I went to a new headache doctor because the treatments I was doing were but helping. She suggested an MRI and it suggests a possible brain aneurysm, and white spots in the brain. I had a very brief...
Anyone have an low PTH (parathyroid hormone)? I haven’t talked to my doc but I have had a low level for a year now and been reading online that it could be a result of having an autoimmune disorder...
Thank you for your reply. I’ve never thought of pure oxygen. I guess the closest thing I could do is get outside and breathe deeply (I say with a smile)? I don’t even know if we have those in our...
I did call my doc. She said that Botox might take two or even three times for it to work. I’ve tried two of the three medications you’ve suggested- one of them I can’t take bc of another medication...
I’m so tired of these headaches. I’ve tried preventatives, Injections, everything. I just can’t shake them. Last month I had 13 headaches and that’s with my first Boston injection. Right now I’m...
Thanks. My headache did get better once I took Eletriptan this morning. It’s still lingering but better. I wonder how early I will tell if the Botox works in decreasing my overall number of migraines...
I had my first Botox treatment this morning and i have the onset of a headache and my head is sore in the back from the injection sites. I know it’s normal because the doc prepared me, but I’m...
I do get treatment for the psoriatic spondylitis- it helps but I’m on an immunosuppressant - makes me a little nervous about going out and interacting with people with the COVID stuff. I’m sore after...
Thanks. I took today off but had the baby all day. I ended up with a migraine which I get quite often- I see a specialist and have had them under control. Maybe stress induced this time, idk. My...
Thanks. I might journal. I just feel so down, and usually so tired at night I’m honestly not sure I’d follow through with it. I could try thought- couldn’t hurt I guess. I contacted a marriage...
Thanks everyone. I do have a counselor that I meet with every other week. I also have a psychiatrist that I have and am on medication. In December, I swapped to see if it will help with the anxiety....
I have nothing to complain about. I’m married to a good guy, I’m healthy (for the most part), and I have a new baby. We just bought a house, we’re financially stable and we both have good jobs. I’m...
Thanks. Yea I’m already trying the monthly injection - this would be on top of that- layering until the injection kicks in. It takes about 6 months for the injection to fully reach its full effect. I...
My doc recently prescribe gabapentin for my migraines. I’ve tried topomax, elitriptan and rizatriptan and none of them are making a dent in the number of headaches and migraines. I’m averaging 10-15...
I’m trying to stay positive but it’s getting to me I’m scared. I have a 1 year old. I’m on Humira which is a immunosuppressant and makes me more susceptible to illnesses. I’m scared I’ll get sick and...
Thanks Susie, that does make me feel better. I never really get sick in general. When I do, I get things like C-diff and stuff (ugh). Right now I have my first cold in probably two years. I try not...
Anyone else on a immunosuppressant like Humira nervous about the coronvirus outbreak scare? I’m in the US and they say that people with weakened immune systems are at a higher risk for contracting...
My doc said this could be a side effect, which is one of the reasons I went off it. I found that I had a really hard time thinking of the word that I wanted. It was pretty embarrassing at work, and...
Yea maybe I’ll mention it. I actually just requested to go off Topomax bc a) I don’t think it’s helping and b) it’s causing me issues with word association- I can’t think of the words I’m looking...
Ya I guess an MRI would be worth it. I’ve brought it up to my doc and she said usually she does that for people who have sharp migraine pain but wouldn’t be against it if I wanted one. I might call...
I’m at witts end. I’ve been getting migraines more and more lately and they’ve been getting increasingly worse. I have a specialist I see and I track my headaches with both frequency and severity. Im...
It’s been a while. Let me catch you guys up. Had my first baby this past Feb. the bay is happy and healthy but unfortunately I experienced some severe post pardum depression for a month or two...
I’m sorry you’re going through all this. Thinking about how life changing a baby can be, in addition to rethinking your career, and managing a healthy relationship while starting a family...it can be...
Hummm not sure why this posted. I meant to have it be a response to someone else’ post. Oh well!...
Ya I never counted but that’s bc I’d rather not know how many times I go when I do the prep. Once you start going bright yellow/green clear you’re all cleaned out! Hope the scope goes ok!...
