I just recently bought a lot of the tinctures from the Hawaii Pharm company. They are still available on amazon. They ship from Hawaii so the shipping takes a little longer, but I've used these...
DaveNJ41, thanks for the response. Now that I am feeling much better (lyme literate doctor and treatment helping me) I have been looking for a new job, plus we want to move out of the area we are in....
For years, I have been struggling with chronic illness and trying to continue working. I was dx with FMS and CFS and just kept going down hill. Finally, 16-18 years later I got my Dx of Lyme and have...
So if this is being injected into your blood, how would one do that at home? What type of machine is it? Do you have a link to share?...
Hi Sarah, Thanks for responding. The doctor offering the Ozone is saying it takes many sessions for a long time in order to eradicate the Lyme. So his plan is treatments 3-4 times a week for maybe a...
Has anyone tried ozone therapy for late stage Lyme? I am contemplating this. I have done 9 months of antibiotics along with banderol and somento. Although better I am still dealing with Lyme symptoms...
I take so many supplements and stuff with water, I attribute the peeing to drinking all that water....
Hi Everyone, After being sick and being misdx with fibro for 16 years. I found out it's been lyme this whole time and am now on three types of oral antibiotics for the past two months. How do people...
" I don't know. The doc just said the lymes test came back good. I have request the results. I pick them up tomorrow. I'm very new to all of this" Welcome to the wacky, bizarro world of Lyme Disease....
When did you stop the antibiotics? How long were you on them for? Many people say if they still have symptoms after they stop antibiotics, the antibiotics have been stopped too soon. They need more...
Welcome to the forum. Sorry I can't help you with a doc. But just wanted to say, hang in there, read all you can to educate yourself. Beware of the lyme disbelievers on the web, don't listen to their...
The CDC has eliminated some of the bands from the lab tests because there was a vacine at one point that used those bands. IGenex shows all the bands. You'd have to read up on it, it's complicated....
Deb, if the Lyme tests were done by a conventional lab they may not show accurate results. Specialty labs like IGenex are the only ones that show everything. The first Lyme test, the ELISA is only...
Roxie, They do still deny it. My fibro doctor doesn't believe it's lyme because my igm's are positive but my igg's, although some positive, wasn't a "positive lyme test". He just said "well you've...
Hi Everyone, I am new to the Lyme section of Healing Well forums and just wanted to introduce myself. I've been using Healing well forums for years and love the connection. I found out recenlty that...
I have relied on this forum for many years. I find comfort coming here and relating to people as well as finding answers. For 16 years I have been struggling with pain and fatigue and a whole bunch...
When you say your legs just go out, what do you mean by it? Are you weak from exhaustion? Or do you feel like you don't have control of your legs? I am asking because recently I started having...
I already made a lot of dietary changes over the years and am on a candida diet, no gluten, no dairy, no sugar. Plenty of veggies. So hopefully that will help. I did find the new to lyme section,...
So after suffering for 16 years or so, I just got a positive test result from IGeneX. Now I need to find a doctor! The doctor that did the test doesn't believe you can have an active infection after...
Don, thanks for the article about low body temperature. I have noticed this being a problem with me, so it's good to see some ideas to raise it....
Thanks. I had my fms/cfs doctor send for the test from igenex. so waiting for that. And I have an appt in two weeks for a llmd, infectious disease doc. It just makes me so angry that this could have...
definitely apply for fmla. That way you can take the days you need to heal without having the threat of losing your job. Focus on you and your health and healing. The stress is just going to lower...
Hi everyone. I am at the beginning of figuring out if the symptoms I have been experiencing for over 16 years are actually from Lyme. I was Dx with fibromyalgia and cfs. But now am starting to think...
Looking for a LLMD in nyc or long island. Does anyone have any ideas? I have been being treated for fibromyalgia and chronic fatigue syndrome for so long, but recently am wondering about lyme's...
I found this book very helpful re: adrenal fatigue. http://www.amazon.com/Adrenal-Fatigue-Century-Stress-Syndrome/dp/1890572152 I also just found this book and found the connection between the...
