Angel .......I have been a guinea pig for many yrs with one condition I have which is from the crohns BUT made worse with stress and anxiety.......
It is called Pyoderma Gangrenosum ....
you can literally see my skin being eaten away from inside out
It is horrid and very painful ........
Immune disorder plus it is a rare "Gift" of the crohns as well
I saw doc after doc some of Ontario's top specialist in the Dermatologist feild no one knew what it was and I was tx with Vancomycin (strong antibiotic) IV for months at a time
Now I am paying for that I have lost practically almost all my hearing in left ear and the doc I have now does research with me or we do it on own and compare
He works with me and will rarely put me on IV meds only when we are way outta control and sore is to the bone /muscle .........or he knows I am headed into very sressful situation
After the muck up with Thanksgiving I have 2 small sores starting already and crohns is acting up as well ......
Your question YES I have been a guinea pig and lost much because of it
I refuse to be that anymore and thankfully this doc does not make me one
Go for it put it in Newspaper make sure all your facts are right and they can be verified
NOT saying you are not being honest but I know firsthand ( many articles lol to Editor ) that they will have to verify especially when going after a politician and the "System"
Please keep us posted and I am so sorry you have been treated this way I know how you feel
BTW I totally agree more study and research into A/P is ABSOLUTELY needed
It is REAL and not in our HEADS
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Post Edited (Howlyncat) : 10/10/2006 3:38:51 AM (GMT-6)