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Ms2011

HealingWell Forum
>
Member Profile
Display Name
Ms2011
Profile Created
5/5/2020 5:05 AM
Last Seen
3/22/2021 1:57 PM
Total Posts
27

Last 50 Posts

Ankylosing Spondylitis?

No, I'm in Ireland. I think my GI is going to try do an in patient clinic this month if Covid numbers are low enough so I'll definitely bring this up then. So hard to know when something hurts...

3/4/2021 11:25 AM

Chronic Pain
Ankylosing Spondylitis?

Thank you for the reply. We are currently in a Covid lockdown and only essential medical appointments are being done at the moment, it could take a while to get an appointment with a Rheumatologist....

3/4/2021 8:09 AM

Chronic Pain
Ankylosing Spondylitis?

Hi, I'm a 40 year old female with a diagnosis of Ulcerative Colitis for the past 4 years. 2 weeks ago I woke up with Sciatica like pains in the front of my right thigh, I've had a few incidents of...

3/4/2021 5:55 AM

Chronic Pain
Ankylosing Spondylitis

Hi, I'm a 40 year old female with a diagnosis of Ulcerative Colitis for the past 4 years. 2 weeks ago I woke up with Sciatica like pains in the front of my right thigh, I've had a few incidents of...

3/3/2021 6:46 AM

Rheumatoid Arthritis
Pancolitis to no symptoms in 16 days?

How my UC came about was when my son brought home a bug from preschool. He, myself and his Dad got sick, he and his Dad got better but I didn't. Two weeks later I was seeing blood in my stool (though...

2/17/2021 4:15 PM

Ulcerative Colitis
Flaring again...time to move on??

Just got off the phone from my GI. He also thinks my issues are stemming from my stomach so he's sending me out a prescription for Nexium (or similar), also a kit to test my stool for inflammation...

2/3/2021 4:40 AM

Ulcerative Colitis
Flaring again...time to move on??

Thank you both for your replies and suggestion. I decided to look back over my medical notes and noticed when I was first diagnosed my GI noted that I had H. pylori-negative gastritis, she put me on...

1/30/2021 3:39 PM

Ulcerative Colitis
Flaring again...time to move on??

I started a biosimilar medication to Humira at the end of June 2020. From August 2020 to December I was completely back to normal. However in December I started to feel the telltale signs that I...

1/30/2021 7:39 AM

Ulcerative Colitis
How Many Truly Believe That Food Will Cause/Stop A Flare

Food neither makes me better nor makes me worse indeed I've been known to have pizza and/or beer in the middle of a flare. When I was first diagnosed I tried gluten free and the SCD diet neither made...

1/27/2021 8:32 AM

Ulcerative Colitis
Proctitis with cecal patch

I have the exact same diagnosis as you. I did both oral and rectal meds together which didn't tackle my flare, I added steroid foam to the equation and still no luck so I ended up on Biologics which...

12/31/2020 12:20 PM

Ulcerative Colitis
Have I just ****ed everything up!!!!

Great, thanks. I'll take your advice and see how I get on. Thank you....

10/9/2020 1:31 AM

Ulcerative Colitis
Have I just ****ed everything up!!!!

Thanks for the reply. So far 1-2 bms and formed. I take Psyllium Husk tablets, 6 a day but had been slacking a bit last week so last Friday when I had to strain to go to the toilet and saw blood I...

10/8/2020 1:39 PM

Ulcerative Colitis
Have I just ****ed everything up!!!!

I started on a biosimilar medication to Humira at the end of June. After 6 weeks I was back to normal, no blood, urgency and normal stool. 2 weeks ago I was suffering from Costochondritis and the A&E...

10/8/2020 1:29 AM

Ulcerative Colitis
Probably an 'impossible to say' question...

Thank you for the replies. I agree UC is unlikely to be what killed him and maybe we will never really know. Obesity is a horrible condition, where I live if you are an anorexic girl there are loads...

9/8/2020 2:44 PM

Ulcerative Colitis
Probably an 'impossible to say' question...

Thank you for the replies and condolences. Whatever resulted in his death definitely wasn't helped by his weight, his mother had asthma when she was younger but he never suffered with it himself. I...

9/7/2020 3:28 PM

Ulcerative Colitis
Probably an 'impossible to say' question...

As the title says I'm not sure if my question can really be answered but I just thought I'd ask for my own mind if nothing else. When I was first diagnosed 3 years I was the only one in my family...

9/3/2020 7:16 AM

Ulcerative Colitis
Early life antibiotic use and UC

Anecdotally I can count on one hand the amount of times I've taken an antibiotic, can only remember one as a child. There can of course be different triggers for different people so who knows....

7/30/2020 8:11 AM

Ulcerative Colitis
Adalimumab Question

Thanks for the reply. Started to feel better on Monday so took my next single injection on Tuesday, felt OK for the rest of the day and Wednesday too but today I'm back to multiple BMs, back pain and...

7/30/2020 7:02 AM

Ulcerative Colitis
Adalimumab Question

I had my loading dose(160mg) of Idacio ( a biosimilar medicine to Humira given in Ireland ) 30th June, then an 80mg dose on 14th July and I'm due my regular 40mg dose on Tuesday. Didn't think I was...

7/23/2020 8:13 AM

Ulcerative Colitis
Do I really need Humira

Thank you iPoop, your post is very reassuring. Can I ask how severe your colitis was and what you tried before going on Remicade? I suppose personally I'm trying to weigh up risks and benefits; are...

6/21/2020 10:35 AM

Ulcerative Colitis
Do I really need Humira

This is a question I am asking myself at the moment. Flaring with Proctitis the last 6 months, upping my Pentasa had no effect, suppositories had no effect, steroid foam had no effect, Prednisolone...

6/18/2020 3:22 PM

Ulcerative Colitis
What was your first symptom

Blood in my stool was my first symptom, 2 weeks later extreme nausea, survived on a bite of cereal or toast for 10 weeks, lost 20lbs, finally diagnosed with Pancolitis....

6/17/2020 1:35 PM

Ulcerative Colitis
Some Advice Please...

Had an appointment with my GI yesterday, she suggested I go on Idacio (Humira) which I've reluctantly agreed to as I'm not sure what else to do to get this flare under control. I must admit I cried...

6/11/2020 5:26 AM

Ulcerative Colitis
Some Advice Please...

I spoke with my GI 3 days ago and he suggested a fortnightly taper of 5mgs instead of weekly so I'm currently down to 20mgs as of today. Feeling a bit better too, left side pain is gone and down to 2...

5/10/2020 11:27 AM

Ulcerative Colitis
Some Advice Please...

Great, thanks. I'll ring my GI in the morning and see if I can get a script for some more Prednisolone as I won't have enough to taper down any slower with what I have here. Really appreciate your...

5/5/2020 10:35 AM

Ulcerative Colitis
Some Advice Please...

Thank you for the replies. What would be the next tier of medication if I did need to go up? Could some of the symptoms I'm feeling be caused by the taper rather than the disease? Things like an achy...

5/5/2020 8:09 AM

Ulcerative Colitis
Some Advice Please...

Apologies in advance for the long post: I was diagnosed with pancolitis in April 2017 age 37 after a sudden onset. I was treated with flagyl and budesonide granules for 2 weeks and was almost normal...

5/5/2020 5:49 AM

Ulcerative Colitis
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