Thank You for your quick replies. I am hoping that my pain management center will be able to rebuild quickly. We havent been to Panama City yet but my son said its like a third world country. We are...
Hello, I have posted several times before with questions. I live in Mexico Beach Fl where we are considered ground zero for hurricane Michael. Our house was one of the lucky ones, windows blown out...
I have an appt on Wednesday with my rheumatologist. I have had a lot of problems throwing up all day, sometimes through the night and my hair started falling out. I've been on plaquinel for 18 months...
Thank you both for your responses and advice. I have been in the same pain management c!inic for 13 years. I have an appt on the 21st with them and am definitely going to discuss this new nerve pain....
Just some background. I was diagnosed with lupus a year ago, late onset. Fibromyalgia about 5 years ago. Mindy disease 2 years ago. My kidneys have gone down to 30%. 2 failed back surgeries. Spinal...
I would research rheumatologists in your area and see if there is one who specializes in lupus. Also see what their patient reviews say. In alot of the larger areas there are lupus support groups....
At the very least I would contact my pharmacist and find out what that combination of herbs will do to your system. And if you are taking prescriptions you really need to check with your current...
Thank you for your quick reply. I did actually ask my granddaughter to read The Spoon Theory, hopefully she will. Have decided to give everybody a two hour window before we go to see my brother. I...
Sorry, computer going bonkers. Convince family and friends this is real. I'm not lazy and I'm not avoiding responsibility....
I recently went to a family gathering. Most of the family know I was diagnosed with lupus last year. My sister in law seems to think that all i need to do is take vitamins and double up on vitamin D....
I was diagnosed with lupus a year ago. (At 57) had been sick for a couple of years before finally getting a diagnosis. I'm one of the lucky ones not having to wait so long as others have. Was given...
It's been a year since I was diagnosed with lupus. Since the middle of Dece I have had problems with my butterfly rash along with more than normal pain in all my small joints. Here's my question,...
For this entire summer I have been between tired and exhausted. I have to pick and choose everything I'm going to do, right down to taking a shower. Some mornings I have to talk myself into getting...
Thank You All for the great info. Sorry it took awhile to get back to you. I will now go on my rant. Ended up in the ER for another one of those sudden attacks where my blood pressure dropped and I...
Hi again. It looks like I might have Addisons disease. My question is, can my immune system attack my adrenal glands. I have had blood tests that point to Addisons disease. My cardiologist thinks...
This is my first time in this section. I was finally diagnoised with lupus (SLE the most common type of lupus) in February. In June during my appt with my rheumatologist he told me I also have...
I think I wrote my response on the wrong page. Sorry. Dustmite...
Hi. I just read about your. passing out. I have the same problem, it comes on very fast and I can't stop passing out. The last time this happened was Nov. I continuously passed out for half a day....
Greeting from rainy, overcast and somewhat foggy Florida. So have been awake and in pain since 2:45am. My flare seems to have come in with the rain.I have arthritis in all my small joints from my...
Thank you both for responding so quickly. I'm venting tonight. Just went through another flare. I'm actually looking forward to taking the methotrexate. I am feeling a difference now with the anti...
Hi. I am going through blood tests now for Addison disease. You can find a lot of info on the internet as far as exactly what Addisons is, how they test for it and what to expect after its found....
Hi Butterflake. I go to bed at 9 pm and get up at 5 am on the weekdays and on the weekends I usually sleep in until 7:30. For the days I'm feeling tired, I try to get my most important things...
:eyes: So after suffering with a migraine for the last two days all my small joints are starting to hurt alot. Like a burning sensation. I'm still learning about my lupus. I was diagnosed in February...
Disneyfan. I'm sorry it took the doctors so long to diagnose your lupus. Your husband is wrong about bringing in another woman, not helping you with housework and your children and not supporting you...
Hi, I haven't anything in awhile. I was diagnosed with kidney disease last July. I have stage 3 kidney disease and my kidneys are working at 50%. I have been having problems with terrible pain in my...
Okay, so something new. I haven't had to shave my legs in over two weeks. No hair at all on my legs, and nearly no hair underneath my arms. And no hair at all on my arms. I did notice a few weeks...
