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Ms2011

HealingWell Forum
>
Member Profile
Display Name
Ms2011
Profile Created
5/5/2020 3:05 AM
Last Seen
4/3/2023 6:47 AM
Total Posts
91

Last 50 Posts

Stopping mesalamine on Xeljanz?

Left side pain and tenesmus have gone. Still 1-2 bms a day & consistency not 100%, better than what it was but definitely not where it should be. Hoping I am slowly healing....

3/30/2023 10:09 AM

Ulcerative Colitis
Stopping mesalamine on Xeljanz?

Slight left side pain, wind & soft bms (1-2) still. I've restarted Pentasa, orally & suppositories though I feel any inflammation is higher up & out of reach of the suppositories....

3/20/2023 2:03 PM

Ulcerative Colitis
Colonoscopy. Every two years?

Every 2 years here too & I've only had UC for 6 years....

3/16/2023 11:03 AM

Ulcerative Colitis
News from Ireland

Focuses on Lupus but it could crossover to outer autoimmune diseases. https://www.newstalk.com/news/trinity-scientists-make-breakthrough-that-may-help-treat-autoimmune-diseases-1445700...

3/16/2023 11:00 AM

Ulcerative Colitis
Stopping mesalamine on Xeljanz?

I was really sick in January with a bad sinus infection, I was vomiting with it so I stopped taking my Pentasa as it wasn't staying down anyway. Once I was better & saw no effect on my UC I decided...

3/13/2023 12:45 PM

Ulcerative Colitis
Stopping Mesalamine

I've been on a biologic for 2 years but still take 4g Pentasa, not 100% sure why if I'm honest. I had a scope a few weeks ago which looked good so I must ask my GI about stopping Pentasa, it stopped...

9/17/2022 1:20 PM

Ulcerative Colitis
Colonoscopy Friday

Congrats, the best words to wake up to!!...

9/10/2022 4:28 AM

Ulcerative Colitis
Do any of your GIs let you eat the day before a colonoscopy? (Article & research study)

I always manage the first litre, rarely the second one though but that's always been enough....

9/8/2022 10:10 AM

Ulcerative Colitis
Colonoscopy Friday

I was the same before my scope 2 weeks ago, felt sure something would show on the scope as bms just weren't 100% but it was normal. I'm still awaiting biopsy results to be 100% sure but it looks like...

9/8/2022 5:31 AM

Ulcerative Colitis
Do any of your GIs let you eat the day before a colonoscopy? (Article & research study)

My last scope was at 1pm on a Monday, the last thing I ate was 10:30am on Sunday. I took 1 litre of prep at 1pm on Sunday, the second at 5pm. I was allowed to have clear liquids, black tea or coffee...

9/8/2022 5:25 AM

Ulcerative Colitis
Colonoscopy Today

They posted out my report which states: "PR. Hemorrhoids. Prep. Good after washing. Scope to Terminal Ileum. 6mm sigmoid polyp, cold snared and retrerieved. 3mm descending colon polyp (looks like...

9/1/2022 5:43 AM

Ulcerative Colitis
Colonoscopy Today

How many bowel movements do you have daily now ? Do you have cases where a change in food increasing the number of BM’s ? Right now I’m on Colozal 3/3 times a day and with no urgency, pain and...

8/24/2022 11:50 AM

Ulcerative Colitis
Colonoscopy Today

I don't unfortunately, I just glanced over the report, thinking I'd digest it properly at home, kicking myself for leaving it behind 🥴...

8/23/2022 12:18 PM

Ulcerative Colitis
Colonoscopy Today

Thanks, yes I will be interested to see what the pathology report says, I was quite surprised by the initial report of 'normal' so I guess I'll have to wait and see what my GI says when I see him in...

8/23/2022 10:51 AM

Ulcerative Colitis
Colonoscopy Today

No, this is the first scope I've had any type of polyps. My last scope before this one was in December 2019 and only mild proctitis was observed but that flare got steady worse until I was put on a...

8/22/2022 4:07 PM

Ulcerative Colitis
Colonoscopy Today

Thank you. I will see my GI in clinic to discuss the results but he seemed happy with them and said to continue with my current medication. I will ask then if the polyp was biopsies....

