Know this. I thought that I would never be able to do it again. I was concerned about
how I would function in society. I had two girls and thought about
how I would drive them around with their friends (would their friends make fun). Just as I got over my fear of speaking in front of groups of people (that I never thought I could do), I too am getting over this fear. I believe fears are temporary based on what's happening in your life at the moment. We think this is the way it's always going to be or even get worse. Well for me it always gets better. I believe you will get to a point where you'll say: "I don't care". "Let's go!"
43, male, UC diagnosed in 1985
Flares occur after some illness: food poisoning, flu, mono...
Flares last 6 months to a year and lately involve several weeks of severe symptoms with lots of diarrhea, blood, pain, fever, dehydration.
Remissions last 1 to 4 years and are absolute with no symptoms
March 2009 colonoscopy showed no signs of UC; azathioprine reduce from 100mg to 50mg
Started current flare August 2009, bleeding by October 2009
Current Meds: 100 mg azathioprine, 750 mg Colazal 6/day, 400 mg Asacol 6/day,
Lialda 2/day, 60 mg 50 mg 60mg 80 mg prednisone
Currently in hospital, severe left sided colitis
100 mg predisolone, demoral for pain
Xanax, Valium for anxiety
Eating "low residue" hospital diet, (foods that produce small stool; no fiber)
Tegretol XR for epilespy
Lost hearing in right ear in 2004