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itsnotjustlyme

HealingWell Forum
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Member Profile
Display Name
itsnotjustlyme
Profile Created
1/29/2015 6:41 PM
Last Seen
7/3/2020 12:32 PM
Total Posts
183

Last 50 Posts

Lupus or Lyme? Indeterminate Avise CTD 11 months ago and symptoms still current

Unfortunately, Lyme will mimic a lot of diseases. If it looks like you have an active infection, than whether or not you also have Lupus, the infection should be treated (with the possibility of...

7/3/2020 12:32 PM

Lupus
No Herx yet - Treatment efficiency?

I've never been a huge proponent of 'herxing' --- not for the length of time people do it for (a few days makes sense if you are killing off a lot of infection at once and need to clear it from your...

7/3/2020 12:26 PM

Lyme Disease
Those of you who can go out...

Everyone has to make their own call right now, but I think it's good to be prudent - be consious of what you touch when you go outside, and wear a mask around others. You can use certain materials...

7/3/2020 12:21 PM

Lyme Disease
Head presssure.

It's so hard to answer this question. What are your symptoms? Some supplements and drugs will hurt your gut or liver - so what are you doing to support those? Are you sleeping alright? Are you...

7/3/2020 12:18 PM

Lyme Disease
Ate some uncooked pork ribs yesterday: freaking out at parasites.

Freezing food should kill parasites. How are your cramps now? I get the panic though! Whose got the energy to fight off more parasites when you're already fighting a bunch of other battles!...

5/13/2019 4:02 PM

Lyme Disease
Swollen lymph nodes?

If your lymph node swelling correlates with the burbur and pinella, why continue taking these? Your body is going through enough autoimmune reactions. Herxing shouldn't last very long, especially...

5/13/2019 3:59 PM

Lyme Disease
What would cause bruising/bleeding?

Check your platelets, folic acid, and while you're at it, retest for any biomarkers that you typically test abnormal for. Unfortunately, it's hard to tell what causes what when dealing with chronic...

5/13/2019 3:56 PM

Lyme Disease
Research Group Paid Me To Talk Lyme Vaccines

I had no idea about the controversy surrounding vaccines. I told a Lyme advocate that I'd talked to this group and she got really upset. She said "Any vaccine they develop will be strain specific and...

5/10/2019 8:44 AM

Lyme Disease
A Very Lymie Christmas

Hey. So the holidays are around here. We've made it! But holiday festivities can cause repercussions far more tiring, painful, deeper and longer-lasting than if we were just healthy gluttons...

12/19/2017 9:13 AM

Lyme Disease
Do you eat dairy?

Dairy is fine for me so it's a bit of a staple. If it made me feel sick or tired, though, I'd eliminate. Don't worry what other people are doing - how does it make you feel?...

12/19/2017 9:02 AM

Lyme Disease
XYLITOL and other biofilms disruptors.

Don't worry too much about what biofilm busters are on what lists. Do your best to research everything you take, try it - in varying concoctions - and give yourself a window to decide if it's doing...

7/7/2017 7:52 PM

Lyme Disease
Schaller on biofilms

I'm glad this article is getting positive feedback. Took me ages to write! If anyone has more questions about it I'd be happy to try and answer....

7/7/2017 7:47 PM

Lyme Disease
Do I need biofilm buster?

Hey, I am of the school of that that extreme herxing can cause more harm than good, so I actually think biofilm busters should be introduced AFTER or in the midst of treatment. Why release more...

5/27/2017 1:57 PM

Lyme Disease
CD57 Explained: Is it Lyme? Maybe..Probably..But..

My aunt has a low CD57..she's not great with drugs so before jumping into the Lyme game I looked into this: Is the CD57 a good indicator of Lyme? Hmm, at this point, it's as good as it gets, but that...

3/28/2017 2:02 PM

Lyme Disease
Best Herb for Babesia & Bartonella????

Hey, I do like the herbs that Girlie mentioned. I think the quality of the herbs and the consistency of your protocol scheduling will be more important than which herbs you settle for. If you pick a...

3/8/2017 5:46 PM

Lyme Disease
Herx or relapse?

Heyy, Ah, I understand how it feels to wonder: am I relapsing?! Especially when I've been feeling fab and can't believe it! Well, you say you are going to up your dose of Alinia - then you are going...

