Is your antibiotic combo a recent change? Has anything else changed in your supplements or diet lately? Are you taking anything for gut health to protect yourself while on antibiotics? If your meds...
I emailed my friend whose child recovered from PANS/PANDAS, and she felt strongly that the treatment they received from their homeopath was what put him in remission (or cured him? Not sure of the...
Based on your description, PANDAS sounds like what's going on for your child. By strict definition, PANDAS involves Strep bacteria, but Lyme, mold, viruses, and other pathogens can cause a...
MedicalNerd, if you are willing to drive to Boston, then I know a few Boston-area functional medicine LLMDs who take insurance and have experience with tick-borne infections, mold, autoimmune...
The episodes every few weeks - have those been just since starting treatment, therefore maybe herxes? Do they coincide with any part of her menstrual cycle (if she has one)?...
Isitlyme - How does valproate suppresses cytokine storms? (I mean what is the mechanism of action, if you know.) Is it used in CFS/ME patients, or by Lyme patients to suppress herxes? Doctors have...
I got a boneset tincture from Avena Botanicals back in April when Buhner recommended boneset tea as part of his COIVD protocol, and everywhere promptly sold out of boneset tea. :) I did a quick...
I have nothing revolutionary for you here, just mainly a question. Do you have any pain, numbness, or other issues in your lower spine or tailbone area? I ask because this sounds like what my mother...
Another thought: medical expenses can be tax-deductible, so you might get back some or all of the money you spend on out-of-pocket tests. I think if you spend 7.5% of your income or more on medical...
Oh I agree that camouflaging symptoms is bad news unless you know what's going on and are addressing it. I was just thinking that if a low dose of gabapentin at bedtime helps you get a good night's...
Testing can be covered by insurance if it's from a lab that works with insurance companies, e.g. Quest or LabCorp, but these are not always considered the most reliable depending on the test....
Yeah, gabapentin is for nerve pain. My mom takes it. It makes her feel drunk and woozy, which is fairly typical according to her doctor. She can't do many physical or mental tasks while she's on it,...
Note that for detox you want Alka-Seltzer Gold, not regular Alka-Seltzer. The regular kind has aspirin in it, which may or may not be something you want, and isn't safe to take more than a certain...
This is basically what happens to me when I get sick with a virus. My body doesn't produce a fever generally. Another possibility (sorry if you already know about this) is that you are taking your...
Some of us detox better than others naturally. Some people need to detox continuously. You just have to listen to your body. Making sure you have at least one complete bowel movement per day is...
Sometimes people need several different simultaneous MCAS treatments to control all the different symptoms. One treatment might help one set of symptoms and miss others. But your question makes...
EBV can be chronic, causing dysfunction in many areas, potentially including immune system modulation and body temperature regulation. Many believe that it's an underlying cause of CFS/ME. Of course,...
When I saw my cardiologist last summer for a new arrhythmia, she said that her whole practice was 75% new arrhythmias right now because of the stress from the pandemic! I thought this was a great...
Running Wild and others have experienced this, and I hope they will share. Do you have other symptoms that flare along with the fevers? My temperature fluctuates throughout the day, and my internet...
Oh I hear you about the waiting and wondering. Even if you are 99% sure that nothing too serious is wrong, and the statistics are overwhelmingly in your favor, those of us who have been struggling...
What a stressful situation, RW. So you don't have the test results back yet? Crossing fingers that it's all just normal recovery from the procedure....
My dad also needed an emergency valve replacement due to endocarditis caused by an infection. I think the question to "Can Lyme cause ...?" is usually yes. :) In fact, the other day, I was trying to...
How long a treatment takes to help depends on how severe your mast cells' current level of over-reaction is. A couple of examples: 1. For years I would wake up feeling alert and okay, and often...
I've had rumbling, loose stools, and general GI unhappiness from a new probiotic before. It's not uncommon as the body adjusts to the new flora, and as pathogenic bacteria and yeasts may die off....
I mentioned bromelain because it's an ingredient in one of the quercetin formulas I take - Solary brand QBC Plex chewables. I don't really know if it's helpful, specifically, but I know that some...
