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newtopc

HealingWell Forum
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Member Profile
Display Name
newtopc
Profile Created
12/23/2009 1:31 PM
Last Seen
5/15/2021 6:41 PM
Total Posts
95

Last 50 Posts

Hi, my wife is worried

Hi, its Greg, I have been on this site for many years worrying and sharing my results with prostate cancer. I am somewhat cured - 5 years under .008 and feeling very fortunate. My wife was my rock...

5/15/2021 6:41 PM

Breast Cancer
Yikes - Ultrasound Results

Hi all, Thought would post an update. Stricture surgery competed last Wednesday. Due to the URO's office being closed Friday I had to have the catheter until today. Hoping that is my absolute last...

3/22/2021 4:15 PM

Prostate Cancer
Stricture guys?? - can a stricture cause blood?

Hi all, I am going in Wednesday for a cystoscopy. It was unsuccessful a couple of weeks ago due to a stricture and the URO did not want to cause any damage. I am hopeful that the blood at the end of...

3/14/2021 5:16 PM

Prostate Cancer
Yikes - Ultrasound Results

Hi all, Not sure if I should ask this on a new thread but here is the update and my question. Went for the Cystoscopy and was not successful as I have a stricture. I am scheduled for surgery March...

3/1/2021 4:27 PM

Prostate Cancer
Yikes - Ultrasound Results

Hello all, its been a while since I posted. Almost 59 years old now. I didn't want to do a victory lap and then get sidelined. So good news, PSA <.008 - 5 years in May, erections ok with a pill,...

2/12/2021 3:11 PM

Prostate Cancer
Does the fear of recurrence ever go away (or even subside)

So I will chime in on this one. Before I had a positive Dx I would call the doctors office 48 hours after my blood draw, I would graph the increase or decrease to see what the trend looked like...

10/5/2017 4:57 PM

Prostate Cancer
<0.1 first post RALP Psa and feeling blessed

Congrats.....great result.....wishing you many more. Nice result on the continence as well... sounds like you are well on your way> Greg...

7/10/2017 6:44 PM

Prostate Cancer
Gout? Never a dull moment...

I had my first gout attack in 2009 after a big red steak and a bottle of red wine. Big toe hurt like heck. Went to my doctor and got the blue and white pills...had gout attcks for several years after...

7/10/2017 6:39 PM

Prostate Cancer
Brag or Complain...Today I want to Brag! 1Year since Open RP

Hello friends, I see many posts with problems and I am wishing eveyone can get past the beast and live well. I mostly post when I am worried, nervous, confused and in despair. Also, some questions I...

5/14/2017 1:36 PM

Prostate Cancer
Good Friend PSA 4.2 Pathology _ feedback Please

Thanks for the feedback team, Yes, meant to mention he is the same age as me 54. I am giving him a call later tonight to see how he is doing. I had never heard of the abdoman catheter in all my...

3/30/2017 4:49 PM

Prostate Cancer
Good Friend PSA 4.2 Pathology _ feedback Please

Hello friends, My buddy was a great friend during my journey, the only one that would not respect my wishes for no visits for 2 weeks after my surgery, but he showed up anyway......needed the...

3/29/2017 8:17 PM

Prostate Cancer
Feedback on Pathology Reports

Wishing you a speedy recovery, no side effects and zeros' for life! Greg ps. rye and pepsi for me, lots of ice......

3/29/2017 7:52 PM

Prostate Cancer
Hello, new here and currently awaiting biopsy results.

Hi Gumby and welcome, sorry you have to be here. I found this site as a random google search as well in a desparete need to learn as much as I could. Great people here. I was the same age as you when...

2/17/2017 6:50 PM

Prostate Cancer
2nd PSA Post RP - reads <.008 Is the test getting that sensitive?

Thank you for all the feedback and the note from BillyMac is a morale booster! I am just home from my Uro appointment and he is very pleased with my results. I asked about the ultrasensitive testing...

1/9/2017 4:30 PM

Prostate Cancer
2nd PSA Post RP - reads <.008 Is the test getting that sensitive?

Hello all, Hope this is not a mistake and it is actually .08 and not <.008. I have never heard anyone report any less than <.01 on here after RP. My first test in August was <.01. If the testing has...

1/7/2017 6:47 PM

Prostate Cancer
One week post RALF

40buickcoupe, I had some leakage around the cath several days after when #2. Freaked me out and I called health care nurse, in the meantime I google searched and made myself feel alot better when I...

12/28/2016 2:10 PM

Prostate Cancer
First PSA Post RP

Thank you for the well wishes.....not sure if I should post this under a new thread but just came back from the Uro and feel like I went from a Rock Star to a Roady..... He said that the undetectable...

