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AlanB5

HealingWell Forum
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Member Profile
Display Name
AlanB5
Profile Created
1/28/2014 4:18 AM
Last Seen
12/5/2019 12:55 AM
Total Posts
89

Last 50 Posts

Looking for UK Surgeon recommendations

Hi - my wife was diagnosed 25 years ago with breast cancer (age 33), had a mastectomy follwed by Chemo. Reconstruction 1 year later (in South Africa). The implant was replaced after about 10 years...

12/5/2019 12:54 AM

Breast Cancer
ARTIFICIAL SPHINCTER (AUS) DEVICE

I am 56, going on 57. 49 at time of DX. PSA all good now - undetectable....

6/3/2019 10:10 AM

Prostate Cancer
ARTIFICIAL SPHINCTER (AUS) DEVICE

I had surgery, then salvage radiation - was all good after the surgery, salvage radiation was not good to me. Seems to me one or the other is fine as the primary treatment. I was just unlucky, no...

6/3/2019 8:46 AM

Prostate Cancer
ARTIFICIAL SPHINCTER (AUS) DEVICE

H Ubetternoit I have complete ED, so cat help you there...

6/3/2019 6:03 AM

Prostate Cancer
ARTIFICIAL SPHINCTER (AUS) DEVICE

Hi Tiger74 I had an AUS fitted in December 2018, activated in January 2019. Procedure was perfrmed by Jeremy Ockrim. Very pleased with it and have very few issues with it. I do still get some stress...

6/3/2019 4:36 AM

Prostate Cancer
Looking for AUS surgeons in the UK

I have private health insurance. Probably could get it on the NHS, but going private makes it quicker, plus I get to choose the surgeon, hence the request for information...

8/20/2018 12:37 PM

Prostate Cancer
Looking for AUS surgeons in the UK

Hi Can anyone recommend a surgeon who does AUS surgery in the UK, or point me to a website that may help? I have been incontinent now for nearly a year following stricture surgery, and battling to...

8/19/2018 2:06 PM

Prostate Cancer
Quality of life vs. Quantity

Apologies - meant option 3, not 1!...

2/19/2018 3:22 AM

Prostate Cancer
Quality of life vs. Quantity

Hi "Progressing" Been down the road that faces you with Option 1, albeit a bit younger (50 at DX, 51 with ADT and SRT). ADT was a pain whilst it went on (did 22 months) but most side effects dropped...

2/19/2018 3:20 AM

Prostate Cancer
Incontinence aids

To 142 - not keeping a log at the moment, purely observational that unless I sit down for a long period there is nothing at all in my bladder, it is all in the pad or the bag. My urologist told me to...

1/6/2018 2:12 PM

Prostate Cancer
Incontinence aids

After a 2nd round of surgery to resolve strictures I have been left almost completely incontinent during the daytime. This surgery took place late September 2017 and now 3 months later there appears...

1/6/2018 7:13 AM

Prostate Cancer
PSA over 6000 on diagnosis - looking for advice and hope

Hi Sallyy This sounds very distressing and very overwhelming for you. Right now you are probably just living in the moment but as many have already pointed out this is going to be a long road, and...

10/20/2016 12:53 AM

Prostate Cancer
Too hasty to have Salvage Radiation?

So JNF - your basic answer gels with my impression the the cancer mutates over time. But that seems to fly against the assertion higher in the thread that G6 cant turn into G7. Your numbers consist...

10/11/2016 7:51 AM

Prostate Cancer
Too hasty to have Salvage Radiation?

I know this is slightly off topic, but it has been glanced upon above. I refer to the statement that Gleason 6 never progresses to G7. Now a G6 is actually G3 + G3. A G7 is 3 + 4 or worse 4 + 3. Does...

10/11/2016 2:58 AM

Prostate Cancer
Watson for Oncology

Peter You have hit the nail on the head on the need for accurate testing. The value that Watson can bring is that it can ingest data at speed - there was an article on "60 Minutes" over the weekend....

10/11/2016 2:39 AM

Prostate Cancer
Hot flashes persist after HT? How long?

Last 3 month shot for me was November 2015. Seemed to drop off fairly quickly (2-3 months), but has stabilised now to 1 or 2 a night (generally very early morning as I awake). Fed up with it now!...

9/15/2016 3:09 AM

Prostate Cancer
First Post-Op PSA - Persistent? So now what?

