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CaMama

HealingWell Forum
>
Member Profile
Display Name
CaMama
Profile Created
3/15/2005 9:36 AM
Last Seen
8/25/2020 8:34 PM
Total Posts
1904

Last 50 Posts

Tips for fatigue flare?

i hope the night guard helps. have the decided what to do for the hypertension? any better since late July?...

8/25/2020 8:34 PM

Rheumatoid Arthritis
Tips for fatigue flare?

Hi KM, I went through similar issues in 2015 - crazy vertigo and dizziness. They did all sorts of tests to figure out what was wrong. Every doctor said they couldn't find anything but inflammation...

7/21/2020 10:19 PM

Rheumatoid Arthritis
ISO people like me

Hi Lainy - so sorry to hear what you have gone through. It really stinks, and, yes, there are many here who can relate I'm sure. Are there pain support groups you can join in your area? Maybe find a...

7/21/2020 10:11 PM

Rheumatoid Arthritis
Rinvoq - Week 10 - Update

Peggy- so sorry to hear you cannot take the med. There are so many new ones out these days, it is nice to have options. How are you doing with the injections and Imuran? I am now dealing with...

6/23/2020 11:04 PM

Rheumatoid Arthritis
Seasonal changes and RA changes

I'm glad to hear you're not leaving your family and I saw in another post about trying a new cocktail of meds. good luck! As for the flu shot - i started getting a yearly nasty flu every January and...

5/23/2020 4:35 PM

Rheumatoid Arthritis
Rinvoq - Week 10 - Update

Thanks. Fingers crossed you get relief from the meds....

5/23/2020 4:25 PM

Rheumatoid Arthritis
Rinvoq - Week 10 - Update

Yeah, my kids are a freshman and sophomore in college. My daughter commutes on public transit, so I'm really glad she's home. What did your doctor give you? Restasis? Xydrol? I got relief from both....

3/15/2020 6:22 PM

Rheumatoid Arthritis
Rinvoq - Week 10 - Update

Thank you. Yes, the kids are home as well. It'll keep down the worry. A lot of folks already were at home yesterday at work, and for a moment I thought maybe it wouldn't be so bad to keep coming in...

3/14/2020 3:21 PM

Rheumatoid Arthritis
Rinvoq - Week 10 - Update

Yes. It's been amazing when I can suddenly do something I haven't done in decades. Almost makes me cry. Yes. I see an ophthalmologist every four to six months. For the plaquenil checks and for...

3/13/2020 9:13 PM

Rheumatoid Arthritis
Rinvoq - Week 10 - Update

Well, the Rinvoq has been a roller coaster - but mainly for good so far. Within 2 weeks I started to feel better. But, I have had some flares - they seem to revolve around weather changes, which I...

3/8/2020 1:46 PM

Rheumatoid Arthritis
Horrible Arm Pain...Aggonizing at Night

Sorry to hear of your pain. Have you tried seeing an orthopedic surgeon? Is it possible the arm pain is displaced pain coming from your shoulder?...

3/8/2020 1:18 PM

Rheumatoid Arthritis
Seasonal changes and RA changes

Hi Don. I already live in San Diego - so there is not much better than that, however, Az can have some nice drier climate certain times of the year, but I hate to see you have to leave your family...

3/8/2020 1:14 PM

Rheumatoid Arthritis
Ear pain/ Arthritis

Hi there, I've had a lot of ear issues with my inflammation and psoriasis. You didn't mention what kind of doctor you see - but I would suggest finding a good ENT if you haven't yet. Also, maybe try...

3/8/2020 1:04 PM

Rheumatoid Arthritis
Hi and suggestions please

I'm so sorry to hear the struggle and the fact there is no help for single people in your state. That is crazy! I hope you are able to find some government assistance to get yourself proper health...

1/14/2020 11:00 PM

Rheumatoid Arthritis
Foot is stopping me in my tracks.

Hi JRBear, yes, you can have more than one type of arthritis. Did you find out if you have gout? The redness and swelling kind of sound like that. Do you take any meds for your OA? Does Tylenol...

1/14/2020 10:45 PM

Rheumatoid Arthritis
Does anyone have Rinvoq experience?

Hi Don, Rinvoq is a daily pill. According to the nurse ambassador I spoke to, it's very sensitive and needs to be taken pretty much at the same time daily and kept in the original bottle as it's...

