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saraeli

HealingWell Forum
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Member Profile
Display Name
saraeli
Profile Created
1/14/2019 1:35 PM
Last Seen
Today 6:12 AM
Total Posts
3232

Last 50 Posts

2023 llmd crap

The last decent LLMD I saw charged $150 for every 15 minutes, in 2018. That was nice because you could ask for an hour-long appointment, but you'd know you'd be paying $600 for it. Not sure what his...

Yesterday 6:02 AM

Lyme Disease
Short term memory loss!

I've been reading a lot lately about perimenopause/menopause and related cognitive symptoms, including short-term memory decline. Maybe that's something to look into, since there are relatively...

Yesterday 5:58 AM

Lyme Disease
Need opinions on this ‘Lyme Kill’ supplement

Echoing other posts, this looks like a good mixture for addressing Lyme. Definitely start "low and slow" and work your way up gradually....

2/6/2023 3:53 PM

Lyme Disease
Weird thing happened this morning

I'm sure it was just fluid in your inner ear throwing your balance off, and it probably redistributed once you were upright for awhile. Some people's sinuses and eustachian tubes just hold onto fluid...

2/2/2023 4:39 PM

Lyme Disease
Severe Sciatica nerve pain when on period

Welcome to the forum! I also get terrible nerve pain at times alongside menstruation and sometimes ovulation as well. Periods are very good at highlighting where in our bodies we're having trouble,...

1/30/2023 9:32 AM

Lyme Disease
Lyme and Root Canals

Hi, Jorunna! I have corresponded with Forest before, and I don't live too far away from you, so I could put you in touch with my fantastic holistic dentist in Boston if you'd like (if that would not...

1/28/2023 7:50 AM

Lyme Disease
My Symptoms - Maybe Lyme?

Welcome to the forum! I won't repeat the solid advice from other posters, but it does sound like tick-borne disease could be an important part of the picture, especially since you have managed to...

1/27/2023 9:36 AM

Lyme Disease
Pain around ribs

I have had all the issues I mentioned in my earlier post, but I remembered something else I wanted to add. I had costochondritis most of my life, since I was seven years old. It didn't get worse when...

1/25/2023 10:07 AM

Lyme Disease
Confusing test results

Welcome to the forum! Garzie gave you a good overview. Long story short, a specialist in tick-borne disease (LLMD) would consider you positive for tick-born disease, based on both your testing and...

1/24/2023 2:23 PM

Lyme Disease
Pain around ribs

Look into a neurological symptom called "the MS hug." The name never ceases to irritate me. It can happen to people who have nervous system dysfunction, so it happens to plenty of people who don't...

1/23/2023 2:38 PM

Lyme Disease
Disulfiram

Yes, there were long, detailed discussions about disulfiram here in the past. If you do a search for "disulfiram Lyme" you'll likely find many of them....

1/23/2023 6:31 AM

Lyme Disease
Low blood pressure

I meant to add also that if you want to avoid drugs, and/or want a route that can be tried very gradually, then another way to raise blood pressure is by supplementing licorice (not DGL, just the...

1/19/2023 10:15 AM

Lyme Disease
Low blood pressure

POTS is tricky, and the standard advice has changed a lot even just over the last decade, making most doctors and websites ill-informed (even if they were well-informed about it ten years ago). What...

1/19/2023 8:13 AM

Lyme Disease
Has anyone herxed after taking Quercetin?

I would reduce to one capsule per day if you want to continue taking it. Has anything else in your regimen or diet changed? Have you been exposed to anything that tends to trigger your mast cells...

1/18/2023 4:53 PM

Lyme Disease
Has anyone herxed after taking Quercetin?

Sometimes people have a slight uptick in symptoms when they first take a mast cell stabilizer, but usually they subside in a few days. If you feel very bad, though, then I would say stop the...

1/18/2023 11:24 PM

Lyme Disease
pancreatic exocrine insufficiency

I'm glad you are having testing done to help clarify what is going on. You asked about biliary tract sludge - no, sometimes you cannot see it on an ultrasound. I have had issues all along the biliary...

1/17/2023 1:42 PM

Lyme Disease
Burning Red Ears

Could it be some sort of histamine reaction akin to flushing? I don't recall if you have MCAS or not, but even folks without it could have some sort of vasomotor response to a new supplement, stress,...

