I have read that there is a virus connected to cfs n a certain prostrate cancer. You can maybe Google it n find out more. I am sorry u are going thru so much....
Well written. Thank you for this. True facts....
I should say I no of 2 people!...
I have seen on the news and even suggested in these forums that breast implants may be a big part of CFS. So....I want to start a survey here or some kind of proof that it is or isn't the case. Does...
I am sorry, but I have never noticed this. But everyone has different things that happen in their illnesses. Hope u figure it out....
Hi there, I don't get on here much cause I have cfs and am too sick. But for your questions, I was tested for celiac and am positive. Tested for Lyme..negative. Kidney tests. Thyroid tests. Glucose...
Slee U have many of the same symptoms as I have with my cfs but the big thing about cfs that makes it a little different is that any exertion whether emotional or physical will make you feel ill and...
I probably cant help u much n thats too bad cause i see u are suffering. That is so much medication which can cause so many of ur problems but so can tapering down. Its hard. Its hard to lose that...
I am surprised to see so many wrote on here. Thats great. We all feel close to the same way so its nice to see this. Its scary when u get the dying feeling cause u feel so bad and never get well. I...
Wow...those are great stories! I sure like your inputs n I am going to try these things. Thanks!!! Will write again with updates....
Hi! I remember you. So glad to hear from u..so glad u are alittle better now. Thanks for writing, you give me hope. Can I ask what Ion n noni juice are? Where do u find them? I will try different...
When I first got this illness of ME about 5 or 6 years ago, it started with small bouts of not feeling good after doing a 3 or more thing in a week. Like going to movies or programs. Now , after a...
You nailed it....said my words. Thankyou. Exactly!!!!...
I am really starting to understand this. It's true n as I said...I don't even get it so how could they. I just want to do my job, not be a job for someone close to me. It's that looking well...
Thanks for answering!! Glad you are better! Will check this out soon.:)...
Hi all! I have many of ur problems. I have been sick since pneumonia in 2009, but I am in my early 60s. I freeze alot...always using blankets n jackets. I get very I'll after anything mental or...
I have read a little on it. Pls...tell me ur problems and what this did for u? What is the cost..how often...what do they do? Thanks!...
Hi there. Sorry u have been sick. I always have problems with sleep now when I get sick. Takes weeks for me n lots of just resting. Antibiotics can really mess up your stomach for awhile. Be gentle...
Thank you...thank you for sharing with me. That alone helps. I appreciate it. You are right, they really cant get it. I will work on the understanding somewhat. I think my husband thinks I can...
I have had this for about 5 years now. Good days ..bad days. Cant hardly walk sometime from weakness or muscles tightening, feeling deeply ill, or jusr slightly. Looking okay and then looking pretty...
I wrote a long note on your blog but it disappeared. Tired out now so will try another day. This fatigue is something else. Can't believe more haven't wrote on here. Finally..someone like...
I think we should start one on fb with fibro n cfs! What do u guys think?...
I am interested but don't quite know how to start it ? Do you? If not , I can ask my daughter! Just let me know. I really think we could help each other!!...
You sound just like I feel. Exactly. Trying for five yrs now n no one seems to get it. Would love some support, an encouraging word, ideas on help....anything. I just worse n then more depressed ....
If you back off and just let her go and she doesnt call or look for you..well..that may be your answer. Dont know if CFS has anything to do with this....
I have tried many different herbs n vitamins. I dont think there is a magic one for us that are suffering with this. Some do well with the B vitamins and others need potassium or magnesium. You just...
My sister had all those except the shingles, she turned out to have celiac.Have u been tested for that? Ask ur doctor. Good luck....
Hi there! I was diagnosed with fibro, cfs, and ibs. And then found out it was all coming from celiac disease. So on the diet for over a year..took awhile to get it right but I am improving now and...
I was on GF diet after being positive for celiac for 6 months. I saw no difference in my CFS. But When I ate some gluten after 6 months..I got a headache an small stomachache. Then slipped on my GF...
Nevermind. I had the real flu!! That was rough....
Hi there! I have celiac too and I have muscle jerking but mainly at nite trying ro sleep. I have found that dairy sets mine off. If I stay away from dairy, I hardly have it unless I get too much...
I dont no why the tests can come back like that but it happens...alot. All u can do is the diet and see how u feel. After 3 months, i ate gluten. I got sick. Now every time I do somehow, I get even...
What can u do to help urself thru a horrible attack after gettin gluten somehow. I become so ill. Violent chills, headaches, skin n body hurt along with quick heartbeat n insomia. I want to die!!!...
I took it only twice. Knocked me out for hours and stuffed up my nose, too....
Hi there. I have all that too but have been checked out too. I am usually too tired to even get on here. I just had my blood checked for celiac because of CF and it came back positive for it. So..now...
Hi there. I have had the RLS that comes in the calf part and makes you jump or move to stop it. Warm baths really helped. Now I have the RLS that actually jerks my legs when falling asleep (which...
Hi. You didn't say what pain or how she acts with this pain? I know the diet takes time if the person has had it a long time. Up to a year or more for healing. Is she sensitive to other foods maybe?...
Hi there! I am not the best one to answer you on here but am sure others will write you. I am abit foggy today, so forgive me if I don't totally get what you are saying. Usually they can check the...
Thank you so much for writing me, I really appreciate it. I like your advice and may do some of it. I hope others can read this now and hear your wise words. It feels good to have someone care...
I got my CFS after a bout with pneumonia too. It is the only thing we can come up with that started it. Just wanted you to know you arent alone....
This has probably been on here already but I get too tired trying to read everything. People dont get this disease. My husband thinks if I just go slow and steady like him (he is tired too) that I...
I am alot older than you, but you sound just like me and I have CFS. I sometimes can do lots of things but I end up paying for it by getting achy or sick or whatever u call this. Its now all in your...
I just had to reread all your answers and then tell you "thankyou" so very much for taking time to talk with me. I appreciate every answer and will use all the info. Thanks!...
That was exactly the reason I asked him to stop, thanks for showing me it wasnt wrong to ask him. Thanks for all your answers, it is so nice to have this in my life. I am always answering people on...
I love my husband very much but lately am finding I dont want to! The things he does confuse me, depress me, and then my fibro gets worse?? He has been talking with his cousin's wife (who is...
Hi there. Just had to write a note here too. I think that it will always be hard when it comes to family or even friends understanding us or what we go through. I had a sister I am very close...
I have lost two little dogs in my life and and both were so painful. They were my babies, my family. My heart goes out to you---sending prayers for you. There is no way around grieving. I am so sorry....
Hi There! Welcome! I was just diagnosed awhile back with fibro and CFIDS and havent been on here since. I have the neck pain, shoulder pain, sometimes wrist pain and lots of back and hip pain but not...
Welcome TruthHurts. I am new too. It is a great place for all of us. You will see yourself everywhere and get help in more ways than one....
I forgot to mention that if you do have the kind of RLS where your legs jerk on their own (like Me), stay away from sugars and anything with lactic acid such as milk and yogurt. Lactic acid builds in...