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Orion82698

HealingWell Forum
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Member Profile
Display Name
Orion82698
Profile Created
3/21/2006 9:16 AM
Last Seen
8/9/2007 8:51 PM
Total Posts
423

Last 50 Posts

Activene

Has anyone tired this before? Seems pretty interesting. The study was approved by the FDA and developed by a doctor who works for NIH. Apparently the test was done @ University of Maryland too....

8/9/2007 4:29 AM

Chronic Fatigue Syndrome
Please read if you've had EBV/CMV

Well, it's been 2 weeks as of tomorrow, and nothing yet. Not expecting it, but hoping /community/emoticons/smile.gif I leave for Florida in 1 week. It would be great if I have a little relief before...

6/14/2007 5:16 PM

Chronic Fatigue Syndrome
Cold hands always now

Sparker, I know you tried one thyroid med, but did you ever get the chance to use Armour? Many don't see any relief until being on Armour. I would ask your doctor to try you on this. Start at 1/4 of...

6/1/2007 3:20 AM

Chronic Fatigue Syndrome
Valtrex (CFS patients with history of EBV)

Hey Sparker! Refresh my memory. You did have high anti-bodies for previous infecious of EBV, right? Did you have CMV as well? Valtrex doesn't work well with CMV, but yes... you will need to take it...

6/1/2007 3:16 AM

Chronic Fatigue Syndrome
I just don't get it

It's really hard to say from this that you have CFS. CFS is only diagnosed after being through just about every test possible and the doctor cannot find a thing wrong with you. From what you're...

5/30/2007 3:33 AM

Chronic Fatigue Syndrome
Please read if you've had EBV/CMV

I'm in the process now of doing research and I myself will be starting Valtrex for this on Sunday. If you've been diagnosed with Mono (EBV) and or CMV in the past and it's lead to CFS or symptoms of...

5/22/2007 12:25 PM

Chronic Fatigue Syndrome
Valtrex (CFS patients with history of EBV)

Well, my doctor has agreed to try me on this. It's obviously going to take a while, since you really don't see results for a few months. I'll report back when I start and if I have any side effects/...

5/17/2007 8:46 AM

Chronic Fatigue Syndrome
Valtrex (CFS patients with history of EBV)

Has anyone in here tried Valtrex? I know most of you are thinking "Valtrex....? I don't have herpes" True. Valtrex is know mainly for helping with herpes/cold sores. However, there are clinical...

5/13/2007 6:05 PM

Chronic Fatigue Syndrome
All this time....

Maria, Wow, that's just like me. No sore throat, fever, chills... nothing. Just fatigue and neck pain. Yup. I took can do a little around the house and go to work, but I cannot live my life like I...

5/9/2007 1:27 PM

Chronic Fatigue Syndrome
All this time....

Thanks HM2!! Yeah, they tested me for past infection as well. That's what I don't understand. My doctor thinks the lab could have made a mistake. Seeing this past lab though, there is no mistaking...

5/3/2007 3:15 AM

Chronic Fatigue Syndrome
All this time....

It was Mono. Well, I guess I "officially" have CFS My infectious disease doctor called me back to her office after she got the labs back. They took so much blood, I was thinking (they're going to...

5/2/2007 9:24 AM

Chronic Fatigue Syndrome
Provigil??

Probably because insurance companies fight to pay for it. My insurance company didn't want to pay for it, unless I was diagnosed with FM or MS. Since I didn't have that diagnosis, I would have had...

3/2/2007 4:43 AM

Chronic Fatigue Syndrome
Provigil??

Cheshiregirl, Sorry that you're not doing well. Provigil is not a narcotic. I too was on 200mg for a little over a week, and didn't feel a bit different. I don't really know what else to say about...

3/1/2007 5:29 PM

Chronic Fatigue Syndrome
FINALLY!!!!!!!!

I wanted to add to this thread by saying that Endocinologist are the worst doctor to see about adrenal fatigue. Almost all of them do not believe in Saliva testing. I've had my adrenals test by 2...

2/28/2007 4:22 PM

Chronic Fatigue Syndrome
Eye problems linked to chronic fatigue?

Chem, As Sarita said, your thyroid can cause issues. I posted on your other thread about Adrenal fatigue. Adrenal issues can have effects on your thyroid as well. How did your doctors know this was a...

