My mother has had chronic fatigue syndrome for 17 years. All her blood test results are normal, except for low white blood cell count. She has epilepsy and depression too. Any ideas as to what is...
My doctor just said to me, "your CD57 count is 30." I didn't have to read the test results myself. I asked him what my CD57 should be. He said between 60-260, although 200-260 is the optimum range to...
Thank you all so much! You have given me plenty of ideas to research and consider, which is exactly what I wanted :) I'm not feeling well enough to respond to each post right now, but I am grateful...
Yes the bulls-eye rash is a definitive diagnosis - no blood test needed. Yes depression, anxiety and mood swings are part of Lyme's effects on the brain....
E.ster, I'm so sorry that you have been so sick for so long. It sounds to me like chronic infections. Lyme disease testing is notoriously unreliable, so even if you've been tested for it and the...
I'm considering carefully my treatment options for Lyme Disease, Yersinia and likely Chlamydia Pneumonia. I would like to use a treatment protocol that is personally recommended by people who are...
Thanks :) Maybe you could compile all the theories and treatment ideas you have, in detail, in step-by-step plans, and show them to either the naturopath or a doctor for review just so they can give...
Wow, ok, I see what you mean now. It fits with things I have read in the Lyme forum on this website too. It is my understanding that many of the natural treatments for Lyme are all about building up...
That's good :) If your CD57 is below 60, then I think it is definitely worth getting tested by Australian Biologics. http://www.sydneylymeclinic.com/lyme-disease/testing...
Removing allergens and simple carbohydrates from your diet are things that help people with Lyme disease, because the infection feeds on simple carbs and worsens/triggers/causes intolerances and...
My body temperature is chronically low. When people hold my hand, they make comments like "cold hands but warm heart". When I feel like I have a fever, they touch my forehead and say I feel fine,...
Thanks guys! I understand a lot better now :) And I'll ask the doctor about a c4a test, if my next Borrelia test (the culture) is negative too....
Hi everyone, My Western Blot for Lyme was negative. (Infectolab, Germany) My LTT for Lyme was negative - 1 IU. (Infectolab) My LTT for Yersinia was weak positive. (Infectolab) My CD57 was low - 30...
That is so funny! Did that a true story?...
The only advice I can give without knowing the details is to follow good sleep hygiene principles. See this fact sheet:...
How significant do you guys think this result is: CD57+ = 30 It's going to cost even more money to get a PCR test......
Jasmine: •I love jasmine flowers. They have a sweet, calming scent. They are pretty and dainty. •my grandmother's name is Rose Violet, and I love the idea of following in the floral tradition. •my...
Hi Marie, Thank you for your reply :) Quite right, we possibly have a native strain here in Australia. I saw the LLMD doctor today - my CD57 is 30, which he says makes him almost certain that I have...
Thank you both :) I get all of those symptoms, the most horrible of which is the migrating pain. I get the night sweats, not daytime ones. I'm 19 - so no menopause here. I get two kinds of rashes -...
ToddPaul, I also am trying to figure out the chances of me having Lyme. I have many symptoms, too many to list. Which symptoms are "very specific and scream Lyme"?? Jasmine...
Ok :) Well, he is the only LLMD in WA. I think there's like 1-2 LLMDs in every state in Australia, despite how big each state is. No bands on the Infectolab results... Hmm... Thanks for that info!...
MarieLS, I'm in WA, not Vic...
Elispot LTT: Borrelia LFA-1 result was 1 IU...
So does a negative western blot rule out Lyme disease?...
Hi RaviGirl, I am sorry to hear this - but at the same time you've been given the chance to sort out your health while you're young, before it becomes a chronic illness. I got sick with FMS (or at...
Well, not every test, but enough to know for sure whether or not it's Lyme - so that I can either be treated for Lyme or accept that it's fibromyalgia. I just feel frustrated to have no real answers...
Thanks. I'm pretty sure the immunoblot test I had was a Western Blot test. The result on the paper was "negative". It was done by Infectolab in Germany - do you think Igenex is more senstive than...
I want to have every valid test for Lyme disease that is available. I have had these tests: Borrelia burgdorferi antibodies (immunoblot) Borrelia burgdorferi Elispot LTT What other tests can I have...
I have had heartburn my whole life, including as a baby when I continuously cried in pain and regurgitated my food again and again. I had a lot of trouble sleeping my whole life, even as a baby. My...
MrsPallas:) thank you so much for your kind words. They mean a lot, really - I was starting to revert to the idea that I am psychosomatic and crazy... I am seeing a Lyme Literate doctor. Before I...
Ok thanks ANA 1:160 No other tests done that could correlate to Lyme, as far as I know. So maybe it is fibromyalgia after all....
I don't yet have the CD 57+ results as I am waiting for my next paycheck so that I can pay for that blood test. What is that supposed to tell me?...
Grr! My lab test results aren't completely negative, so I can't just dismiss them. But they aren't that positive either, so it's hard to know if I even have Lyme and Yersinia or not. The results for...
Oh my gosh, that has happened to me so often! Like every few weeks or something, ever since I first got the flu-like illness (with a temperature that WAS confirmed by the people who were with me when...
So I'm thinking it can be transmitted: •by ticks (obviously) •by blood transfusions •by sexual activity that involves fluid transmission •from mother to child in utero (although this could sometimes...
Ok. The only thing is I don't have a lot of money and a GF diet is expensive. I'm feeling better in regards to IBS, yes - but not in regards to many of my other symptoms that are indicative of Lyme....
Everyone with fibro is suffering and deserves help and sympathy. Suffering is in the moment more than anything, it doesn't matter who's had it the longest. About your nose - cold intolerance is part...
It's hard to know, I've struggled with these kinds of health problems all my life. Even as a baby, I was continually crying in pain for a cause my parents and doctors could not find. But there have...
Switch hands while stirring food Switch hands while scrubbing bathroom tiles But the last 3... Are FM...
Sofiane... Really? I thought those things were normal :( Couchtater... I could never do that, because no matter what I do, I can always feel the painful sensation of the glasses sitting on my face....
Sherrine - I accidentally woke up my housemates from laughing at your post! (It's 7:30am here)...
Really? Is that what my chronic cough is caused by?...
Thanks :) I do have acid reflux which I am managing by diet and stress management. I just didn't know that I'd had it all my life... I only thought I'd had it for the last few years when I also...
If they're a good doctor, they will respect your confidentiality. Well, legally, they have to. But if you want to be sure, ask them at the beginning of the call - "will you keep my call...
WOW. Thanks so much for the info!! Looking at that list, I'm thinking 2 things: •it seems like my whole close family could have lyme! My mum, dad, brothers, sister, aunts and uncles. It would take...
Actually it makes sense that it could be transmitted via bodily fluids... I mean, it's in our blood, right? I mean, except for when the spirochete are hiding elsewhere in our body... It makes me glad...
PS my dad has arthritis, IBS, RLS, anxiety issues, chronic pain even apart from arthritis, headaches, intolerance to noise and cold......
There is a part of me that wonders if my mum has Lyme and passed it on to my younger brother and I while each of us was in the womb... My mother has had chronic fatigue syndrome, depression (and I...
I think it would be right of you to call her doctor. I had to make a similar decision regarding my mother once. The doctor thought my mum was doing fine, because that was the impression my mum...
Fibromyalgia Chronic fatigue syndrome Multiple sclerosis Autism Alzheimer's Meningitis Stroke Epilepsy Rheumatoid arthritis Anxiety Depression Dementia Neuropathic pain Where do the possible...