Hello, I was diagnosed with Rheumatoid Arthritis ans secondary Sjogrens 10 years ago. I am on Plaquenil and Enbrel injections weekly. Ive been having injections in my knee for years and its bone on...
I feel your pain as I suffer with Fibromyalgia , RA, Sjogrens. If I mention how i feel or what I have everyone comments, I have that too. I give up and suffer in silence, My Fibromyalgia morphed into...
I an also interested to hear about everyones experiences with vaccines and on Enbrel. I was set for J&J and it was cancelled due to blood clots. So now I am very scared and thinking about not getting...
You can buy 4 lb bags of potato starch from Amazon for 14. 99...
Scott, I mentioned this , because in your first post you stated that when you stop taking the starch the pain comes back. You were just asking in general so thats when I seen it and responded to you....
Scott, Why are you trying to get off the potato starch? I remember your family taking it as well. What do you mean by all the changes that are going to happen with politics and such. Anyways I still...
Is this Scott 007 with different profile name now?...
Hi Scott, I started taking the potato starch a year and half ago and have not given up. I am also on Enbrel and irronically enough I started both at the same time. I am on Enbrel through there safety...
Hello, Sorry to hear your in pain. I am not a doctor but I have always believed that my RA was triggered by stress. Stress definitely brings on flares. But in my situation I went through a year of...
I have RA for 5 years now and started with Plaquenil and after 2 years Sulfasalazine was added. I added Enbrel with the mix and recently my Rheumatologist took me off of the Sulfa. He ordered B/W. My...
Hello, I have been drinking the potato starch for 3 months now and Enbrel for 3 months as well. My insurance is Medicare and they wont pay for Ebrel so I get it for a year through there Safety Net...
Hi, Don, its good to hear from you. You are my favorite member,always kind and quick to help with answers to all. I usually wait till Sept./Oct. for shots. I didnt know you started mtx. I remember...
I was diagnosed with my Rheumatoid factor at 55 and I think under 13 or so is normal. When my pain got worse Rheumatoid Arthritis Dr wanted to do a anti-ccp and it was very high at 250. When I went...
Thanks Alice I am going to try the Vitamin D 50,000 1 X week. I thought that it was a very high dose myself and questioned her and she stated that shes the Dr so I am to listen. My second dose was...
Good Morning, I was wondering how many of you have had Vitamin D levels checked. I have been fatigued more than usual and when I went to primary care dr. she decided to check it. Well it was quite...
Hi,Don, It wasnt the insurance company that approved me, it was the Enbrels site that approved me. It was approved till 2017 and they want me to get medicaid and i have been turned down for it. I am...
If your still unsure about not having or not having Rheumatoid Arthritis. Theres and anti-ccp test that is used for people like you. Its a definite for Rheumatoid arthritis and can be found in people...
I've had Rheumatoid Arthritis/Sjogrens for 3 years now. I first started slowly with Plaquenil for the first year and then added Sulfasalazine and now have been on that for a year. I still have pain...
I have been on Sulfasalazine for the last 6 months and it takes alot to get used to this medication. For 2 months I stayed so sick to my stomach and had to keep the belly full because you have to...
Hi Don, I talked to you a while back about why you stopped Sulfasalazine. At that time i had just started the Sulfa and was having a hard time getting used to it. Well I have been on it for 6 months...
I was treated 15 years ago successfully. Alot of the medications will bring it back to life. Thats why i had the second opinion because my first Rheumy didnt know alot about meds to take with Hep C....
Thank you Don for all the information. It makes me feel better that there is a light at the end of the tunnel. I am on Sulfasalazine again after quiting the first time due to several nose bleeds and...
It may have been a fluke. I am still getting used to the Sulfasalazine. I'm up to 4 a day. It makes me very sick in the morning but at night it dont. Don, why did you stop after 2 years and did it...
Good Morning, Has anyone ever have a Bloody nose from Sulfasalazine?...
I have Rheumatois Arthritis/Sjogrens for 2 years diagnosed but Dr claims I have had this for a very long time. I started on Plaquenil and it quit working after 2 years. I tried Sulfasalazine and had...
Well here I am again asking for your help. I started the Sulfasalazine on top of the Plaquinel. This is my third week and now started 2 in the morning and 1 in the evening. My stomach has been...
Hi, I take a supplement called Biosil and it takes a few months and hair and nails better than ever. I buy the drops and put in anything your drinking....
I did go for a second opinion due to the issues with the high CCP and having Hep C and having a bad flare up. I cant take the leflunimide due to the Hep C but he started me on Sulfasalazine stating...
Its a truly ugly disease. When i was finally diagnosed with RA the Rheumy looked at my hands and said I have had RA for a long time. Why it finally came to life, dont know. I have a feeling the...
Couchtater, What came up first in your list of disorders? Lupus or RAor Fibro. I was diagnosed with Fibro like 17 years ago and then RA/Sjogrens 2 years ago. I am also worried about Lupus. Some of...
yes he suggested Leflunimide months ago when I was still having pain and was afraid of the side effects and the Hep C even though in remission, its coming alive again. I'm looking for the best route...
I've had Rheumatoid Arthritis for 2 years with my RA levels starting at 50 and after starting Plaquenil and 2 years later it went down to 17. My Doctor ordered a CCP test which came back at 250 which...
I believe its from the Plaquinel or the Rheumatoid Arthritis. He just bombed me with this by phone today and didnt have labs in front of him so he told me to call on Wed. and see if I can get in. I...
Is any one on here also with Rheumatoid along with Hep C. I did the meds for Hep 15 years ago and its been non detectable since. My Rheumy wants me to add Ariva to the Plaquenil I have been on for...
I need some advice. I was diagnosed with RA 2 years ago. My RA factor was 58 and went down to 20. I started smoking after much stress and I recently had a CCP which is 250. Forgot to mention he...
Is there much cost difference between the two?...
Hello, I have been on generic Plaquenil called Hydroxychloroquine. This medication went from 12.47 to 135.00 a month. Is this a same med you all are talking about? Is Sandoz the same as Plaquenil. I...
Hello, I have Rheumatoid Arthritis/Sjogrens. Ive been on Plaquinel for 2 years which has brought down my RA Number to 20, but seem to be stuck there. I recently read a book about Neprinol being a...
If the RF factor in not the only lab for accurate diagnoses for RA. What other labs do you recommend? My RF was 50 but my ANA was negative....
Hi, I'm fairly new to this forum and have a question. I started on Hydroxychloroquine 200 mgs Bid for 5 days now. I seem to be getting fever in the afternoon. I just get so fatigued and cold and eyes...
Thanks for the advice. I greatly appreciate any input, hope you get to feeling better. Let us know what happens with your eyes as well. I'm sure glad to have found this forum to learn and get advise...
Thank for your quick replies. I have one more question. Do's the MTX also hurt your eyes,like retina damage? Also after I read your posting I called and made appt for baseline eye exam....
I finally went to the rheumatologist appt. and was diagnosed with RA. He thinks I may have sjogrens also. I also have Fibomyalgia for the last 20 years in which he thinks is secondary to the Ra,...
I was diagnosed with Fibromyalgia 10 years ago after several months of pain that would not go away. I also have insomnia and brain fog and always feel fatigued. In the last two months I have pain in...