Anybody have their Infectolab results to compare against these?...
If we have any Australian patients who tested positive for Lyme on the government tests, please could you reply, or PM me if you prefer. Apparently not many test positive due to the sensitivity of...
As acharms has mentioned, head over to the lyme forum. You might find the answers you are looking for. There are so many more tests you need done. Adrenals, thyroid, hormones, gut/bowel, virus, lyme,...
JudahLion, Your nerve pain is a trademark symptom of lyme or coinfections. If you head over to the Lyme board and view some of the topics, you will be able to see how common it is. Depends on all...
jaymeek66, What testing have you had done?...
Out of curiosity, what testing have you had done and anything positive/negative? Might be able to offer some suggestions........
I would suggest further testing, likely through private labs, for more comprehensive results. Most people haven't done enough tests, or comprehensive/correct tests. This will help to see the bigger...
Make sure you get the blood panel done for mycoplasma. Symptoms always cross over and match so many things, so its easy to think based on symptoms that you have something. I wouldn't be treating...
Sometimes I feel like at times, we are our own best doctor. Regardless of how amazing a doctor or LLMD may be, i just feel like we sometimes know whats best for us or needed. Instincts. The intenet...
Once you have had the lyme, mycoplasma, chlamydia pneumoniae, and other blood panels done, then if they come up positive, you will be diagnosed with that. Which will then mean you won't have ME...
bluebyyou, if you ever find that info, be sure to link us. I guess majority of us no longer need calendars or anything, as we can solely go by our symptoms and flares now. I would LOVE to hear how...
I would get the fillings removed. You can support your body during that process, and then you can begin getting rid of other toxic issues inside you. I can't imagine anyone would tell you to detox,...
samk, Just to throw something else into the mix here.... I would have a full coinfection panel done, and I'm specifically mentioning mycoplasma here. Just because you mentioned some chest symptoms....
I sleep with a fan on me, or away from me, so that the air circulates. It helps me sleep and prevent getting hot. Winter or not, blankets or no blankets. A fan is essential for me....
Hi notfromtheus, I as well, am not from America, so am wondering where you are from. If it is the same country, I will be able to give you some Lyme contacts. It would be better than seeing a normal...
mumma, Sorry to hear of your situation, and thankyou for sharing your story. May I ask you to post about your Mycoplasma in one of the other lyme threads I started titled... "MYCOPLASMA - Any...
Heathersdad, ...... "I personally have used Cilantro and Chlorella in a combination approach, and have found them to be very effective chelators." ....... I would love to hear more about what you...
I don't think I could justify 10k upfront (from opugirl's comment). That's so much money. For no guarantees, since we all have success with different treatment options....
That website, along with Dr Mercola's Vit D articles, are both wonderful pieces of information I wish everyone had the pleasure of knowing. I really hope every member on this lyme forum has had their...
It's great to hear of others who have the same symptoms. Thankyou all for sharing. I can also vouch for flares related to hormone changes throughout the days and weeks....
Sparky123 / Mark, The post exercise fatigue is the trademark of the CFS/ME sufferers. Quite a lot of them have gone on to be diagnosed with Lyme or other coinfections as their underlying problem and...
Yes Im always skeptical first, to save face later. I would hate to be using something/anything and saying how well it works, only to then have a person (doctor, science interested friend, highly...
That's really great to hear that she was learning and opening her mind up. That's what we all need, more curiosity being spread around. At least you can have some interesting conversations with her...
Thankyou, nice to hear it tastes okay. All these things we have to get used to tasting and swallowing. :-/...
I read ages ago about the gunk not being from the body and it being a sort of chemical reaction from whatever goes in the water or bits and pieces. A few places labelled it a scam. What is your...
I love freshly squeezed lemons in hot water. Delicious and provides a tiny alertness boost. Definitely very very healthy. Hopefully you find out the problem so that you can drink it as often as you...
I would get the adrenals and cortisol saliva tests done asap, as well as basal body temperature daily recording. Least if it is a problem, you can treat it and get some relief....
LoveHealth, Oh my oh my. The story about your psychologist friend saying you had childhood trauma and all that. I mean seriously. Some people! Doctors and psychs are sooooo so fast to prescribe...
Its a lot easier when we don't have to work or get up for anything. Can just ride the symptoms out and deal with any sleep issues hour by hour. Would be nice if everyone got this option while...
I would have them done regardless of what any doctor tells you. If they come up positive, then great. It was worth the money and time and then treatment methods will be a lot better than flying...
I use white noise, like a fan in the background, to assist with my sleeping and it works a treat for me to sleep deeply....
So the taste is okay and something you wont mind taking each day? Let us know how it goes...
Im wondering how long this info takes to filter down through to the doctors and patients who are currently using them. Im sure many continue to take many products that have had warnings issued and...
Do you have one, and if so, do you find it works and does what it is meant to?...
Aloe Vera drinks taste okay. Some brands I buy are disgusting, others are nice. Coconut water tastes good. Can try that too. I would be getting bowel and gut testing done. Bacteria, worms, other...
Not a bad idea to see a naturopath at the same time. They can help your nutrition, immune system and liver function and a whole world of other issues that you will be dealing with during treatment....
The D3 is better. The D2 is prescription, and you need to take a lot more of it for it to absorb. Find some good quality D3. You don't need a script. Plus it is cheap. Dr Mercola has an excellent web...
Thankyou so much for the replies and sharing your insight. You are all wonderful :-)...
Do we have any people here who have tested positive for Mycoplasma Pneumoniae, or other strains? Please share your strain type. Especially interested if anybody (whether with Lyme or not), has ever...
Skeye, When you had Lyme in the past, what blood tests did you have to confirm that, and were any coinfections positive? Lyme can lead to thyoid or adrenal problems. Adrenal and thyroid problems can...
Adrenal Dysfunction and leaky gut are definitely two things that will work in your favour for being tested at that clinic. Good luck...
Yes there is certainly a difference between chronic fatigue and chronic fatigue syndrome. Just as there are many causes of chronic fatigue, and many causes of chronic fatigue syndrome. ME is a step...
My sed rate is low, 2. Are you able to get a specific EBV test done. At least that way you will know for sure either way....
I would go see a naturopath and get a cortisol test done. Fairly essential for anybody with sleep problems, fatigue, insomnia. Essential....
My gosh you have been through it all, and hard!! My suggestions are not to do with chronic fatigue, but more the cancer and immune side. I would be researching every possible way to rebuild and...
While a lot of people and organisations call them the same, it's still up for debate if it truly is. There's a lot of people who have chronic fatigue, but have it caused by other issues or illnesses,...
1. Fatigue 2. Muscle pain 3. Orthostatic Intolerance 4. Heat & Cold Sensitivity 5. Cognitive Dysfunction My symptoms are over 80 long, so this is just the top picks, as requested....
Major heat intolerance is one of the biggest issues for me. Summer is like death. I own about 5 fans, couldn't live without them....
. I am very interested to hear of opinions regarding the timing of the tests. If anybody has any links, feel free to share. When is the best time to draw blood for Igenex, Infectolab, and other labs?...
I can't exercise because I am barely able to even move around the house. There were periods / fluctuations where I was able to exercise and try to keep healthy. At the current time, its a complete...