Chutz, I hadn't even thought about this being a catalyst to a flare. We have been having a very mild winter this year in MT & I have been doing well. Not a lot of energy but feeling better. The last...
Hi and welcome to the forum. I agree that you need to just start all over, start by talking to your Dr & let them know you really are searching for an answer. I like the diary idea, that would be a...
Stella Maris, welcome to the forum. This is a very quiet forum but I have often hoped it would get more active. I am sorry you have CFS/ME it is a debilitating illness with no cure. I am sorry to say...
Hi, I am sorry you are having such a bad time. I don't think I could get too much sleep without my Trazadone. I think I have been taking it about the same amount of time as you have, I also take...
Yes, almost medfree, it did go up about $150.00 over what I was receiving before. I had been receiving SSD & SS from my husband who died 9 years ago. I was really worried that it was going to go down...
emotions, yes a lot of your symptoms are ME/CFS. One of my main problems is my cognitive problems, I used to be able to retain much of what I would learn & read but now my brain is a leaky vessel. I...
I am sorry you are feeling so lost & alone. Having ME/CFS is no picnic & we are really sick. When we become sick we will go through all of the stages of grief for all that we have had to give up....
Chris, ME is Myalgic Encephalomyelitis is another name for CFS. It is called one or the other in different countries of the world. Here in the US it is called ME/CFS. Of course there are some who...
Hi KCrispCat, my heart goes out to you. I totally understand what you are going through believe me. I have dealt with depression since I was 11, I am 65 now & have been ill with ME/CFS for about 10...
Yes, this is a very slow forum. I stuck it out here for quite a while but it never picked up. I go to Pheonix Rising which is a very active forum for ME/CFS, also I have used Daily Strength, another...
Megzlegz, Wow, I love how strong you are & what you said. Even though you are ill, you deserve to have a mate who cares deeply about you & your feelings. Sounds like your boyfriend is a bit shallow,...
Hey, I know what you mean about going to the store, I come home with such a feeling of accomplishment. lol. I loved my job so much & really hated to have to quit but I just couldn't do it anymore. I...
abhi, I was found to be deficient in Vit D so my Dr. put me on D3 2000 i.u.s & my levels are good now. It helped a little bit but certainly I have not recovered from CFS/ME at all. Absolutely, get...
Hi Gemma & welcome to the forum. I can relate to a lot of your issues such as CFS, depression/anxiety & Gerd. It seems like CFS never stands alone. The depression & anxiety forums on Healingwell are...
Hi, welcome to the forum, this is not a really active forum so I belong to other forums as well. Sounds like you could absolutely have CFS/ME. Many of your symptoms are like mine & other symptoms are...
CaliforniaGuy, You need to post this in the Chrohn's Disease forum. I hope you get the answers you are looking for. May your journey be a short one. Hugs, Denise...
When i was trying to figure out what was going on with me I did a lot of looking things up on the internet. I would then take printouts to my Dr. & she would tell me that it was a possibility or no...
Gaia, I have had the internal shaking but not for a while, I still get pins & needles in my feet sometimes. I have found the symptoms of this illness morph & change as time goes on. The symptoms I...
Gaia H, welcome to the forum. CFS/ME is diagnosed by eliminating everything else it could possibly be, the last thing that was eliminated for me was MS. These two illnesses have a lot of symptoms in...
Hi Bettsann, it sounds like your Dr. is on the right track, you do sound like me & I totally get what you are trying to say. Unless you live with CFS/ME it is hard to understand. I tell you, you...
Hi & welcome to the forum. I sure hope you don't have CFS/ME but i have heard of those your age & younger getting this. It is hard to say if you have CFS/ME. It is an illness that must be dx'd after...
MartinRiggs, we have an invisible illness that other people can't see. When we push ourselves all of the time to accommodate what others want to do, they begin to downplay our illness & think you...
Blissy, to begin with, you need a Dr who knows about CFS/ME, it is not part of Fibro. Some Dr's now-a-days still have old school thinking on the illness & so you have to find one that is...
JDB, I am sorry you are having such a hard time right now, I hope you don't have CFS/ME because there really isn't anything that can be done & we are left to our own devices to see what works for...
Yes, I have been reading about this but we will just have to wait & see where this goes. Hard to tell at this time which came first, the chicken or the egg. Does CFS/ME cause this problem in some...
