You are one strong lady and wow, you are really hanging in there ! Feeling so nasty and still being able to hold back the tears and go out shopping.
You may want to browse through the GERD Forum as I am not sure I agree with your Dr. re " it is not acid if the PPI's aren't helping" comment.
You may want to ask your GI for the following tests if things do not improve:
X-ray, CT Scan and MRI studies
Upper esophageal manometry
24 hour pH probe and multichannel intraluminal impedance testing
Barium or Gastrograffin swallow study
Keep on posting here in your thread as you sharing is very helpful and encouranging for others weaning off of AD meds.