhhhhhhhhhh but instead of pain pills (which I almost comitted suicide with years ago if you remember my story), I really work at dealing with that pain, just telling myself "It's all relevant to how I react to this pain and I choose to acknowledge but not react in any way that will ruin my day."  That's kind of my mantra with pain.
The incontinence, however, is totally frightening and now both kinds of incontinence (I'm hoping the second is very temporary and stops right away - have no idea why that's happening other than stress or something).
I'll check out both a urologist and a gastroenterologist?  I think I'm going to have to apply for assistance of some kind, though. 
I'm so glad you're here!  It was weird that no one in the IBS group responded.  I was very embarassed to write what was happening with the other type of incontinence.  You and Nanners have really helped me to feel much more comfortable and kind of like a normal person.  Non-acknowledgement of something so embarassing  would have been horrifying so I'm glad I wrote here, too!
Thank you both from the depths of my heart!!
Julie O'

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 7/21/2009 6:38 PM (GMT -7)   

Hey Julie,

Here is a bit more about the disk issue.  I did have one friend who had this but it is not common.  Rarely, disk herniation can cause cauda equina syndrome, which is the compression of spinal nerve roots. Relieving the pressure that causes cauda equina syndrome often requires emergency surgery, because it can cause permanent weakness or paralysis if it's not corrected. The following signs and symptoms, which suggest cauda equina syndrome, warrant a trip to the emergency room:

Significant or increasing pain, numbness or weakness spreading to one or both legs

Bladder or bowel dysfunction, including incontinence or difficulty urinating even with a full bladder

Progressive loss of sensation in areas that would touch a saddle (inner thighs, back of legs and area around the rectum)

Your sx appear to be a night so it is more likely not from the disk.

I am glad to hear you are going to get it checked out.

Your GYN that treated you so inhumane was a poor excuse for a physician who should be treating the whole patient.  That is very sad to hear he was such a jerk.

You are always welcome here my friend.


Naps With Cats
Regular Member

Date Joined Jun 2009
Total Posts : 66
   Posted 7/21/2009 7:04 PM (GMT -7)   
Hi again, Kitt!
Interestingly I had a lot of those symptoms after I did herniate my disc, (Except the incontinence), but they slowly subsided and
are just intermittent now.
Wow about your friend - what a hard time to go through!  Give your friend my Kudos for making it through all that!
Thanks for your interesting and informational post!!  :-D
Julie O'
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