8/22/2022 1:52 PM

Ulcerative Colitis
Colonoscopy Today

Had my colonoscopy today. I read the results while still a little woozy from the seductive and then I forgot to bring it home with me to read properly so I'm working from (no so good) memory but...

8/22/2022 1:27 PM

Ulcerative Colitis
Fecal Calprotectin went from 150 to 750 in 2 months despute hydrocortisone enema course.

Yeah me too and to try stay in the shade, wear long sleeves etc. as much as possible....

8/8/2022 4:16 PM

Ulcerative Colitis
Fecal Calprotectin went from 150 to 750 in 2 months despute hydrocortisone enema course.

I'm Irish so we get sun burned standing under a strong light bulb!!! That said I'm an outdoor person so would rather be outside than inside but I do feel like I'm on edge when outside worrying about...

8/8/2022 3:38 PM

Ulcerative Colitis
Fecal Calprotectin went from 150 to 750 in 2 months despute hydrocortisone enema course.

Shouldn't sunlight be minimised while on Humira due to skin cancer risks?...

8/7/2022 3:37 PM

Ulcerative Colitis
hospitalization rates

Have UC for 5 years, never been hospitalised but very close to it when I was first diagnosed with pancolitis but I had a 2 and 5 year old that I had to look after. Flagyl and Budesonide put me into...

8/3/2022 7:50 AM

Ulcerative Colitis
Biologics

I've been on biologics for 2 years, the only illness I've had in that time is Covid and I bearly even noticed I had that....

5/26/2022 12:58 PM

Ulcerative Colitis
Alcohol Swabbing After Humira Injection

Yeah, that's to clean the area before you do the injection. They instruct you to make sure the area is dry before inserting the needle.[/quote] No, never got that instruction, methods might vary in...

5/24/2022 11:52 AM

Ulcerative Colitis
Alcohol Swabbing After Humira Injection

I get an alcohol wipe in my box with my injection so it must be OK....

5/23/2022 11:10 PM

Ulcerative Colitis
Adalimumab so far...

I had a blimp like that after beginning Humira. I had a good initial reaction for about a month, then a week or so of loose, bloody bms then back to good again. I think I even posted here about it....

5/22/2022 5:14 AM

Ulcerative Colitis
Perimenopause effect on UC?

Doesn't mention UC specifically but interesting all the same. https://autoimmunewellness.com/the-role-of-progesterone-in-autoimmune-disease/...

5/21/2022 1:37 AM

Ulcerative Colitis
Perimenopause effect on UC?

My last flare I couldn't get of prednisolone rectal foam, as soon as I tried my symptoms would start up again. I was already on a Humira biosimilar every fortnight so I was upped to weekly injections...

5/15/2022 11:42 AM

Ulcerative Colitis
very interesting experience regarding the sun & exercise& Uc

For me, being outside is a great stress reliver, even just pottering around the garden doing a bit of weeding. Also for me stress is a big trigger so while my symptoms improve when I get out and...

5/14/2022 3:14 AM

Ulcerative Colitis
Anyone take Humira once a week instead of once every two weeks?

Thanks for the replies. My joint pain started about 6 months after starting Humira and I don’t think I've felt right since. So hard to differentiate between feeling crappy because of UC or because of...

4/28/2022 6:12 AM

Ulcerative Colitis
Anyone take Humira once a week instead of once every two weeks?

Can I ask what side effects you experienced? Humira seems to be doing my bowel good but the rest of my body seems to be screaming...joint pain, headaches, dizziness to name a few and I don’t know if...

4/27/2022 1:44 AM

Ulcerative Colitis
Anyone take Humira once a week instead of once every two weeks?

Moved to weekly injections about a month ago and seems to be making a difference....

4/23/2022 11:47 AM

Ulcerative Colitis
Ankylosing Spondylitis

Don't know how I missed these replies 🤔 Anyway, I went to see a rheumatologist nurse in December, she did alot of stretching and bending with me and said I had good flexibility and range of motion...

4/23/2022 1:41 AM

Rheumatoid Arthritis
Adalimumab so far...

When I started Adalimumab I too had a good response initially then a big step backwards which lasted about a fortnight if I remember correctly but then I began to make progress again. For me the...