8/22/2016 2:00 PM

Prostate Cancer
First PSA Post RP

Hello all, I finally found the courage to look at my PSA result on-line. This was the most anxiety I have ever experienced on a PSA test. Have appointment with Uro on Monday and I always want my...

8/20/2016 8:10 AM

Prostate Cancer
Post Prostatectomy Penis Pain

Hi Sunbird, I had open RP 5 weeks ago and have occasional perineum pain. Seems more noticed after a day out and about, not so much when resting. I have the same penile pain as marke when it feels...

6/29/2016 2:16 PM

Prostate Cancer
thankful for all of you, only here could I ask this question with those that can relate

Hello all, Thank goodness for this forum...I have no one else to ask for help on this particular subject. One month from surgery and 16 days since cath removed. I feel fortunate that I do not need a...

Today 5:38 PM

Prostate Cancer
Calling all pT3 Club or "The Horse Has Left The Barn Boys"

Gemlin suggested I join this group PT3a (ECE) - 7% involvement, gleason 7 = 3 plus 4...

6/9/2016 8:57 AM

Prostate Cancer
Pathology Report- feedback please

Thanks Gemlin, I reread the report and you are correct, it doe say OR.........so I take it EPE is better. What exactly does that mean and what impact could occur in the future? Thanks in advance Greg...

6/9/2016 8:41 AM

Prostate Cancer
Pathology Report- feedback please

Thank you for your response and well wishes. Knowledge is power and I appreciate your sharing. I did some research and PT3a means that there was some microscopic cancer cells identified on the...

6/7/2016 6:29 AM

Prostate Cancer
Pathology Report- feedback please

Hello all, Got my stitches out and catheter out...... won't miss that. Summary from surgeon - Lymph nodes negative, cancer 3+4, glesson7 and 7% involvement. Cancer was outside prostate on left side...

6/6/2016 4:06 PM

Prostate Cancer
Home after open RP

Thank you for all the feedback and well wishes. I stopped trying to do kegels, it is very uncomfortable. Good news....Elvis left the building this morning......I am going to keep on the stool...

5/29/2016 12:01 PM

Prostate Cancer
Home after open RP

Hello all, So I elected to have an open RP on Tuesday May 24th, got home from hospital Thursday afternoon. Had to keep drain in and home care has been coming to visit. It was plugged so we think we...

5/28/2016 11:37 AM

Prostate Cancer
Met With Radiation Oncologist - Not convinced

Works out, the clinical trial is 2 rounds of HDR with no external beam. Apparently that is new. I have not seen anyone at Sunnybrook yet but am expecting an appointment at Princess Margaret soon....

3/17/2016 7:05 PM

Prostate Cancer
Met With Radiation Oncologist - Not convinced

Hi all, Completed my second step of my three step decision making process. Met with my Uro who is surgeon for open RP last week. Met with RO today and waiting for appointment with robot surgeon. He...

3/16/2016 7:15 PM

Prostate Cancer
Its Official - Diagnosed Today

Thank you all for your comments and support. I live in Canada, about 90 minutes east of Toronto. I have been online looking at official cancer sites. I intentionally booked today off work before...

2/26/2016 10:16 AM

Prostate Cancer
Its Official - Diagnosed Today

Hi Halbert, Yes, I have the pathology report. The overall gleason score is 7 (3,4), the highest gleason score is 7 (3,4) and the % gleason patterns are 4,5 and 5%. Does this make sense? The 3 + 4 was...

2/25/2016 4:54 PM

Prostate Cancer
Its Official - Diagnosed Today

No matter how I tried to prepare myself for the news on my 3rd biopsy, it is still a blur and upsetting. 2 of 12 cores positive. 1st core gleason 7 being primary 3 and secondary 4 with 25% tissue...

2/25/2016 4:11 PM

Prostate Cancer
Get my PSA results online - yet GP Called - never good

Thank you for your comments. I will ask about the saturation biopsy....not looking forward to that...and the PHI. He has never mentioned that test to me. I will be suggesting another biopsy...he...

12/14/2015 4:25 PM

Prostate Cancer
Get my PSA results online - yet GP Called - never good

And Hawk.....already taking your advice....but its Rye and Pepsi or in American lingo.....whiskey and coke!!! Cheers...

12/11/2015 7:19 PM

Prostate Cancer
Get my PSA results online - yet GP Called - never good

Thanks Andrew and Ken, We talked about a PSA 3 test and I would be happy to pay for it; my uro said, so if it comes back in the grey zone which has the most probability....are we any further...

