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LF1980

HealingWell Forum
>
Member Profile
Display Name
LF1980
Profile Created
7/25/2008 11:47 AM
Last Seen
2/9/2010 2:48 PM
Total Posts
78

Last 50 Posts

Alzheimers and Lyme disease

How long were you at Envita? Are you still doing well? Are you doing any antibiotics? Thanks....

2/9/2010 2:44 PM

Alzheimer's Disease
Lyme Charity Event

Help us fundraise by creating your own website/walk team - you can even be a virtual walker if you cannot attend the event. Choose the New Providence, NJ walk. Donations benefit the Turn the Corner...

6/18/2009 1:34 PM

Lyme Disease
So dizzy...

You should go to an ENT - a good ENT - I have one in NYC if you can make it there. There may be fluid in your ears that he needs to monitor and get rid of. You have to go to a good Lyme literate ENT...

5/31/2009 6:08 PM

Lyme Disease
Lyme Charity

I am hosting a Lyme Charity walk in New Providence, NJ in September and am looking for volunteers. Please email me if you are interested - lauradghrs@hotmail.com . Thanks! Laura...

5/29/2009 11:27 AM

Lyme Disease
2 and a half years of hell :( please help

Please email me for a good doctor....

5/29/2009 11:25 AM

Chronic Fatigue Syndrome
IV rocephin people

Try IV vitamins or vitamin shots 2-3x a week for energy....

5/7/2009 6:29 PM

Lyme Disease
Lyme Support Group - NJ

There is a lyme support group meeting on April 11 at 1pm in West Caldwell, NJ. Email me for more details. lauradghrs@hotmail.com ...

3/20/2009 12:37 AM

Lyme Disease
autonomic dysfunction

you might want to speak to my doctor - she is south african but now lives in NJ....

3/17/2009 6:05 PM

Lyme Disease
How long does herx last?

a few days to 4-6 weeks...

3/17/2009 5:05 PM

Lyme Disease
I'm looking for a new LLMD......

Email stephanie@turnthecorner.org ...

3/17/2009 5:03 PM

Lyme Disease
neck stiffness and diagnosis

Email stephanie@turnthecorner.org for lyme doctors in your area. Get yourself and the baby there asap....

3/17/2009 4:57 PM

Lyme Disease
help !! bad herx?

Ask you doctor for tylonol with codeine. It will get better with time...don't worry....

3/17/2009 4:54 PM

Lyme Disease
autonomic dysfunction

I was first diagnosed with a autonomic nervous system dysfunction virus. Only got worse and was finally diagnosed with lyme and bartonella. It sounds like you may have both tick borne infections as...

3/17/2009 4:48 PM

Lyme Disease
Promising Treatment for CFS

Sounds like Lyme disease. Please try to see an lyme literate doctor. Let me know if you need the name of a great lyme doctor in your area. If you have been tested for lyme please know that the tests...

3/11/2009 6:51 PM

Chronic Fatigue Syndrome
Can anyone recognise him/herself in me/ my symptoms?...

Sounds like Lyme disease. Please try to see an lyme literate doctor. Let me know if you need the name of a great lyme doctor in your area. If you have been tested for lyme please know that the tests...

3/11/2009 6:38 PM

Chronic Fatigue Syndrome
Does this sound like CFS?

Sounds like Lyme disease. Please try to see an lyme literate doctor. Let me know if you need the name of a great lyme doctor in your area. If you have been tested for lyme please know that the tests...

3/11/2009 6:36 PM

Chronic Fatigue Syndrome
CFS was really Lyme for 7 years

I am so happy you all posted your stories. I think as time goes on and more research is done we will find that most CFS cases are in fact lyme disease. Please let me know if you need the name of a...

3/11/2009 6:35 PM

Chronic Fatigue Syndrome
I need help and no-doctor has taken me seriously

Sounds like Lyme disease. Please try to see an lyme literate doctor. Please let me know if you need the name of a great lyme doctor in your area. If you have been tested for lyme please know that the...