Hi Jaybee It is an anxious time post surgery, and I can sympathise with you. GGs pathology looks very similar to my own, apart from his PSA was way higher than mine pre-op. My own PSA returned as .06...

9/7/2016 4:18 AM

Prostate Cancer
SE's of surgery..robbing me of my life

I guess like a reverse Kegel. Idea being that the stricture is being dilated by the urine, rather than by shoving a tube up. Made a lot of sense to me, and as I say so far so good. But to be sure I...

7/6/2016 7:19 AM

Prostate Cancer
SE's of surgery..robbing me of my life

Hey there Island Time. I am late to the party as always, but wanted to say as have many others - vent away. I don't think anyone here gets offended or upset and many for many of us it is good to hear...

7/6/2016 5:55 AM

Prostate Cancer
Still feeling tired

My last ADT shot was November 2015, my T has not yet recovered and I am also tired and "staring at the floor"...

6/16/2016 2:03 AM

Prostate Cancer
Returning Urethral Structire

I was having issues within 3 months of the op. The original stricture was a bulbar. Not sure of the size. The current situation is that the stricture appears to be approx 20mm and again quite close...

4/14/2016 12:29 AM

Prostate Cancer
Returning Urethral Structire

I had a Urethral removed by urethrotomy last September, 12 months after salvage radiation. Uro had me self catheterizing on a daily basis, meant to drop down to weekly with a month or so. Stricture...

4/12/2016 5:35 AM

Prostate Cancer
Started IGRT salvage radiation - When do the side effects start?

I had radiation cystitis after 5 treatments and fatigue kicked in after about 10 treatments, possibly due to medication for the cystitis. Painful urination since then (am 20 months out) and an op to...

4/12/2016 5:17 AM

Prostate Cancer
Do you have time to gather info before primary radiation treatment?

Interesting. I have to agree with Wilderness though. At some point the cancer escapes, and as it does not hand you it's timetable, there surely has to be a case for not unduly delaying your primary...

3/8/2016 8:55 AM

Prostate Cancer
PSA is rising

Hi Howard Seems your pattern is similar to mine. My surgeon was happy with the surgery, but my 1st PSA came back as .06, rather than undetectable. The rise kept going and I soon hit .13 My insurance...

2/2/2016 3:49 AM

Prostate Cancer
Anyone have a Stricture after RP

Interesting to read about the burning after radiation , Woodyvt. I started suffering from burning about 10 days in, was told it was too early for Radiation Cystitis but no one could give me any other...

11/2/2015 6:53 AM

Prostate Cancer
Strictures

Hi All Less than 2 weeks into salvage radiation treatment (July 2014) I started getting pain on urination. This was put down to radiation cystitis, even though this was way too early. The pain never...

9/15/2015 3:26 AM

Prostate Cancer
Zolodex Options

Not posted for a while, but happy to report that after 5 shots of Zolodex, my PSA is still in the undetectable range. Not so happy about the side effects, which are building with each shot, rather...

3/23/2015 5:53 AM

Prostate Cancer
4 Months post SRT

Got my results <0.05, so that's an undetectable from that lab! Would crack a beer in celebration, but on 2 sets of antibiotics, probably not a good plan.GP is keeping a watchful eye over the chest...

11/6/2014 7:55 AM

Prostate Cancer
4 Months post SRT

Not posted for a while, but wanted to get some opinions on issues I still face - should I be concerned, are they related to SRT/ADT? 1) I still have pain when I pee. Some days not too bad, other days...

11/5/2014 2:11 PM

Prostate Cancer
Did anyone feel weak from radiation therapy for pc?

2 Months out for me (post SRT) and fatigue is becoming a thing of the past. I still get blown by a stiff uphill climb, but I think that is more the fact I have put on half a stone in the last 4...

9/11/2014 7:13 AM

Prostate Cancer
SRT Completed And Now The Wait

Tdnjam The time passes slowly, but it will go. I am now 4 weeks post SRT, with hormone therapy. The fatigue is dissipating, as is the burning bladder. Burning bladder is taking far longer to subside...

8/14/2014 1:38 AM

Prostate Cancer
47 years old newly diagnosed

To the above, I would add the advice to get fit and loose some weight (if applicable). My surgeon suggested that I loose a stone (I would benefit from loosing 2.5 stone), which I did and am sure that...