3/7/2017 10:48 AM

Lyme Disease
Diflucan - with or without food

Be careful with Diflucan. Unless you have clear problems with yeast, why take Diflucan? There are enough people who cannot get rid of yeast due to taking a round too many of Diflucan. Be careful with...

3/7/2017 10:42 AM

Lyme Disease
More questions - cont. from infectious disease thread

Hey, I'm thinking that if you didn't have a Herx with your abx and artemesinin, that the BAB formula didn't create a herv but an immune reaction to something your body is sensitive to in the formula....

3/7/2017 10:29 AM

Lyme Disease
EBV and mycoplasma pneumonia

Hey I have something to propose! Lysine is an amino acid that is GREAT for reducing viral loads. It's very popular in for our herpes friends! It's also great for boosting collagen, adds protein...

2/28/2017 6:53 PM

Lyme Disease
Interesting comment from NP on heavy metals and treating Lyme

Ya know, I saw a world renowned doctor who refused to do Ozone IV for me until I did some chelation. HOWEVER, I did take EDTA orally while taking artemesinin, oregano, GFSE, Cat's Claw, and other...

2/28/2017 6:44 PM

Lyme Disease
New Here - fairly recent diagnosis and looking for advice

Sorry to hear about your post-antibiotic experience. It is not uncommon for people to do the two weeks of Abx only to find that their symptoms return. It's still unclear if this is due to Post-Lyme,...

1/6/2017 11:58 AM

Lyme Disease
Update from a (healthy) ghost

Hey guys, thanks! I'm happy to hear that others also prioritize life and "hidden talents" over Lyme - as an identity at least. My protocol was a little different because I was OCD about blood work...

12/26/2016 7:16 AM

Lyme Disease
Update from a (healthy) ghost

I’ve been meaning to explain my disappearance for a good two months. I want to do that today, because it’s Christmas. Christmas is my push to say, hey I’m alive! And I’m healthy. I’ve been in...

12/25/2016 9:21 AM

Lyme Disease
Buhner Got It Wrong!

I love this stuff. It's overwhelming though when it's YOUR body you are experimenting with, pumping it with drugs and herbs. I'm trying to use food, exercise, and sleep as medicine, now that I've...

10/7/2016 2:24 PM

Lyme Disease
anyone notice mild fatigue under Buhner?

Buhner herbs, some at least, may* be slightly goitrogenic, meaning they can lower thyroid function. It depends on the person. Personally, I don't like herxing for more than a few days - nor do I...

10/7/2016 2:20 PM

Lyme Disease
Lyme Fever

Fever's are common. And actually, they indicate that your body is fighting. It's a good time to support your body as much as possible (adequate sleep, nutrition, whatever your protocol may be on top...

10/7/2016 2:12 PM

Lyme Disease
Looking for Herbal protocol

I'm surprised Buhner hasn't started selling his own brand. I think I might have to come up with my own line of herbals....

7/11/2016 12:18 PM

Lyme Disease
Looking for Herbal protocol

Cowden is on to something: Pulsing. Keep in mind, there are tons of antimicrobial herbs. The great thing about herbal protocols is that they tend to do more than one thing, given there are hundreds...

7/11/2016 8:45 AM

Lyme Disease
100 accurate Lyme diagnosis

Does anyone know of full proof Lyme diagnostic tools I can share with my blog readers? Igenix tests antibodies. Live blood cell analysis is frowned upon in many medical circles. The CD57 strongly...

5/24/2016 9:07 AM

Lyme Disease
Tight muscles advice

Wow, sounds like you've tried a lot. I can tell you that if I don't stretch every bloody day, I get tight muscles. I mean 15 minutes minimum. I wonder if what you need is some nutrient support. If...

5/11/2016 5:16 PM

Lyme Disease
My Stuttering is Greatly Improved!!!!!

You are crazy in the best way for talking to your dog! All the cool kids do it. That's amazing news! Keep your immune system as strong as you can - support your gut like CRAZY because Clindamycin is...

5/11/2016 5:08 PM

Lyme Disease
please help adrenal crash advice

I feel for you. I go through that sometimes too. It can be discouraging because you just want to LIVE, but then you try to live and the stress knocks you down. Like astroman said, it can take years....

4/29/2016 5:32 PM

Lyme Disease
body temp

You'd be surprise what adding calories to your diet can do for raising body temperature. So many Lymies are starving because of their restricted diets....

