I haven't been on here for a long time as I've been back to work and it had been not so bad. However, I've been flairing for the last three weeks. My knees feel numb and my legs hurt. I'm so...
Has anyone been put on mirapex for restless leg syndrome but it ended up taking a lot of the leg pain away? Ive been on it for about a month and feel better. Mind you I still have flare ups but the...
Tango...I know exactly how you feel. I work in a factory and it's been killing me. I've been on short term disability for two months in the fall and now again for another two months this year. I've...
Hi everyone! I've been on short term disability from work on and off for 4 months. I cannot stand for too long or walk very much before my legs feel like they wanna give. They hurt as if I had done...
Thanks Bonnie for the info. I have been on mobic for some time now and the only side effect I've noticed is severe bloating! No kidding I look like I'm 5 months pregnant and thanks to you I now know...
I actually read up on LDN and I'm excited about asking my rheumy about it. Hopefully it'll work for me!!! I'm seeing him on the 6th so I'll let you all know....I'm hopeful :)...
lupie-leesha, why are you starting the methotrexate if I may ask?...
So last month I landed in the ER with severe stomach pain. All they did for me was run an X-ray and found nothing. My legs and arms go numb and I've been on prednisone and a bunch of other meds and...
I'd been walking around my home ever so slowly but today I feel much better. I also got put on Mobic which I'm hoping I will love. I wanna be better so that I can go back to work and back to my life....
I do have fibro also. I got cortisone shots in my neck, thighs, calves, and ankles today. I am also off work for 4 more weeks and going to PT for what, I don't know but I'll try it. I know what you...
So my legs hurt almost all the time along with my arms and my skin feels like it's bruised. Anyone experience this? My knee joints start flaring and from there the rest is history. Now the new thing...
yes i have that kind of muscle pain that if touched i promise i will go mad....
I have been having muscle pain in my legs and muscle weakness in my upper arms. Today my rheumy gave me shots of cortisone in my leg muscle. I think I may be developing myositis! Its hard to stand...
hi guys! Joy I'm not doing any better. The best way to describe this pain is like after an intense workout that burn from over doing it. Only it hasn't gone away in my case. Nina2 I'm not on a...
nope not muscle spasm. i know what that feels like. this was different almost like rock hard and it hurt to walk debilitating almost....
OMG!! What the heck just happened to me? All day my legs have been hurting but around 4:00 when I was walking out of work my legs became tight almost as if I were flexing a muscle, if you all know...
Yes I do and no I don't get relief with anything!! I have Lupus and fibro along with CFS and so I never know which is the one causing this!! Sorry I wish I could help:(...
You know it actually did help when I leaned forward! Holy cow! So I guess I'm calling my rheumy and asking for more test. Thank you both very much for your help. You are very much appreciated!! Luv ya...
So I was at work in the middle of a flare when suddenly I thought I was either having a panic attack or a heart attack. Pain right in the middle of my chest! My rheumy told my its pleurisy. It hurts...
Yep you are right cellcept is Not for pain I was wrong...I meant gabapentin...
Has any one of you tried Cellcept for the pain? I have been on it for a week and knock on wood it is working!! :turn:...
Thanks Joy and Laura!! I very much appreciate you taking the time to answer my question....
I couldn't sleep last night because I was itchy all over...I was up scratching my legs, back, arms, face and neck. Is this part of the Lupus flare? It at times get overwhelming!!...
Have you had a cbc done? My red blood cells are being destroyed and thus I get shortness of breath. Check into that....
Thank you all for the information. The thing is that I used to go to another rheumy and he diagnosed my with lupus. I had it primarily in my skin (rashes and my I felt bruised to the touch.) I felt...
Oh wow that's probably right...if she doesn't want me off the meds then it's "quiet"!! Sounds right!...
So I've had a few ana results that were positive and today my rheumy tells me that my ana is negative and that I dont have lupus yet I have to stay on Plaquenil...So what does that mean? I never had...
All week I've had lightheadedness and migraine pain along with vomiting so I'm guessing that it is Lupus....
So Ive been having very painful tailbone pain...what the heck? This cannot be Lupus can it? I had xrays and will be seeing my rheumy in a week to get the results...anyone else experience this? Along...
I also have problems with my legs and feet alllll the time!!! It feels like my muscles don't want to stretch out or like I've lost muscle tone and they hurt like crazy!!! My ankle joints hurt so very...
oreo...aren't you afraid of the high doses of Prednisone? my rheumy won't put me back on them..at all!! it's a bummer because they work for me but bad for me....
so i think i have ankylosing spondylitis!!! i hurt from my lower back to my buttocks and shots down my legs...i asked the doctor about it but he blew me off...i swear he thinks i make it up!! why...
So how do you know its Sciatic pain or fribro? I also have lupus and when that flares up everything else does too!!...
I'll be looking for it also...I've been on so many antibiotics for resistant bacteria and they keep culturing my urine time and time again and without fail its the same thing all over again...new...
well darn sorry to hear about your troubles purple tulip. i have had the same thing in the last year or so along with vomiting and uti's...colonoscopy was fine. Aren't the fevers just peachy? i've...
but are uti's due to lupus? since being dx'd both my family dr and my rheumy cannot say that the uti's and other ailments are from having lupus. i've had more colds and sore throats and shingles and...
Couchtater, yes i've been dx'd for 2 years as having lupus. what frustrates me is that the things that are going on with me are not things i suffered from before my dx's. i don't mean to say i've...
So for the last year or so I've had recurrent bladder infections that I am now on a daily dose of bactrim for as long as it takes, I've been vomiting and nauseated for as long and no doctor can tell...
Well it was nice to feel normal for a week or so. I had and still am having a very bad flare! Me legs are on fire!! They hurt so bad and I'm super depressed because I was hoping this would be the one...
Has anyone tried Sulfasalazine as an anti-inflammatory? So far so good! My joints have not hurt but then again when I start on something new it almost always starts off well....Here's hoping it stays...
Does it give you heart palpitations?...
I've gone to the ER with extreme fibro pain and they give me 2 shots, 1 is a steroid and the other for pain....last nite and right now my flare is so bad I'm thinking the ER sounds real good!!...
Joy, yes my joints have been hurting so much lately...getting back on steroids has helps so much that I wonder if I shouldn't be back on them long term. I looked up the side effects and man I tell...
Hi guys...so I've had the same heaviness in my arms and legs but my reuhmy tells me its my fibro. I tell her I don't thinks so but she insists it is. What should I do? Lately my joints have been so...
i was in and out of the emergency room last week with bad flare ups. i would get the usual pain shot and a steroid shot and they'd let me go. i got fed up with them not doing anything so i went to...
Hi! I am so sick of it also...I had 2 flare ups in 3 days and am still in pain now. My dad came to visit and as soon as he hugged me the tears just flowed....you know, daddy's little girl sort of...
so when "we" flare do the joints actually look swollen? ive flared 2x's in the last 3 days, gone to the ER and the on call doctor said my joints werent swollen!!! So what was I flaring from? I have...
Ive had 2 flares int he last 3 days...joint pain, muscle pain, pain upon walking, you name it! I havent been able to get a hold of my rheumy today I guess due to the wheather...but the last time I...
His Stripes, So I've been getting the little red bumps on my buttocks, thighs and back of my legs. I thought it was the lupus but wasnt sure. Recently my legs have been going numb and tingly, my skin...
Well my MD. said the "stain" was a side effect from the plaquinil. I can rest easy now....