1/17/2023 1:38 PM

Lyme Disease
S-Adenosylmethionine

SAMe tends to be on the pricier end as supplements go, but I know people who have found it tremendously helpful. According to a webinar I watched (I know, grain of salt), it's especially helpful for...

1/17/2023 1:34 PM

Lyme Disease
Not tolerating binders well.

I never found binders to be useful, either, and some made me feel worse (or much worse). I know they are very helpful for some people, and I did not try every single one, but I realized that anything...

1/17/2023 6:42 AM

Lyme Disease
HERTSMI score

The HERTSMI rubric says that 11-15 is considered borderline, so people with CIRS should clean the space (safely and thoroughly!!) and re-test. How did you feel in the space? Do you know if any past...

1/16/2023 8:53 AM

Lyme Disease
Holy Basil or any other suggestions for anxiety

Adaptogenic herbs (including holy basil) can have widely varying effects on different individuals, so don't be surprised if you need to try more than one before you find one that helps, and be sure...

1/15/2023 1:50 PM

Lyme Disease
Shaky and weak legs

Hi, Ran. I'm sorry you're dealing with this, and I know how scary it can be! My story isn't exactly like yours, but just in case it's helpful: I had been sick with tick-borne diseases and...

1/14/2023 7:09 AM

Lyme Disease
Airfree air purifier

Looks like a decent choice if you are concerned about viruses or living organisms in the air. I'd feel better about a dental appointment with this in the room with me, for example, as long as there...

1/12/2023 10:50 AM

Lyme Disease
Adverse effects after EMG?

What did the test determine? Was your left side already especially weak or troubling in some way, and that's why it was the area tested? I assume you have had an MRI to rule out MS? I have not had...

1/12/2023 9:40 AM

Lyme Disease
HELP! Cognition problems/constant pacing. (Bart Relapse)

Hi, Ryan, I'm so sorry you're dealing with this! Do you identify as having depersonalization? That can be one of the most disorienting symptoms. I have spent long stretches feeling like I couldn't...

1/12/2023 9:30 AM

Lyme Disease
Experienced Lyme Practitioners in New York State or Nearby

If you would like practitioner recommendations in Vermont or the Boston area, then I have ideas for you. It's SO difficult to find a practitioner who truly understands what it means to be very...

1/11/2023 5:54 PM

Lyme Disease
Central Sleep Apnea

I don't know if there's a name for it, sorry. :-/ The craniosacral therapist noticed the tension in the area immediately, and the gasping awake thing has happened to other clients with the same...

1/10/2023 10:16 PM

Lyme Disease
Additional detox methods - any suggestions?

I'm sorry you're struggling so much with reactions, Avocado_Kat. I can relate! A lot of people find liposomal glutathione difficult to tolerate because it mobilizes so many toxins that are already in...

1/9/2023 8:45 AM

Lyme Disease
Help with child undiagnosed pandas

Wishing you and your child all the very best, MedicalNerd! I know it's been a long and hard road. Others have given you fine advice, but I wanted to comment on the diet part. My child just turned 12...

1/7/2023 12:58 PM

Lyme Disease
Nausea with Shingles

Welcome to the forum, MadelynR! Do you have tick-borne disease as well? I ask because this is the Lyme disease forum, and you don't mention whether you have chronic infections or chronic illnesses,...

1/7/2023 12:15 PM

Lyme Disease
Cytokine Supplements

I have not done an intentional fast, aside from intermittent fasting. For a few months, my partner fasted 40 hours once per week to decrease chronic pain. It worked for the pain and inflammation,...

1/6/2023 6:13 PM

Lyme Disease
Hello LD Forum! Glad to be here!

Welcome to the forum! I am sorry to hear about your experiences so far with the medical industry - all very familiar, sadly - and definitely understand feeling worn down. Are you referring to Oregon...

1/3/2023 8:18 AM

Lyme Disease
Slight tremor and constant pins and needles sensations

I do still take curcumin and quercetin daily, but at lower doses than I did at first. I'm working on a couple of persistent triggers lately (stress and hormonal fluctuations) and hoping to reduce or...