Echoing Garzie's response. Echinacea (and other immune system stimulants) make me feel much worse. I assume this is true for those of us with autoimmune issues, especially. Once to get over a cold, I...
I have not heard that MCAS limits the effectiveness of antibiotics. MCAS does inhibit treatment, though, because herxes and side effects are more severe and often intolerable for people with MCAS....
Hi, Lightlife. Glad to see an update from you. Were you seeing someone at Sojourns before? I'm curious which person, since there are several there who treat Lyme, mold, etc. Did you get any benefit...
You could get mast cell-related pain in your GI tract several times per day or even constantly, although it more often fluctuates based on what you eat, how much you eat, etc. I just noticed the...
My child had a MRSA skin infection. Bactrim did nothing for it, and the topical antibiotics also were useless, ditto the awful bleach baths and disinfectant soaps. The boils were cultured and found...
An EDS diagnosis and butterfly rash (indicating lupus) sound like important pieces of this puzzle, to me. Lyme can exacerbate these, but people with EDS alone can have many of the symptoms we talk...
Yes, absolutely. People can have MCAS but not notice a reaction to particular foods. Mast cells are in many areas of your body, and it's possible that the ones in your gut are not as prone to...
Ehlers-Danlos is very complex, and there are several different forms. The symptoms and co-morbidities overlap with Lyme considerably. Did you have genetic testing for it, or just a clinical...
I'm so glad for you, dcd. You sound so inspired and optimistic! What a great feeling. I'm very curious to hear more, especially about the dietary recommendations. I also wonder how similar her Neural...
We are the best. :) I think we are all reasonable people who understand that someone saying "X fixed my joint pain!" is neither a scientific study nor a doctor recommendation. People are sharing...
I cannot emphasize this enough. Well said, Astroman. These feelings are freaky, and it's natural to freak out a little when they happen, especially if they are new for you. But if you are using new...
I have experienced this (same result as you) but only once, so my doctor didn't seem concerned. I wasn't on antibiotics at the time....
Different mycotoxins are bound best by different binders, so it helps if you know which mycotoxins you are dealing with. Have you had one of the mycotoxin urine tests? My advice for taking binders is...
You don't really feel it. :) No shock or vibration or anything. Assuming you know exactly which microbes you are dealing with, and that the machine is tuned correctly, the frequencies kill off...
Yep, I experienced nausea with it, but I took the capsules, not the infusions. I'm sure the celebrities who rave about it are taking the IV forms, which probably have somewhat different effects. I...
I take magnesium glycinate. People feel strongly that magnesium threonate is better for the brain specifically, but I didn't notice a difference from it, so I switched back to glycinate (which is...
I have Borrelia hermsii and Borrelia bergdorferi (and Bartonella bacilliformis and Babesia divergens). I suspect that if people were tested for the dozens of Borrelia that cause disease in humans,...
I'm curious about Epsom salt selection. How do you find one that is safe to ingest? All the packages go on and on about purity and then say it's not safe to ingest because of causing digestive upset....
Mold spores and mycotoxins can eject quite a way from the mold itself, especially if there is air movement, or if the mold is dying or disturbed. Five feet away definitely is not safe, unfortunately....
MCAS can be tricky because the severity can vary so much. Some people respond right away to a treatment, but it takes others much longer if their bodies are in the middle of a big flare. Sorry that's...
For migraines, I found the following helpful. I never get migraines anymore except from major barometric pressure drops. - Magnesium - Vitamin B2 - Hydration and salt - Lymphatic massage -...
That's interesting, Garzie. Lyme spirochetes are so crafty with all their morphing! USSB, yes, some people with MCAS find Claritin and other H1 blockers helpful, especially folks with respiratory...
Hi, runs with scissors! Welcome to the forum. Would you like to share anything about yourself - maybe treatments you have tried, major symptoms, things you are researching right now or considering,...
I know that people take Claritin to help with symptoms of MCAS, but I didn't realize that people believe it has antimicrobial activity. I would have assumed that the improvement was due to the...
I take Neuro-Antitox, yes. I find it helpful, but in non-specific ways. Different things helped me with migraines and depersonalization, but they were not brain detox remedies, specifically, if that...