3/11/2009 6:33 PM

Chronic Fatigue Syndrome
What doctor to see

Lyme disease often the root cause of Chronic Fatigue Syndrome and Fibro. Please try to see an lyme literate doctor. I think that as more research is done, my guess would be that over 90% of CFS...

3/11/2009 6:31 PM

Chronic Fatigue Syndrome
2 and a half years of hell :( please help

I am 28 years old and had a very similar life style until one day I came down with much of the same symptoms you had. Let me guess - the 'flu like symptoms were in the summer, you got better, but...

3/11/2009 6:28 PM

Chronic Fatigue Syndrome
How many with CFS also have FMS. or think you do???

Lyme disease often the root cause of Chronic Fatigue Syndrome and Fibro. Please try to see an lyme literate doctor. I think that as more research is done, my guess would be that over 90% of CFS...

3/11/2009 6:23 PM

Chronic Fatigue Syndrome
Do I Have Lymes Disease???

Don't focus so much on the blood test results. The lyme blood tests are known to be unsophisticated and the diagnosis is often a clinical one. Good luck. Don't stop until you find an answer....

3/11/2009 6:18 PM

Lyme Disease
why so many years worth of antibiotics?

The reason why lyme is so difficult to treat and the reason why years of antibiotics are needed is because the bacteria is a biofilm - the bacteria have the capability to grow within colonies...

2/2/2009 5:52 PM

Lyme Disease
iv rocephin and insurance

You guys...that is crazy. My doctor sells it for $40 a day. She mixes it and everything. Plus she gets the heparin and saline donated from other patients that don't need it or have insurance coverage....

10/26/2008 6:38 PM

Lyme Disease
LLMD's in NJ - Opinions?

Dr. F in NJ is by far the best lyme literate doctor. You need to go to her....

10/24/2008 11:04 AM

Lyme Disease
Brain Fog

I get the derealization feeling, it sounds like you are low on seratonin- ask your doctor about cymbalta. It helped me A LOT....

10/24/2008 11:03 AM

Lyme Disease
Help with questions please -

Hi - has anyone suggested you have lyme disease and/or possibley another tick borne infection? Please email stephanie@turnthecorner.org to get the name of a lyme literate doctor in your state. - You...

10/24/2008 10:47 AM

Chronic Fatigue Syndrome
Marshall Protocol

The Marshall protocol works - too much vitamin D is NOT a good thing. It can cause increased inflamation in your body and also decreases the effectiveness of the immune system so that bacteria and...

10/24/2008 10:44 AM

Chronic Fatigue Syndrome
i have bad pains from the bottom of my right rib through to my back and chest

Hi - has anyone suggested you have lyme disease and/or possibley another tick borne infection? Please email stephanie@turnthecorner.org to get the name of a lyme literate doctor in your state. You...

10/24/2008 10:40 AM

Chronic Fatigue Syndrome
Some truly hideous headaches!!

sleepy, I had these crazy headaches that NEVER went away and were so strong I would just cry and cry. I also had heart palpitations and chest pain. Have you ever been tested for tick-borne...

10/24/2008 10:37 AM

Chronic Fatigue Syndrome
Diagnosing CFS

Hey I really think you have lyme disease. I am not a big believer in just waking up one morning and feeling bad, then never getting better. There has to be a cause. Your lyme doctor should tell you...

10/24/2008 10:35 AM

Chronic Fatigue Syndrome
Not sure what is up with me :( Ill, sleep problems

Hi - has anyone suggested you have lyme disease and/or possibley another tick borne infection? Please email stephanie@turnthecorner.org to get the name of a lyme literate doctor in your state. You...

10/24/2008 10:30 AM

Chronic Fatigue Syndrome
painful lymph nodes

Hi Harry, I had the same problem with lymph nodes. It ended up being bartonella - a tick borne infection. Have you been to a doctor proficient in this area? If you need a doctor in your state that...