2/28/2007 4:17 PM

Chronic Fatigue Syndrome
Hi, New Member

Welcome Chem! I want you to check out this post I made in another users post http://www.healingwell.com/community/default.aspx?f=15&m=740084 Tell me a little more about how your illness started? Was...

2/28/2007 4:14 PM

Chronic Fatigue Syndrome
I found Her!!!

Thank you everyone! I haven't noticed anything on the meds yet. I haven't started Armour yet, because I want to get a week's work of data (temps and pulse) before introducing that into my system. I...

2/28/2007 5:30 AM

Chronic Fatigue Syndrome
I am So Confused

Riverlily, It is very possible that this is stress. Stress did this to me (Fatigue, neck pain). Granted, I don't have sore throats or headaches, however stress could effect people, in different ways....

2/28/2007 5:19 AM

Chronic Fatigue Syndrome
Always tired too...

Sparker, How have you been feeling? Any more improvements on the meds?...

2/24/2007 4:04 PM

Chronic Fatigue Syndrome
On my way to recovery (hopefully!!! )

Thanks Ambients, but we all deserve to get better :smile: Cortef (hydrocortisone) is a corticosteroid. Like Prednisone and Medrol, it's used as for inflamation, azthma, but it's also used for low...

2/24/2007 5:16 AM

Chronic Fatigue Syndrome
On my way to recovery (hopefully!!! )

Greetings!! I'm writing to say that I've finally found a doctor to treat me with Cortef and Armour. I start Cortef tomorrow (2.5mg) and slowly work my way up to 15mgs in 15 days. She thinks it's...

2/23/2007 5:50 PM

Chronic Fatigue Syndrome
Always tired too...

This is excellent Spaker, I'm right behind you.. You're doctor is smart in start your off slow with cortef. Your body does need to get use to it. Armour should help you as well. Keep us up to date!!!...

2/21/2007 8:14 PM

Chronic Fatigue Syndrome
I found Her!!!

The doctor that is going to treat me! I have finally found a doctor that is going to treat me based off my saliva results, symptoms and the fact that I've rulled out everything else. I've already...

2/20/2007 7:48 PM

Chronic Fatigue Syndrome
The best cleanse/detox that I've ever done.

HOLY CRAP! I don't know if I could do that. You're very brave for doing this. I think it would ruine the taste of olive oil for me too. I put olive oil on my salads, chicken and for cooking. I'll...

2/17/2007 6:11 AM

Chronic Fatigue Syndrome
My Wife's biopsy of her breast

Yes, it was some very great news! Thank you both!...

2/17/2007 6:06 AM

Chronic Fatigue Syndrome
My Wife's biopsy of her breast

I know this is in the wrong forum, but many had seen me speak of this in the past weeks. A sample of the tumor was taken yesterday, and we were told that it's 100% NOT cancer. This is the first good...

2/16/2007 2:28 PM

Chronic Fatigue Syndrome
Always tired too...

I would definitely look into the Armour. However, it's hard to find a doctor that treats t3 deficency with Armour (since it's a natural form of t3 found in animal). Most will use Synthriod which I...

2/16/2007 8:24 AM

Chronic Fatigue Syndrome
Always tired too...

HM2, What dosage of Prednisone are you on? Has your doctor every tried Cortef? How about Armour? Not that I'm trying to push these, or doubt the diagnosis... I'm just curious :-) I too am very happy...

2/15/2007 7:21 PM

Chronic Fatigue Syndrome
Always tired too...

You might need a little higher of a dosage. Since you're not really responding, he might up it. I would think another 5-10mg's would help. I don't know when I'll start meds. I have my first phone...

2/15/2007 4:21 PM

Chronic Fatigue Syndrome
Always tired too...

Sparker, How are you feeling? Any change with the new meds? I've finally found a doctor who is willing to try me on hormone replacements (Cortef, Armour). She is in CO, so it's going to be over the...

2/15/2007 7:40 AM

Chronic Fatigue Syndrome
I'll be gone for a few days

I'm sorry to hear this HM2. Rest up and relax. We'll be here!...

2/14/2007 4:02 PM

Chronic Fatigue Syndrome
Always tired too...

awesome. Let me know how things go. Did he say anything about prescribing Armour for thyroid? Have you had your testosterone tested?...

