My daughter was taken to hospital on August 6/06 in a coma. The diagnosis was Alcohol Dementia and brain damage. She continually has seizures, Grand Mal, pseudo seizures. She has her Dilantin adjusted many times, it was too low, too high (toxic level). She is also on 400 mg. Lamotrigine and 10 mg. Clobazam. Her new Neurologist is slowing weaning her off of Dilantin. My daughter has not been free of seizures for the last 1-1/2 years a daily occurence. I have witnessed these seizures and have noticed on occasion that when she stressed out, or too much on her plate that she has to think about or doing more than one thing, she will have a small seizure. Could this be anxiety related?
My main concern is why she is having seizures every day sometimes 2-3 a day. We have taken her from doctor to doctor, also new neurologists and yet no doctor can give the reason for these continued daily seizures. I realize that she has brain damage and when she worries or frets these small seizures happen.
I cannot get a complete diagnosis for the future and it is wearning the whole family down with this constant worry, will she survive these seizures. She now worries constantly about having a Grand Mal seizure in her sleep. All she talks about is her condition and her medications. She cannot remember too much about the past, and we do not fill her in, as her past is not very nice due to her past drinking problem. When she gets something in her mind, that she wants to know, she dwells and dwells on it and we tried to approach each question with kid gloves. Due to her limitations with the brain injury and her comprehension, we are not always sure how to answer her. Again, my concern is what are these constant seizures caused from and why are they on a daily basis. She has had numerous Cat scans and ECG and they came back with no abnormality. She is waiting to see a psychiatrist. By the way, she is also a Bulimic. My daugher as you can read, is fighting many problems.
Anyone who has experienced or has a friend or family member going through the same thing, please write to me.
I just put a title on your topic.........:)
Post Edited By Moderator (stkitt) : 11/19/2007 4:05:47 PM (GMT-7)