10/24/2008 10:29 AM

Chronic Fatigue Syndrome
HELP from someone proficient in late lyme please

Contact stephanie@turnthecorner.org for a great doctor that can help you....

10/24/2008 10:26 AM

Lyme Disease
Head Pressure-- Could this be Lyme?

I would say see a lyme doctor ASAP. My lyme disease started with 'head pressure' followed by a lot of the symptoms you are describing, including swelled lymph nodes in the breast/under arm area. let...

10/18/2008 6:12 AM

Lyme Disease
Post-Lyme?

Thanks for your reply. I do have Bartonella as well. All my bloodwork is good, except I have a high vit D125. Also, a bit of a blood pressure issue as well. I really trust my doctor and I think she...

10/18/2008 6:08 AM

Lyme Disease
Went to a LLMD today, here is what she said...

Take as much as you need to in order to avoid relapse or the disease popping up in the future and being chronic....

10/17/2008 10:58 PM

Lyme Disease
No insurance, what to do?

Sometimes my doctor will work out a payment plan for those people who cannot afford treatment. Let me know what state you are in and maybe I can hook you up with her....

10/17/2008 10:51 PM

Lyme Disease
Sun Sensitive from Doxy - Help

Get a blood test for vitamin d25 and 125, it might explain some of this reaction. Also, maybe a better antibiotic would be good for you....

10/17/2008 10:49 PM

Lyme Disease
Question for those who have had Acupuncture

It didn't help me....

10/17/2008 10:44 PM

Lyme Disease
Turn the Corner Event Benefiting Lyme Disease in NYC

I'd like to invite you all to this event. http://turnthecorner.org/unmaskacure2008/ ...

10/17/2008 10:41 PM

Lyme Disease
Post-Lyme?

After 6 months of misdiagnosis, I was finally treated for lyme and have been treated now for 2 years. I have to say that I am much better but a few pesky symtoms are still there. I actually don't...

10/17/2008 10:39 PM

Lyme Disease
SO FRUSTRATED WITH DOCTORS!

You must get a new doctor immediately....

10/17/2008 10:36 PM

Lyme Disease
lyme v. ms?

Lyme can trigger MS, Lupus, rumetoid arthritis, etc. If MS is not in his family and he has a history with lyme - I would not stop until you find a good lyme dr. Most of the time, MS can be reversed...

10/8/2008 7:05 PM

Lyme Disease
Does this sound like good advise from LLMD? Getting concerned....

It sounds reasonable that he would get much worse before he gets better. My first flare up ever lasted for about 3 months and then I will still feeling badly for another 6 months before seeing...

10/8/2008 6:46 PM

Lyme Disease
still waiting!

I don't think everyone has lyme disease but if you came down with flu-like symptoms before the 'fibro' symtoms, you may want to be see a lyme specialist....

7/29/2008 7:43 AM

Fibromyalgia
still waiting!

You can still have lyme even if you do not test positive on any blood tests. There are hundreds of strains of lyme and the blood tests only test for a few of these strains. Maybe people go untreated...

7/25/2008 11:17 PM

Fibromyalgia
Multiple symptoms with no answers

Please do, I know the feeling, you will do ANYTHING to get better. and you might just have to. If you get to NJ, I will take you to the doctor. or I will give the email of my doctor so you can email...

7/25/2008 5:51 PM

Chronic Fatigue Syndrome
still waiting!

I don't want to be annoying but are you sure its not lyme? The symptoms can include but are not limited to: brain fog, difficulty concentration, difficulty with focus, eye floaters, eye issues, teeth...

7/25/2008 5:48 PM

Fibromyalgia
still waiting!

Have you had a brain SPECT test? Were you ever on antibiotics? I really do not believe in - just waking up one morning to something wrong - without a reason. To me, fibro is caused by something -...

7/25/2008 3:59 PM

Fibromyalgia
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