So yesterday was the migraine from hell. Today I cant hold down any food or even gatorade. My stomach is cramping so diarrhea (sp) is on its way. Also my blood pressure is bottoming out, because I...
Thank you both for your advice and sharing your experiences. I have made it thru my first surgery. I did ask the surgeon for anti anxiety meds to use a couple of days before the surgeries and...
I was diagnosed with lupus in Feb and I have a couple of questions. my hair is starting to fall out and my eyelashes have fallen out. i notice that if Im in the sun for the afternoon the next day I...
Hi. I am having interstim bladder surgery for bladder retention on the 15th and 29th of this month. I am interested in the experiences anyone has had from these surgeries regardless of whether or not...
I was told by my primary care doctor after she did blood tests that she thought I had lupus. She referred me to a rheumatologist. That appointment took two months before I could see him. I saw him...
So after a week of trying to avoid catching my husband's cold I've caught it anyway. On top of the cold my throat is raw and red and my lymph nodes in my neck are swollen. I'm also running a 101.0...
You may find that lyrica has made you gain weight. It did with me. And made me sleepy. Don't need any he there. (SLE). I have heard of women gaining thirty pounds in a month. Be careful. Also had...
Thank you for your quick reply. I was just diagnoises with lupus this month.My family practice doctor did blood work in December. Thought it might be lupus. She referred me to a rheumatologist who...
This morning I was throwing up, bad headache, dizzy, horrible joint pain in all my small joints. Some swelling in my feet and hands. Fever of 100.2. So is this a lupus flare. Arthritis? A virus? With...
I am having a surgery on my bladder on the 15th of March and again on the 29th of March. The surgery is called interstim. It is a device that is put just under the skin. Like a pacemaker for the...
I'm so tired today and I have what I think is a new symptom. A rash on my chest instead of my face. Does this mean I have a flare coming on? I haven't had a flare since November. I'm also having more...
Hey its Dustmite again. I had my appt with the rheumatologist yesterday. Blood tests and ultrasound results long awaited are in. I have lupus. The sle kind and degenerative arthritis in my feet,...
So after waiting two months for this appointment, all my blood tests came in. (2nd appt. today) my new rheumatologist says that I have lupus for sure. I spent almost a week of driving myself crazy...
So in my other thread about drug induced lupus I have listed my blood test results and symptoms. I've looked all over the internet. Can anyone give me the names of his tone tests that could be on my...
So with a positive ana and a high positive am r n p would those test results indicate sle? Along with my other results I have listed in my other threads. My joint pain. Stiff joints, it takes me...
I am taking maxzide and Calan a calcium channel blocker. I've been taking these drugs for high blood pressure for about ten years. From what I have read this is a rare problem. With my test results...
My appointment with the rheumatologist isn't until 27 Feb. I picked my lab results from the base yesterday. Nuclear an w/ cascading reflex came out positive (H) and the Smith+Ribonucleoprotein...
I have a lot of the same symptoms you do except for the thinning hair. I have my first rheumatologist appt tomorrow, after a 2 month wait. You are mot going crazy. Find yourself a good family doctor...
Tomorrow is my first appt with my new rhematologists since finding out the middle of December that I may have lupus. I have had problems with multiple bacterial infections that have put me in the...
I thank everyone for their posts. I am so looking forward to my first appt with this rheumatologist. I am hoping my journal will help and I'm going to take Lynwoods advice and tell him theses are my...
I would avoid back surgery, if you can. My first back surgery, at 35, the doctor took out the wrong disc. A healthy one, continued the surgery and too out the right one. That surgery fail after two...
Call a urologist and tell them your symptoms, get an appointment. If you don't have a urologist ask friends and family members for recommendations. Don't wait and don't worry about your past...
Hi, I am also on the fentanyl patch for severe chronic back pain, spinal stenosis, severe hip and leg pain, arthritis, kidney disease stage 3, SLE, etc,etc. I find the clear, thin tagaderm type...
Haven't had a biopsy yet. I'm changing nephrologists. I've had this one for six months and he doesn't allow me to ask questions and announceced,' oh yeah you have about 50 percent kidney usage left,...