8/12/2014 3:26 AM

Prostate Cancer
Application for zero club membership

Got my PSA results yesterday - <0.05. If my understanding is correct, this means there was less PSA than the testing equipment could reliably detect, so on that basis I believe that I can be a member...

8/12/2014 3:22 AM

Prostate Cancer
Prostate Cancer Survival

Hi Sammas One thing that no-one seems to be saying is that there is a high risk of infection from a biopsy. It is a fairly standard practice for the doc to give you a bunch of antibiotics to take...

8/4/2014 1:56 AM

Prostate Cancer
Don't understand PSA

Hi Tony Just wanted to echo the previous poster - PCa seems to be a complex disease and each person appears to be different. I recently met with 4 others who had received treatment at the same centre...

7/30/2014 4:58 AM

Prostate Cancer
When to commence SRT?

I had a C-11 Choline PET scan at the Churchill in Oxford. The medical insurance was loathe to allow this at first and requested a standard MRI scan 1st. Both showed no evidence of the cancer, which...

7/24/2014 12:47 AM

Prostate Cancer
When to commence SRT?

Hi Zeddy I had my RP at the Wellington in London, under Mr Declan Cahill. Can thoroughly recommend both. Mr Cahill was really good at explaining the details of the op to both myself and my wife (in...

7/23/2014 11:33 AM

Prostate Cancer
When to commence SRT?

Hi Zeddy I live further south than yourself, close to Milton Keynes. I am surprised that the care that you have received on private appears to be sub standard. I had 2 biopsy's from separate private...

7/21/2014 5:48 AM

Prostate Cancer
Link to Vasectomy?

Seems the moral of the study is do some research before asking the question. The link above seems to indicate there is no link...

7/11/2014 7:45 AM

Prostate Cancer
Link to Vasectomy?

BBC reported last night that a link between PCa and vasectomy is suspected. Am curious as to how many sufferers here have had a vasectomy witin the period 10 years prior to dx. Not a scientific poll...

7/11/2014 1:14 AM

Prostate Cancer
PSA down due to ADT or SRT?

I am with Tall Allen on the subject if which treatment did the trick, I just want the trick done. The idea is that the cancer is eradicated and stays gone. It is not like working out the best...

7/11/2014 1:07 AM

Prostate Cancer
Reflexology

The clinic that is performing my SRT offers Reflexology and counseling as a complimentary (both free and adjacent to/in tandem with) therapy. I have had 2 sessions. At the 1st one the practitioner...

7/8/2014 2:17 AM

Prostate Cancer
PR advice for my case please

Hi Charles I was in a similar situation to you, probably not as fit, but I went for surgery. I still think with what I knew then the surgery was the correct option, and i guess I was just unlucky...

6/30/2014 2:34 AM

Prostate Cancer
Cystitus

Have skin tattoos for markers. My issue with the Uro is that I cannot speak to him and the communications from him are muddled. He left me a voice mail telling me that maybe he would do a cystoscopy...

6/30/2014 1:30 AM

Prostate Cancer
Cystitus

Thanks Peter. Urologist has had a change of heart and has decided to do a cystocopy today. I suspect the radiation oncologist bent his ear a bit, as he had contacted the urologist last Friday to get...

6/27/2014 1:03 AM

Prostate Cancer
Biopsy Now or Wait???

I would favour getting the biopsy earlier rather than later. I had 2 biopsys , with no dire consequences. The 2nd which turned out positive was 3 weeks before i went on vacation, with the PCA...

6/27/2014 12:41 AM

Prostate Cancer
Cystitus

I started to get cystitis symptoms at the end of the 1st week of my SRT. Symptoms are cloudy urine, which sometimes smells a bit "cheesy", faint traces of blood some days, and an intense burning...

6/26/2014 7:00 AM

Prostate Cancer
Just got result of biopsy

Its a bumpy ride. as others have said, don't rush into an option, but do the research. Loose a bit of weight and get as fit as possible, as all this helps you along the journey, whichever path you...

6/24/2014 1:23 AM

Prostate Cancer
Being Insensitve To Myself

I can empathize with both sides of the good/bad cancer argument. For me, the attempts at containment/cure are are worse than the disease at the moment. In my darkest hours I am fearful that the SRT...

6/24/2014 1:19 AM

Prostate Cancer



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