Wackers, I do not agree with the advice to get up and get moving. The crashes are CFS. I crashed into CFS 11 years ago after several years of FM. I would overdo on my days off and then have to call...
I am familiar with Dr Lee and his progesterone recommendation. However, I get major migraines from progesterone (and various other symptoms). I simply can't seem to tolerate it. Estrogen on the other...
Don't despair sueg. Go to amazon and look at some of the diet and cookbooks for MS. Dr Swank is one. Many women have found remission by following Dr Swank's recommendations and have had wonderful...
I've been reading about hypothalamus suppression and how that affects hormonal production, and I found the following at Fibro Friends written by a woman who saw a near resolution in her symptoms by...
Hi Batou, Can you get a gastroenterologist to give you the lactulose breath test for small bacterial overgrowth (SIBO)? You mentioned the IBS. That is a diagnosis that frequently precedes...
In addition to crawly bug feelings, how about that occasional sharp pin prick that feels like a bug just big you really good? I usually get that on my trunk somewhere or belly....
Hi Uhura, The waxing and waning of symptoms that change day by day, hour by hour and even minute by minute is what makes uninformed doctors think it's all in our heads. I've had fibromyalgia symptoms...
I apologize for the accidental change of font size. Sherrine, can you fix this?!?...
For those interested, here are excerpts from clinical research that discusses how bad gut bacteria (or an overgrowth in the small intestine called SIBO) can cause changes in the immune system, cause...
Blurred vision is a sign of metabolic syndrome. I actually have had fluctuating vision in the past and when muscles in the eyes get tired, they don't work as well and vision is blurry. Recently I...
That's fine, Sherrine, and I apologize. I didn't realize I left that part in when I copied and pasted it. Anyone interested can go to their site online to sign up for updates and also to volunteer...
Yes, Sherrine, Meniere's can be helped with low sodium possibly due to sodium causing fluid retention? Allergy testing is recommended for Meniere's and immunotherapy if allergies are found. I don't...
Namian, one more thing. Years ago when I developed the sudden 24-7 tinnitus and hearing loss, my ENT told me that whatever I ate would affect it. At the time, I wondered why he said this because I...
I trace my illness to some type of gut infection, being laid out on the sofa for 10 days with severe nausea, unable to keep anything down. No one else in the family got sick. After that, major...
June 14, 2013, Rensselaer, NY] – Fibromyalgia, a painful condition affecting approximately 10 million people in the U.S., is not imaginary after all, as some doctors have believed. A discovery,...
We have been overwhelmed with the response from those afflicted with fibromyalgia. We want assure you that we have received your message and that each of you is important to us. We want to get this...
Hi 777KAM777 Nice you stopped by. Your symptoms point to chronic fatigue (CFS/ME) but could also be related to fibromyalgia. Post-exertional collapse is a hallmark of CFS. I had it severely for many...
BTW , this adds more weight to the research that points to the gut as the origin of autoimmune disorders. Looking into the gut biome has changed the research and will soon change the way we view...
Stinky634, Perhaps you can hold out for a fecal transplant. It cures c diff and they are looking at using it for Crohn's. Some doctors already are. They now use a capsule of purified fecal bacteria...
Myself09 I'm disappointed that there have been divisions in the past so no one in the future is allowed to talk about diet and fibro. I understand why Fish just left. What a travesty....
No offense Sherrine, but IBS type symptoms are part of Fibro for most. I have heard numerous women say "if I could just heal my gut, I believe I could get well." Those are my sentiments exactly. A...
Er, that should be "for those who can't use meds" -- great spell check feature :)...
Fishchris, Did you share your solution and if so, can you link me to it? I can't go through the multiple posts to find it. Thank you....
Myself09, I am sorry, I was unaware of a rule that conversations about diet are off limits. I realize that there is no one-size fits all diet that fixes the gut. If the gut could be fixed, for most...
Hi fibro-mom, First I would look at your meds. Those are potential side-effects. This sounds neurological and both meds you are using affect neurotransmitters. Sometmes going through the "change" can...