1/1/2020 6:29 PM

Rheumatoid Arthritis
Seasonal changes and RA changes

Yes, I have seasonal flares as well. It's a real thing. There are some books out there about changing your diet during your "bad" season (like making sure you eat non-inflammatory foods), but I'm not...

11/23/2019 2:43 PM

Rheumatoid Arthritis
Does anyone have Rinvoq experience?

Thanks for the quick reply. Having only been approved and out for a few months, I can't find any reviews online about it. Hoped someone here has been on it to give first impressions. I will likely...

11/23/2019 2:37 PM

Rheumatoid Arthritis
Does anyone have Rinvoq experience?

My doctor would like to have me try Rinvoq. Does anyone have any experience with this? It was just FDA approved in August and that scares me a little. I have taken Remicade, Arava, Humeria, and...

11/23/2019 1:21 PM

Rheumatoid Arthritis
(no subject)

Sorry to hear you are struggling. I've been there and am there. Anxiety and depression are irrational diseases and can be difficult to control. However, if you're jittery and can't stop your brain -...

11/23/2019 1:13 PM

Rheumatoid Arthritis
Erin, white spots?

Thanks for the suggestion. Although I have most of those symptoms and had blood work show positive for sclederma, a series of tests i took 3 years ago indicated I actually do not have it. I do have...

9/9/2015 11:09 PM

Rheumatoid Arthritis
Anxiety/GERD? Driving me crazy!

A few years ago, I was stricken with severe reflux (even though I was already on Nexium daily), high BP, and panic attacks. I was told to try Zantac (OTC) as a more immediate relief help with the...

2/20/2014 9:38 AM

Anxiety & Panic Disorders
I'm a Newbie - RA + Psoriatic Arthritis...looking for answers

Hi Autoimmune, I'm so sorry you are going through this! :( Have they started giving you any medications? I had many of the issues you had, but I cannot tell you what helped what (it was forever ago...

6/16/2012 9:44 AM

Rheumatoid Arthritis
Looking for advice regarding my meds

I have the same problem! I never thought it might be the meds, but that would make sense. Someone told me recently that reflux can cause it as well, and I have that pretty bad as well (worsened by...

9/21/2011 8:53 PM

Rheumatoid Arthritis
Anyone had or have this problem?

What medications are you taking?...

2/2/2011 9:12 AM

Rheumatoid Arthritis
Rhumitoid Arthritis sufferer

Hi Jade, did you get an answer to your questions? Methatrexate can help but can be difficult at the same time. You need to have your liver checked regularly (via blood test every month or every other...

2/2/2011 9:10 AM

Rheumatoid Arthritis
Psoriasis arthritis?

Holy cow.....that is pretty bad! I was once bed ridden as a teenager...was in a dark room for a week or so. Finally, my fever spiked so high, my parents took me to the hosptial....apparently, getting...

11/7/2010 1:22 PM

Rheumatoid Arthritis
Does anyone else feel worse on Plaquenil?

Sounds like it wasn't for you. Good for you for being proactive on your own health. It's unfortunate we have to be our own advocates so often....

10/19/2010 7:16 PM

Rheumatoid Arthritis
Psoriasis arthritis?

Oh geez! I feel for you. The best thing I can suggest is, don't let him dismiss you until you're ready. Make a list of everything you can think of to go over so you don't get flustered and make him...

10/19/2010 7:14 PM

Rheumatoid Arthritis
Psoriasis arthritis?

I have psoriatic arthritis. You could have an autoimmune issue with it, or your body is just struggling right now with the adjustment. It is common to get feverish during a flare. I have immune...

10/19/2010 12:23 AM

Rheumatoid Arthritis
Question for the Chicks- does your pain get worse at that time of the month?

It started to become so common, there was no need for calendar marking...I knew, once I felt that way that 'my time' was coming within the next 3 days....

9/28/2010 6:30 PM

Rheumatoid Arthritis
Question for the Chicks- does your pain get worse at that time of the month?

YES! It is AWFUL! Awake for days with awful pain and insomnia! It seems to be related to how severe my PMS is that month. I started taking Evening Primrose to help w/PMS symptoms, and that did help...

9/27/2010 9:57 PM

Rheumatoid Arthritis
Does anyone else feel worse on Plaquenil?