4/15/2016 10:45 AM

Lyme Disease
Using ultrasound to disrupt biofilm

I'd love to try ultrasounds and rife. It seems like hit or miss with different people, but I guess you can't know until you try....

4/15/2016 10:43 AM

Lyme Disease
Pulse or not to pulse

Lots of pulsing experience over here! I agree with Girlie - some herbs are synergistic together. That said, why not try pulsing from one synergistic herb-pairing to another? That is what I will do to...

4/15/2016 10:41 AM

Lyme Disease
4 and 1/2 months on antibiotics/ started hyperbaric

Roxy - it could be a herx or it could be that your body is crashing from four months of antibiotic usage. Be aware of the adverse drug reactions that your antibiotics can create and pay attention to...

4/15/2016 10:37 AM

Lyme Disease
I Eat Sugar

Oh, and I do eat refined sugar. But only if I am pre- or post-loading for a workout. I look at the glycemic index for reference (refined sugar is high 99+). Glycemic index is a number associated with...

4/5/2016 6:20 AM

Lyme Disease
I Eat Sugar

Chapelle, you're right - maybe I'm at the point where it just isn't as dangerous for me to up my carbs. I was at a point where I was ready to get off my antimicrobials - but every time I tried I'd...

4/5/2016 6:09 AM

Lyme Disease
I Eat Sugar

Hey all, I am a recovering Lyme patient. For the past two years I've done the craziest thing - upped my carbs *gasp* I tried the low carb thing. I was proud of how dilligent I was with my...

4/4/2016 2:58 PM

Lyme Disease
Could it be Lymes?

Hi there! It could be. It could be something else. Somethin fishy is going on. When you mention the pink eye, it makes me wonder - since it's persisted so long - if that is causing a systemic...

4/4/2016 2:42 PM

Lyme Disease
Using metabolism to fight Lyme - Free book

ziege, I eat my fair share of potatoes, too. I used to be low-carb to "kill the bugs" bug now that I am back on carbs I feel good enough to weight train and my hormone levels have regulated. I hope...

11/30/2015 8:34 AM

Lyme Disease
Using metabolism to fight Lyme - Free book

I hope the moderators don't mind me promoting this - but it's free and valuable to everyone on here. This book is FREE from Sunday, November 29 until Wednesday, December 2nd. It's about:...

11/29/2015 12:19 PM

Lyme Disease
8 doctors dead 5 missing, what?

Kim, I am also hesitant to get too much into the history of Lyme and pointing fingers. I just want medical solutions....

10/27/2015 10:35 AM

Lyme Disease
How many times have you been in remission?

Have you ever felt "cured" only to relapse? How long did it last? More importantly, when you were in remission, did you keep up the good health practices that you maintained while fighting Lyme? I...

10/22/2015 11:23 AM

Lyme Disease
Cryptolepis not agreeing with me?

Just like a book you were hoping to love but just couldn't get into, I don't think it's always best to finish what you started - in this case, crypto. I love crypto and for me it worked great. But...

10/22/2015 11:16 AM

Lyme Disease
8 doctors dead 5 missing, what?

Has anyone heard about this? MDs, NDs, chiropractors, etc are being found dead that all research GcMAF. This is a therapy that is supposedly helping people with cancer and autism and opposes the...

10/22/2015 11:11 AM

Lyme Disease
Daughter's IgeneX results - what would you do?

Hi, MsHippo. I think trying antimicrobials before antibiotics could be a could route, because it is milder and also - you can always take her off of them if you see no improvements. If she can,...

10/20/2015 8:57 AM

Lyme Disease
My Bee Venom Therapy Experience---13 Weeks

There is a Bee Venom info session in Toronto on Wednesday. I don't think I am going to do it, but if I was not in remission it would be on my list of things to experiment with. My friend is doing it...

10/20/2015 8:43 AM

Lyme Disease
Relapse or flare up? Need some input

Hey there, how were you detoxing? I have realized that when my glands get swollen, I need to cut back on antimicrobials otherwise I feel like total poo. I try to keep my liver as healthy as possible,...

10/20/2015 8:11 AM

Lyme Disease
Abx and Diflucan

I'm on board with Lymie mom X 2 Antibiotic use will be totally undermined if it is ravaging your stomach - the host of immune cells like T-cells, neurotransmitters like serotonin, and of your...

10/9/2015 7:55 AM

Lyme Disease
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