12/11/2015 7:15 PM

Prostate Cancer
Just for fun--let's talk about cars

First car: 1968 2 dr hard top pontiac parisiene, fenders rusted out. Dad said I could have the car if I got it running. Started on fire at the choke when I got it to start. Successfull run. If I got...

12/11/2015 4:54 PM

Prostate Cancer
Get my PSA results online - yet GP Called - never good

Hello all, Been some time since I have posted. Blood draw yesterday and I can now go online to get results. My plan was to look online after Christmas so as not to be distracted. My GP gets copied in...

12/11/2015 3:51 PM

Prostate Cancer
Results of my 20th PSA test in 6 years 6.7

Sorry, forgot to include my signature info. No history of PC, very small prostate (bottom 15% so biopsy guy says), no urgency or stream issues. Have experienced some post urination dribble but so...

9/1/2015 3:57 PM

Prostate Cancer
Results of my 20th PSA test in 6 years 6.7

Been a while since I have posted. Been looking back to see how everyone is doing. Not sure what my uro will suggest at this point. I have been on this road for 6 years. I seem to be a lot calmer than...

8/31/2015 5:09 PM

Prostate Cancer
Got my MRI and PSA result today

Hello all, On my last post my PSA jumped from 5.8 to 9.4 and I wanted a retest as it made absolutley no sense to me! In any event my Uro ordered an MRI and saw no need for a retest but felt a third...

2/13/2014 4:40 PM

Prostate Cancer
Decision Made MRI of prostate then biopsy

Psa with fluctuations but trending up. Last post I mentioned wanting another PSA test as a jump from 5.8 to 9.4 seemed unreasonable and I was thinking lab error but knew uro would want biopsy. He has...

11/18/2013 5:21 PM

Prostate Cancer
Time for MRI and 3rd Biospy - not looking good

Thanks everyone for your comments and yes I was looking for feedback. My uro said the MRI would be done at our Regional Health Centre as that is where there is an expert in identifying suspicious...

11/10/2013 9:00 AM

Prostate Cancer
Time for MRI and 3rd Biospy - not looking good

Thanks for the reply guys, we talked about a PCA3 test a while back but he seemed to let that go and was more interested in an MRI, apparently the MRI scan has come a long way and it would be helpful...

11/8/2013 5:22 PM

Prostate Cancer
Time for MRI and 3rd Biospy - not looking good

My PSA has continued to increase over the last 3 and a half years. In the 4's in 2009 and 2010, into the 5's in 2011 and 2012 and the last four tests in 2013 are 5.2 in January, 6.2 in May, 5.8 in...

11/8/2013 4:58 PM

Prostate Cancer
Back from URO PCA3 Test?

Just got back from Uro appontment. PSA at 5.68, fluctuates all over the place but 2 negative biopsies. I have been asked on previous posts about a PCA3 test and I did not think it was availabe in...

10/22/2012 3:29 PM

Prostate Cancer
PSA up again..Frustrated

4.12...4.61...3.95...6.18...4.64...4.33...4.89...5.72...5.00...4.90..and now 5.68. If the uro suggests a third biopsy what do I do??? I have been taking PSA tests for 3 and a half years and two...

10/15/2012 6:23 PM

Prostate Cancer
aneurysm in stomach

Hello, my mother is 83 years old, 87 pounds and has been diagnosed with an aneurysm in her stomach about a year ago. She just went to the doctor and he said the aneurysm is now over 4 and he has...

6/26/2012 5:55 PM

Heart & Cardiovascular Disease
PSA again / things seem stable

James, I have never had any antibiotics, never any discomfort at all. In fact no symptoms of anything. If it wasn't for the blood test on a physical I wouldn't be seeing a specialist and going...

6/12/2012 11:55 AM

Prostate Cancer
PSA again / things seem stable

I usually drop by after every PSA test, here is my PSA history: 5/09 4.12 10/09 4.61 01/10 3.95 03/10 Biopsy clear 07/10 6.18 08/10 4.64 10/10 4.33 03/11 4.89 07/11 5.72 08/11 Biopsy one sample...

6/12/2012 8:14 AM

Prostate Cancer
Latest PSA Result, down this time

Hello all, well just had another PSA test after second negative biopsy (one core with HGPIN and ASAP) coming in at 5.07. Thats down from 5.77 and reversing the upwards trend from the last two PSA...

1/10/2012 3:10 PM

Prostate Cancer
Second Biopsy Negative "BUT"

Thank you for the replies, I have searched the PIN and ASAP, they appear to be indicative of cancer but not a sure thing. I told my Uro with my elevated PSA, low free PSA and now the PIN and ASAP...

9/19/2011 6:11 PM

Prostate Cancer
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