I am trying Trazodone to help me with sleep. I have been having weird side effects with it. It seems to make my sensitive nervous system even more sensitive, the simple "sound" of my finace rubbing...
thanks!...
Karen, thanks for the comment. very funny that your advise is what is written on my signiture block "trying to stay positive and live one day at a time" I guess I needed the reminder. I also think...
Just wondering how everyone tries to stay positive? /community/emoticons/confused.gif I do so much to try and help myself, so many doctor's, eating plans, stress relief, suppliments, etc... I get to...
Thanks for the info. I am going to try that. Where did you get that book? I tried googling it and didn't find anything. Thanks....
Yes! We can be very sensitive to stimulation (sound, smell, touch). I can't stand many noises they go right through me, and many levels of sound. Constant hums that other people don't even hear drive...
Thanks for the feedback. I didn't realize there was a thyroid forum. I am glad you both had success with the medication once it was adjusted. Susan...
for sleep meds that you develop a dependence on (the dosage doesn't work any longer and when you don't take it you get insomnia) my doctor recommends taking half a dose one night, full dose the next....
Thanks for venting Lisa. I can relate. I am so sick and tired of being sick and tired!!! And it is true positive people really help us, negative ones are such a drain. Wishing you pleasant days and...
Anyone else have this? Doc says I have hypothyroid and has me on T3 and T4 medication. I have been having heart palpatations (sp?). Also I have noticed lately I get really cold and then really hot (I...
I believe I have read that sjoren's syndrome is common in people with fibromyalgia. It's an autoimmune syndrome where the moisture producing glands are not functioning properly. Maybe this can give...
DW- they should reimburse you for the car insurance from when you sold the car. Demand your money back. I did that when I sold my house recent, I forgot to cancel the water, but they were good about...
Unfortunately cognitive impairment can be a symptom of CFS. I have it too. Yesterday in front of a bunch of people at work, I forgot how to use the copy machine!!! So embarrasing. I have fibromyalgia...
OK, usually I can hide my fibro fog from people at work. And those few times I haven't been able to I usually can make up an excuse for it. However, yesterday I basically made a fool out of myself. I...
Thanks again Denise. I love having the support from this forum. Thank you so much for your kindness, it really means a lot to me. And thank you for your insights! Hugs back to you, Susan :cool:...
Thanks Denise for the support and kind words. I just feel so drained, my limbs feel so weak, and I'm just so tired. It's really depressing (as you know). My partner who i live with is a muscian. He...
This is so frustrating. I applied and received family medical leave act so i can take off time when I don't feel good and whenI have to go to the doctor without getting in trouble, and they aren't...
My doc said cut the caffeine and take a multi vit with iron. I did this and within a day the RLS, or crazy legs as I'd like to call it, went away. Amazing. I went to him because it was getting really...
Welcome to the forum. I find it helpful to connect, not feel alone with your symptoms, and sometimes to find tips and advice. Keep on posting, Susan...
Just wondering if anyone has gone for chiropratic treatment and found it helpful for any symptoms, or just in general. /community/emoticons/cool.gif Thanks, Susan...
"Notta Pasta" is a good pasta, rice pasta. Blue Diamond makes good "nut crackers" they are made with brown rice flour and ground nuts. They are crisp and tasty. Brown Rice Crisps are good, especially...
You are not alone. My new boyfriend (7 months) came with me to my last doctor's appointment. The doctor told me "you have a real good guy there" and I said I know, but then she said "NO, REALLY". I...
I know exactly how you feel. Last year I ended a long term relationship and was on the dating scene for the first time since getting Dx. I wondered the same thing, when to bring it up. What amazed me...
OK, I finally have to admit it, I need a GPS system to deal with my fibro fog. I am sick of getting lost and panicing (and this from a person who used to have a great sense of direction, now I forget...
First of all here is a good link to an article about skin sensitivity and fibro: http://chronicfatigue.about.com/b/2009/03/07/painful-to-touch-fibromyalgia-tactile-allodynia.htm So I don't feel so...