2/13/2007 7:10 PM

Chronic Fatigue Syndrome
Always tired too...

Wow... that great. Seems well worth the money. What was your dosage that he prescribed? I had a doctors visit today to go over all my lab work from my Two endo's but I had to cancel to do bad weather...

2/13/2007 3:13 PM

Chronic Fatigue Syndrome
Always tired too...

That's great news! I'm happy to see that you're finally finding a doctor willing to treat symptoms, not lab work. I wasn't aware that Cortef came in shots. I look forwards to hearing that you're...

2/13/2007 4:44 AM

Chronic Fatigue Syndrome
Lab results

Well, from what I've been reading, these labs are showing me what's wrong. It's possible that my adrenals are still low, but my testosterone is definitely a problem. My low LH along with my Low...

2/7/2007 6:41 PM

Chronic Fatigue Syndrome
I'll be gone for a few days

Take care HM2, and I'm sorry to hear about your Grandmother....

2/7/2007 6:35 PM

Chronic Fatigue Syndrome
Lab results

She said they were all normal and in range. I'm truely starting to wonder if this Lyme disease. http://www.labtestsonline.org/ This is a site you can use to see what lab results mean and what the...

2/3/2007 2:02 PM

Chronic Fatigue Syndrome
Fibromyalgia and Fatigue Center

I've looked into the centers you speak of. The doctors are all trained by Dr. Teitelbaum. You can read more about them here https://www.endfatigue.com/home.nsf No, insurance is not covering these...

2/3/2007 1:52 PM

Chronic Fatigue Syndrome
Lab results

Well, I just got my other lab work. I must admit.... I'm questioning the lab results from the saliva test now and wondering if HC would really do anything at all. ACTH Stim test Base line 14.5 (Range...

2/3/2007 12:51 PM

Chronic Fatigue Syndrome
Finding hope, when there is none

Hey HM2. I don't see the endo anymore. I see my PCP again in 3 weeks....

2/2/2007 1:10 PM

Chronic Fatigue Syndrome
Finding hope, when there is none

Thank you all for your kind words. :-)...

2/2/2007 4:55 AM

Chronic Fatigue Syndrome
Finding hope, when there is none

How do you pull through the very worst of times? this past month for me has been a complete let down. I truely felt that some of this blood work was going to show something, instead I got nothing but...

1/30/2007 2:42 PM

Chronic Fatigue Syndrome
Orion?

Hey HM2. Yeah... and once again everything came back in range. I'm not sure what else to do at this point. I'm going to just have to wait and see what my PCP wants to try next. Other than that... I...

1/29/2007 1:55 PM

Chronic Fatigue Syndrome
Orion?

No, and it's not being tested on this one either. I'm not sure why, but it's not. I'm almost starting to think that it has nothing to do with my adrenals or thyroid. I'm not sure what can be causing...

1/24/2007 2:34 PM

Chronic Fatigue Syndrome
Orion?

Thanks HM2!!!!...

1/23/2007 6:49 PM

Chronic Fatigue Syndrome
Always tired too...

Sparker, Something that kinda hit me, and I checked your lab work to see... your last doctor didn't test your Testosterone. There was a test that I was reading about stating that over 50,000 million...

1/23/2007 1:13 PM

Chronic Fatigue Syndrome
Orion?

Well, I had my blood drawn again this morning. My new Endo is testing everything possible, including my testosterone again because it's possible this could be the cause, since it's so low. I fasted...

1/23/2007 1:04 PM

Chronic Fatigue Syndrome
Orion?

Well, I had my ACTH Stim test done today. Man... that sucked. Getting pricked twice for blood isn't fun. They took my blood, then gave me a shot of Cortizone and told me to wait in the lobby. within...

1/22/2007 1:30 PM

Chronic Fatigue Syndrome
Orion?

Well, I got the rest of my results from my first Endo today. He did test my Thryoid, but only my T4 and TSH. The T4 was 1.28 and the Thyroid was 1.360. I'm not sure what these mean, but I'll have my...

1/22/2007 5:40 AM

Chronic Fatigue Syndrome
Orion?

Hey Spaker! Well, we'll see what my other Endo thinks about this test. It's weird, I don't have the obvious signs of low testosterone (facial hair and drive) but the fatigue is a symptoms... I hope...

1/19/2007 9:42 AM

Chronic Fatigue Syndrome
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