Hello. I found this thread while doing a search for "undiagnosed internal tremors." For the past year I have had all kinds of random symptoms. I have seen an ENT, neurologist, endocrinologist, vascular surgeon, oral surgeon, ophthalmologist, and more. I have had all kinds of bloodwork done, x-rays, and an MRI. I recently found out I have a Chiari 1 malformation but my neurologist doesn't think my symptoms are related to that. He as well as all pf the other docs I have seen think it's anxiety.
Like some people on here, I believe it's the symptoms causing the anxiety, not the other way around. When the symptoms are subside or aren't as bad, I'm in a much more positive state of mind. I realize it's a catch 22 as some would argue that I feel better and because I'm probably less anxious but I really don't "feel" anxious aside from worrying about the symptoms itself.
Someone mentioned an inner ear problem. I recall having a plugged feeling in my ears. I was told it was wax so they stuck that tube in my ear and cleared it. I recall my ear feeling funny for weeks after that. It was super sensitive to any noise. I've been to two different ENT's and seen my GP many times and they don't see anything that indicates an inner ear problem.
I do know that right before my symptoms started I was under some stress but things got better. The symptoms would come and go at one point but for a few months I have had this inner tremor thing that won't let up. At first I felt it in my chest on and off but now it's pretty much all day and it can be in my head, chest, back, or all at once. It's weird b/c sometimes the tremors are in one place (like my chest) and will move to another place like my chest. It doesn't hurt bit it's quite bothersome. It affects my eyes too as I tend to feel my sight shaking when the vibration/tremor is in my head. I also get twitches/shakes in my face near the cheek and mouth area. This is worse when I'm out in public or in a crowd. I also get lower and upper back pain that comes and goes but I do sit at my pc for hours each day.
I really am worried that I have some undiagnosed illness despite the numerous doctor visits, exams, and tests. My doctors pretty much think it's all in my head so now I'm searching for a new one. Crazy thing is my GP has been my doc for 10 years but I find it frustrating going to see him now. I was told to have a drink of wine in the evening after dinner. I don't drink or smoke but I tried the wine but aside from making me sleepy, it didn't help. In fact, I felt as though it made the vibrations/inner tremors a bit worse. If this is stress related, shouldn't the wine have helped the tremors?
The only thing that helped the inner shaking a lot was Ativan. I was given this twice before taking my MRI's and the shaking was barely noticeable until the next day when they came back. I do have the goggy brain feeling, I feel nauseous sometimes upon waking up, and I get a feeling of pressure in my forehead, upper teeth, and across the bridge of my nose. I thought it was a sinuses problem but was told my sinuses are clear. Another thing, last blood test my sugar came back slightly low (69) but the docs said it was probably due to not eating that day and haven't looked further into it. I do notice that when I finally get out of bed and eat, I feel a little better. In fact, it's when I'm at rest (sitting or laying down) that the tremors are the worse. When I'm active and moving about I don't notice them as much.
Any ideas or feedback? I'm going to try valerian root. I already tried different supplements and my endocrinologist thinks that in addition to anxiety, an electrolyte imbalance (from taking supplements Vit D and magnesium) are the cause of my problems.