4/20/2022 8:49 AM

Ulcerative Colitis
Stress & Flares: An Epiphany

My trigger is stress for sure, in fact my GI has joked that she absolutely forbids me from being stressed 🙃 She doesn't believe in food being a trigger though and for me this is also true, food...

4/11/2022 8:38 AM

Ulcerative Colitis
Dizziness

Thank you for the reply. I don't think I'm dehydrated, but I will up the water just in case. Didn't have any dizziness before on the fortnightly doses, maybe the weekly doses are too much. I'm on the...

4/11/2022 8:35 AM

Ulcerative Colitis
Dizziness

Saw my GI on March 30th to review my medication as I didn't feel the Humira biosimilar I'm on was quite doing the job as I was still having intermittent minor flares ( my fecal calprotectin was 3000+...

4/11/2022 4:16 AM

Ulcerative Colitis
Arthritis and UC, Anti-inflammatory pills

I agree, I was in agony with Sciatica last week, I couldn't even drive so I gave in and took ibuprofen 2 nights in a row to get some sleep. No ill effects thankfully....

4/3/2022 11:54 AM

Ulcerative Colitis
Clinical Study: Multiple biologics simultaneously

So does double the biologic mean double the risks for cancer and the like?...

3/26/2022 11:51 AM

Ulcerative Colitis
How likely is UC passed on to children?

I'm the only one in my family now with UC I had a nephew with it too but he has since passed away(not from UC), I pray I never pass it on....

3/7/2022 1:03 PM

Ulcerative Colitis
re: people at high risk for Covid

No I didn't lose my sense of taste or smell. Honestly I didn't feel too bad, symptoms like the cough and blocked/runny nose were more annoying than debilitating and my colon behaved itself...

2/21/2022 9:48 AM

Ulcerative Colitis
re: people at high risk for Covid

I've observed all the health advice from the beginning, so social distancing, masks, sanitising hands etc. but otherwise have gone about my life as normal (or as normal as was allowed). I'm on a bio...

2/20/2022 9:39 AM

Ulcerative Colitis
The UC curse!

I'd never even heard of UC or ever even beeb sick until I was diagnosed at 37. I'd heard of Chrons cos a girl in my office had it but I didn't really know what it was only that it had something to do...

2/19/2022 8:45 AM

Ulcerative Colitis
CRP versus Fecal Calprotectin

Do you just have one caecal patch? Just curious because I have patchy pancolitis and often get a patch by my caecum, but sadly I get it elsewhere too![/quote] I'd have to root out my last...

2/6/2022 12:25 PM

Ulcerative Colitis
Blood donation

No in Ireland....

1/23/2022 8:34 AM

Ulcerative Colitis
CRP versus Fecal Calprotectin

Holy bananas! You didn't even have diarrhea with a fecal calprotectin that high!??? Is your UC very high up in the colon?[/quote] BM was soft but not diarrhoea at the time of the test, its gone back...

1/22/2022 11:27 AM

Ulcerative Colitis
Were you slow/constipated before getting UC?

Never had any digestive issues before UC reared it's ugly head....

1/19/2022 2:52 AM

Ulcerative Colitis
CRP versus Fecal Calprotectin

My GI called last week as my fecal calprotectin was 3000. I feel fine, no nausea which can be my worst symptom at times, 1 mostly solid BM with no mucous or blood. Feeling tired though so who know,...

1/18/2022 12:44 PM

Ulcerative Colitis
Mesalazine suppository or Budesonide foam for 4cm inflammation?

Suppositories do little for me, foam works best....

1/15/2022 11:15 AM

Ulcerative Colitis
Pancolitis

Went from a healthy 37 year old with no UC to pancolitis in 4 weeks while I waited for a GI appointment. A bug my son brought home from school set everything in motion for me....

12/9/2021 5:36 AM

Ulcerative Colitis
The first Crohn’s patient receives the Crohn’s MAP Vaccine

I find this very interesting. I'm officially diagnosed with UC but I've always had a gut (no pun intended) feeling my UC is caused by a bacteria of some shape or form. My reason for thinking like...

Today 1:54 PM

Ulcerative Colitis
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