Potatos, peanut butter, crackers and bland stuff will bulk it up. Have u tried continuing with benefiber consistently? Or metemucil? Are you taking any Imodium or lomotil? Either may be a long term...
I have a j pouch (about a year now) and was just diagnosed with the same type of hernia. I’m 7 months pregnant thought which is what we think contributed to it. Anyhow, I’m just taking it easy,...
The fact that you said this last bout hit you really hard with D, it makes me think it’s c diff again. It’s been 9 days since your original post- have you received any answers since then? Was the c...
My doc put in staples, and it healed well. I remember it was a good 5-6 months before I felt up to doing regular stuff like exercising. I think after having such bug surgeries, and basically...
Couldn’t hurt to make a doc appt. Before I made an appt with a headache specialist I went to my primary to rule out dehydration, had an eye exam, re-evaluated the way I sit at my desk at work, etc. i...
Same for me as many of the previous people have astated. I had tried two biologics, immunosuppressants, and a Drug trial and no change/improvement. I was prednisone resistant and every time stuff got...
I always took marshmallows with me to eat to help with the output. I did bring a roll of paper towels- that’s what I was using st home and it was just more convenient for me. Better to have a whole...
I think when I had it (back when I had UC) they put my on Fagyl first bc it was cheaper for insurance to cover, and when that didn’t work, they bumped me up to Vanco which worked like a dream. I...
I think you’ll be happy with the results of the surgery. It is a big step but if it goes well, and for a lot of people it does, it’s a life-changer. May have missed it, but when do you go?...
I have a J pouch and I’m having a baby in Feb of 2019. Both my gastro doc and j pouch surgeon suggest I have a surgeon on call. Since my surgeon doesn’t work at the hospital where I’m scheduled to...
Good luck! I’m so glad I made the decision to get a j pouch. Hopefully all goes well....
Thanks for checking in. I had my OB appt today- actually met with a specialist bc I have other medical conditions that cause me to be considered “high risk.” I stopped taking the fioricet bc it...
I haven’t taken it during eh day yet, just at night. I’ve been nervous to take it with driving and work. Another question I have is that I have chronic headaches, not a migraine this time. And again,...
My doc prescient fioricet to see if that might work for my ongoing headaches. Like I said, I’m pregnant so my options for treatment are limited. Anyhow, I woke up with a headache today but I’m weary...
Amazing! So glad for you. I’m only a year out and I feel like I already have my life back! We refer back to the years I was sick as a distant memory now! Surgery was life-changing and although I did...
So I have a j pouch now and am technically cured from colitis. But when my a rhumatogist or my new OB doc asks if I have any other auto immune diseases besides arthritis, so I still say I have...
Ive been on Cimzia since May and my joint pain has decreased so much so that I feel 100% back to normal! My mobility is fine and it literally feels like I’m cured. I just got bloodwork back and tat...
Yea I agree with the others. Any type of outside noise, car radio, people talking in the background- that all makes it way worse, even though it seems so miscellaneous....
You must be relieved that’s behind you! Loops can be tricky for sure. You using a moldable barrier ring? That might help. Also, I found that using a belt kept the bag and wafer nice and tight against...
Thanks. Yes I waited until this week to call. I thought they were closed on Monday and open on tuesday but I mixed up the days. So I’ll have to call again tomorrow. I tracked my headaches in sept...
How did it go? Hope you’re doing okay!...
I can’t eat tomatos for some reason - like too much sauce or pizza or stuff like that. Burns on the way out. I found popcorn gives me stomach pains. Only tried that once or twice tho. I’ve been...
I have heard THC oil works well! Can’t use that right now tho. My migraine has gone away and come back almost every day. I’m keeping track of them with this worksheet my doctors gave me. Since...
I agree that it’ll get better but it takes time. I think even 4 months post takedown I was still going from 10-15 times per day. I was still okay with that bc I had control and I wasn’t having...
The doc was wonderful. She spent an hour with me and said I have classic migraines. She said some other stuff that you all might find helpful for yourselves too. My mom gets headaches and the doc...