It takes about 5-6 months to fully kick in. but, if you are not feeling well on it still, it may not be for you. It was just a few weeks of ick for me. make sure you take it with food (I realize I...

9/27/2010 9:54 PM

Rheumatoid Arthritis
The results are in!

Good to hear! happy bday!...

9/27/2010 9:52 PM

Rheumatoid Arthritis
Another plaquinel question ....

I also take it twice a day - but not at exactly the same time. It takes about 5 days before I feel missing it...a dose here and there, I'm okay....but, if I miss a dose 'here and there' a LOT....it...

8/8/2010 10:53 PM

Rheumatoid Arthritis
Moanalogue - April Edition

When you need it, you need it...and it's unfortunate that people judge. I hope you find some reliefe from your 2 year flare! /community/emoticons/shakehead.gif BTW, I have to ask, I was diganosed...

8/8/2010 10:49 PM

Rheumatoid Arthritis
Vitamin D deficient in the worst way!

Hi Mom, last year I was tested at 19, was put on 50,000 units for 3 months and retested at 13! I even made an attempt to be out in the sun more - even though I (as most of us do) have issues if i'm...

7/27/2010 10:02 PM

Rheumatoid Arthritis
Pain in Finger

hard to say - have you been to the doctor? It almost sounds like an infection, but it could be a severely swollen area too. I'm not sure what a TKR is.......

7/27/2010 9:55 PM

Rheumatoid Arthritis
REMICADE SEVERE REACTIONS

Wow...I took Remicade for 2 years before I stopped (i ended up getting non-stop respiatory infections). That is some scary stuff. Some things I attributed to the drug: I started waking up at night...

7/27/2010 9:53 PM

Rheumatoid Arthritis
Switching from MTX to another DMARD

I think Arava is in the same class as Methotrexate. I found out the hard way I can't take either....but plaquenil seems to help.....you might want to look in to that and if you can tolerate a drink...

7/27/2010 9:45 PM

Rheumatoid Arthritis
Switching from MTX to another DMARD

Weary, unfortunately, as you know, mtx affects the liver and I think the drugs in the same category/family as mtx do the same. Drinking can really increase any issues to the liver. I was never a big...

7/25/2010 9:37 PM

Rheumatoid Arthritis
do people yawn when you say "arthritis"

So very tired - are you on methotrexate? I had issues with pluersey-like symptoms while on it....

7/25/2010 9:27 PM

Rheumatoid Arthritis
Moanalogue - April Edition

Yeah, it's a tough call...we've all been there...I've gone to the grocery store feeling okay only to have to stop mid-way through my shopping unable to move another inch...what to do then? if I...

7/25/2010 9:21 PM

Rheumatoid Arthritis
Moanalogue - April Edition

Man, I'm so sorry to hear that, Mom....people just don't listen. When my feet were so bad back in the beginning...I cried to my rhuemy for months...nothing he gave me helped...one visit I said (for...

7/1/2010 9:33 PM

Rheumatoid Arthritis
Moanalogue - April Edition

Yes....it goes back to it being a concealed disease....I'm nowhere near as bad as I was....but I'm never 100% and am always on guard. But, people don't see the fatigue, the pain you do still have...

7/1/2010 1:02 PM

Rheumatoid Arthritis
do people yawn when you say "arthritis"

Oh boy! those are some intense stories! While it's years late, misery still does love company. It is *good* /community/emoticons/eyes.gif to hear I'm not alone. Spending a year going from doctor to...

6/19/2010 9:08 AM

Rheumatoid Arthritis
do people yawn when you say "arthritis"

Wow. Well spoken! I was put on bed rest for 6 months when my children were 18 months and 3 years old. I wasn't allowed to pick them up because of an enlarged spleen and liver. Sometimes, my husband...

6/13/2010 1:04 PM

Rheumatoid Arthritis
Moanalogue - April Edition

I thought the monalouge was gone /community/emoticons/sad.gif ....but here it is /community/emoticons/smile.gif (from April and it's now June)... Everything is relative....and I know I'm so much...

6/12/2010 11:58 PM

Rheumatoid Arthritis
Fatigue and methotrexate

A B-complex is supposedly good for fighting fatigue as well....

6/12/2010 11:52 PM

Rheumatoid Arthritis
do people yawn when you say "arthritis"

Ditto to you both!...

6/12/2010 11:51 PM

Rheumatoid Arthritis



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