Can you go outside the VA network to see a Rheumy, explain the situation, and get an outside evaluation for Fibromyalgia? Then bring those medical records with you to your VA appointment? All the...
Agawaj How old are you? Are you peri-menopausal or even menopausal by any chance? My symptoms became much worse as I got to peri-menopause and then some got better and others got worse after...
I had sudden hearing loss and have spasm deep in the ear that feels like sharp shooting pain or deep aching pain. I also have L sided tinnitus. My ENT years ago told me that what I ate would affect...
I wondered why I bruised so easily. One morning I woke up with a black eye right next to a large blood vessel. Mast cells contain heparin, a natural blood thinner, which also causes vascular...
With high creatine you should have your kidneys thoroughly checked out. I had a 1:160 ANA speckled pattern years ago and then it gradually came down to 1:40 over the next year. Like you, Rheumy...
http://www.mastocytosis.ca/MSC%20HT%20Restricted%20Diet%20Nov2012.pdf Here is the link to the Low Histamine Diet. Check it out!...
I've been following the research that shows Fibromyalgia to be a Mast Cell Activation disorder. Over time I found histamine in foods to be a huge problem. Yeast of all kinds and this includes...
Hi all, It's been awhile since I posted. Former research has shown mast cell activation disorder in Fibro/CFS and now more recently this:...
http://www.ciproispoison.com/ For those interested, see above link....
Thank you to everyone who responded! Some of my other early symptoms were chronic belching and bloat (sorry if this is gross). Also, a scary symptom was scrambling words and wanting to tell my...
Oh, and blurred vision that fluctuated was also an early symptom, and apparently that can also be a side-effect of Cipro. That is also permanent....
I haven't posted for awhile, but I have read others posts from time to time. I have a question that I hope everyone will take the time to respond to. I am wondering how many of us with Fibromyalgia...
Ezekiel bread has gluten. I love it and wish I could eat it but it's a total no-go for the gluten free diet. I am aware of Heather's web site for IBS. She developed an eating plan that helped her....
SimplyUs and anyone else with painful skin issues ("Substance P"), here is a medical research abstract I found relating to mast cell activation: Acute Immobilization Stress Triggers Skin Mast Cell...
First thing I would try is a strict gluten-free diet if you are not already on one. Infections can alter digestion permanently. I lost my ability to digest gluten 15 years ago, and I still cannot eat...
I could not take either Lyrica or Gabapentin. The damage to my bladder was cumulative and the longer I was on the them, the more severe my symptoms became. I did not connect the dots either time for...
I don't know if anyone's posted this yet, so I'll post it. Sorry if it's already been posted and/or discussed. Department of Medicine, SUNY at Buffalo School of Medicine, 100 High Street, Buffalo, NY...
p.s. Digestive problems and/or poor motility/nausea/dysphagia/GERD are also known symptoms of both mastocytosis and mitochondrial disease -- and many neurological or autoimmune illnesses. So, they...
Most GI docs are clueless. Attaching a label to a problem and finding a medication seems to be what most doctors are about. Mine started with total liquid stools for 10 days, lost 10 pounds, then...
Just one more thing. Vertigo with hearing loss that fluctuates along with tinnitus sounds like Meniere's. With Meniere's, it's believed that food allergy plays a part. I've noticed my tinnitus...
I haven't been here in awhile but signed on and saw your post. I have permanent hearing loss in both ears with constant screeching tinnitus in my left ear. Mine started in the L ear, then went to the...
This is an old post, but I wanted to weigh in. Barometric changes, especially going from warm to cold or just before a storm system comes in, wreck havoc with my body also. I get aching eyes, sinus...
Have you gone to labtestsonline to read about those tests? Anything else low?...
Has anyone had the C6 peptide test done and which are the best labs to have it run? I had a negative WB from Quest and a positive WB (not CDC +) from Igenex. My rheumatologist thinks the IGenex blot...
Minnesota, is immunostim still helping you? Can you update?...