Oh my, that is wonderful news. If it was me I would be out celebrating but I really think you should take it very easily. Sounds like maybe you didn't have CFS/ME at all. That was my hope for many...
Inwinder, welcome to the forum, I am sorry you are feeling so bad. Your symptoms are consistent with Chronic Fatigue Syndrome, so this could be what you have. CFS is an illness that is diagnosed by...
Hi, I don't have EBV but I would think a Rheumatologist would be a good way to go. Or you might try an Internist. Hugs, Denise...
When I first became ill one of the first symptoms I had is vertigo, I was so dizzy that I became nauseous all of the time. I talked with my pharmacist & he recommended trying Meclizine. I did & it...
heat123, I am so sorry you are going through this. You sound a lot like me especially when I first became ill. One of the first things I found out was I had an intolerance to soy, it just came on all...
jjacques, first off, let me say that your English is very good so don't worry about it. I have had CFS for about 11 years & have done like you have. I have tried many things. I am sorry to say I have...
Noramouse, welcome to the forum, sorry for the reason though. I have had CFS/ME for 10 years & fully understand the feelings & emotions you are going through. I went through them all too. It is...
Louise, wow, we all sound the same, I could have written any one of these posts. I spend quite a bit of time sleeping & the rest of the time I spend mostly on the couch watching TV or on my computer....
Hi GG, it sounds to me like you are overwhelmed & have a lot on your shoulders. All that you are going through can cause all of the symptoms you are experiencing. Are you taking anything for your...
No I do not think CFS & Lyme are the same illness. I have CFS & have never thought that I have Lyme disease. I have read the progression of Lyme to really check it out & it is not even close to how...
jlr, welcome & hi. I don't take Zoloft but I do take Citalapram for depression, it does help me to live with my illness. I hope you get the full benefit from the Zoloft & find some relief soon. As...
Marina, hi, it is nice to meet you, I wish it was under better circumstances. CFS is a mysterious & complicated disease. Recently the Institute of Medicine renamed it Systemic Exertion Intolerance...
Zebra, I am so happy you found a CFS Dr. As far as your question goes I would think that as long as you tell them ahead of time that you are taking prednisone it should be fine but I am not a Dr. You...
Hi Frenchielover, I am sorry you have to deal with so much. I have Fibro & CFS also & have to deal with the sleep issues. The insomnia is from the Fibro & really conflicts with the CFS. When I was...
Systemic Exertion Intolerance Disease (SEID) as proposed by the Institute of Medicine. When they came out with it last week I wasn't really a fan except that it did away with the "chronic fatigue"...
Hi Zebra & welcome. I am no where near the area you are looking so I can't help you there, sorry. I have to say that there is nothing worse then having someone, especially a doctor, tell you that...
Jkn913, oh how horrible, I am such a chocolataholic, I was so happy to find it actually helped me. Combined with my coffee addiction (for energy of course) I am on top of the world, lol. With this...
ptl4, welcome & I hope you are having a good day. I know what you are talking about & I have been sitting here trying to decide if my emotional detachment was due to my depression or my CFS. I have...
Welcome to the forum, I am happy you finally got your dx. I have tried many things over the years, veggies & fruit, no sugar, high protein, no flour/gluten free. Lots of different supplements,...
Yes, I deal with the twitching, I think that is Fibro. The tingling I get when I am getting to fatigued & my body is just done. This is from my CFS, it used to drive me crazy but since I know it is...
Welcome to the forum, I am happy to meet you. I know what you mean about having to advocate for yourself in order to find even a tad bit of relief, I am happy to up my relief by 1%. Right now I...
Ajay, welcome to the forum, I am sorry for the reason that we are here but it is always nice to meet someone who understands my life. Lol! I was about your age when I was dx'd, I had so many emotions...
Skeye, welcome to the forum. I really hope you do not have CFS because there is no treatment or cure. You sound so much like me when I was first ill. I was working at a job I loved but just couldn't...
Thank you for sharing this interesting information. My first symptoms with CFS were about the same time as I went through menopause. I was also under a lot of stress at the time. I will look into...
Yes I have been tested for thyroid many times, along with a myriad of other tests. Both Chronic Fatigue Syndrome & Fibromyalgia affect sleep. I have times of insomnia & times when all I want to do is...