1/3/2023 8:13 AM

Lyme Disease
23 band positive

You have options other than pharmaceutical antibiotics for treatment. Have you seen a functional medicine or integrative medicine specialist who can treat this collection of ailments holistically?...

1/2/2023 4:12 PM

Lyme Disease
Dynamic Neural Retraining System

https://retrainingthebrain.com/...

1/2/2023 8:27 AM

Lyme Disease
Dynamic Neural Retraining System

Hi, Beenie. Welcome to the forum! Since I started this thread in 2019, I did the DNRS program and got vastly better - 85% of my pre-chronic illness condition, reliably. I have posted about it dozens...

1/1/2023 6:08 PM

Lyme Disease
Slight tremor and constant pins and needles sensations

Lots of folks experience a pins and needles sensation along with tick-borne disease. I think you're probably right that it involves neurological inflammation and nervous system hyper-reactivity. For...

1/1/2023 3:02 PM

Lyme Disease
Shingles Experiences?

Shingles went away for me eventually, with no long-lasting effects, but of course now I worry during stressful periods of time that shingles might recur! I feel fortunate that they weren't all that...

1/1/2023 3:00 PM

Lyme Disease
Buying Meds Online (USA)

Garzie, interestingly, your recommendation gave me the options to pay with a credit card (MasterCard only) or bitcoin. Looks like each country has different options, and like those options can change...

1/1/2023 8:28 AM

Lyme Disease
Buying Meds Online (USA)

I know this comes up relatively often, but I'm curious where the people who self-treat with pharmaceuticals purchase their drugs. I just went to several of the websites often suggested for purchasing...

12/31/2022 1:46 PM

Lyme Disease
Suicidal with Bart symptoms/Dry eyes

An eye doctor should be able to tell when your eyes are dry because the surface will look different to them. Dry eye remedies like eyedrops (I like Similisan brand and my partner uses Retaine...

12/30/2022 8:50 PM

Lyme Disease
Help - Does Tumeric or Curcumin Cause Heart Palipitations

I have taken curcumin (500mg twice per day) for about four years. About 2.5 years ago, I developed premature ventricular contractions (PVCs) but did not associate them with the curcumin, nor did my...

12/29/2022 4:54 PM

Lyme Disease
Does anyone know how Forest is doing?

I heard from Forest just now, and he sounds like he's improving and in good spirits, with some support and a treatment plan. It meant a lot to him that folks from the forum were asking about how he...

12/28/2022 2:39 PM

Lyme Disease
PhytoVest: The Future of Dietary Analysis

So I tried the PhytoVest. It's a nice idea, but it probably works vastly better for people with normal diets. I'm a weirdo dietarily, so it wasn't able to take into account my offbeat seaweeds,...

12/28/2022 2:19 PM

Lyme Disease
POTS help me please!

Cardiologists tend not to know about POTS because it's a neurological issue, not strictly a cardiac issue. They may want you to try a tilt table test for diagnosis, but this isn't actually necessary,...

12/28/2022 2:12 PM

Lyme Disease
PhytoVest: The Future of Dietary Analysis

This looks like fun! I love data, and would be very interested to know where my nutritional blind spots might be, as long as the algorithm is responsibly customized for weight, age, etc. Do you think...

12/27/2022 7:01 PM

Lyme Disease
Advice on herxing please

Absolutely! Here's a great article on the connection between estrogen levels and histamine (which leads to inflammation and lots of symptoms)....

12/27/2022 1:24 PM

Lyme Disease
POTS help me please!

There are lots of things you can do for POTS. It definitely can get better! I dealt with it for years, and was unable to stand for months because it was so severe. Definitely one of my more disabling...

12/27/2022 9:27 AM

Lyme Disease
Advice on herxing please

A herx can take a while to build up. It's most common when there's a change or increase in antimicrobial treatment, yes, but can also happen when your detox pathways or overall reactivity is...

12/26/2022 4:24 PM

Lyme Disease
WOO-HOO!!FOUND AN LLMD IN MONTANA!!!

Faith80, welcome to the forum! Sorry you are struggling to find decent help. Many of us have been there! This is a old thread, and the original poster hasn't been on the forum since May of 2011. You...

12/26/2022 9:27 AM

Lyme Disease
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