I've had that out-of-body feeling many times, but never standing up. You experience it while up and mobile?...
I found my irritation levels are directly related, as someone said, to the degree of my fatigue and the interruption's relation to either adding work, requesting activity of me when I'm exhausted -...
Yeah.. I was on a session of Cytomel (T3 supplement) and some Courtef, but never to any of the levels that most other people were using. My doctor was hesitant to go at higher levels. He also didn't...
I did have the EBV, but I can't remember on the CMV, I'll check tonight when I get home on the results. He's only prescribed me 1 gram a day right now.... so once again he's coming up short....
It's weird.. in addition to being completely exhausted all the time, the only other severe symptom that I alway experience is freezing cold hands and sometimes feet. It's summer, it's like 74 degrees...
Well, my doc tried me on 2 weeks of Valtrex a couple of weeks ago, and (no surprise) it didn't help. I'm so frustrated right now I could literally smash this keyboard. Anger aside, I'm going to call...
I just went through 4 weeks of B12 shots, twice a week self-administered, and unfortunately they didn't help me at all. However, I've heard it made a small difference in others... so it all comes...
Sorry you're not feeling well too. Do you have any pain associated with your tiredness at all, like painful neck or joints, etc? Are you cold at all, as in cold fingers or feet? Any other symptoms...
I can with 100% confidence say that the Cortef is definitely making a difference. Since I've been taking it, I've been able to think clearly again and be able to work nearly full time again. I'm very...
When do you or did you already have your telephone consult with the doctor?...
Well, I can say after a week and a half on the Cortef, that it feels like something good is happening. I've been more "awake" over the last week than I have been in the last couple years. I still...
Ditto. Thanks to all that make this possible....
Well, I did my second shot of magnesium this morning - ow. The needle is like 2 inches long - I nearly passed out doing it. Yesterday (first full day of Cortef) seemed like I had a little more energy...
Hi back neighbor. No, Dole is not specifically a rheumatologist, he just specializes in chronic fatigue illnesses per se, typically where other doctors have given up - or the patient isn't finding...
Well, that's where I live.. I'm in Andover just north of Minneapolis. The doctor I'm seeing now is Dr. Dole at http://www.dakotamc.com/ . He may not be covered by your insurance, so you'd have to...
I'm taking 10mg of Cortef in the morning, and then 5mg at noon. For the magnesium, I'm taking 2ml of that with an additional 1/8ml Lidocaine twice a week for a total of 10 dosages. I took my first...
Sorry, didn't mean to convey that the Cortef was in the shots... only the Magnesium is in the shot. I take the Cortef orally. I should also mention that he (the doctor) said we could try B12 shots...
Well, got back from the doctor just now. My stool tests came back fine for the most part. There was no evidence of fungi so I'm not really a candidate for candida. No ova or parasites, nor giardia or...
I'm sorry you're feeling like this too Orion. I can certainly appreciate where you're at. I've been there and back up and down again over the last 5 years and the only thing that's kept me going was...
I'd agree with Jeannie in that I've never been able to save up energy. I'm never able to plan when I'll have energy - it's either there or not. I think that inability to be able to predict or plan to...
I'm sorry about the thread being locked too, kinda sucks. Seems like you almost need to moderate your own thread to try to keep it open in case it gets too popular. Low testosterone levels can effect...
I can understand your point about the diabetes. I'm of the same mind myself, I'd much rather live and manage a known condition like diabetes than try to live day to day without any idea of what's...
When is your appointment this week?...
Well, got the T3 Free test results back. The range for normal is 230-420 and I was measured at 292. The doctor indicated that depending on the other tests and the results of my diet - he may try...
Well, had the appointment with the new doctor this morning. I asked him why he specialized in chronic fatigue and these mystery ailments and he said he liked the challenge of it as well as taking on...
I really admire people who have this fatigue and are able to maintain a normal lifestyle or even maintain a full time job working 40 hours a week. I actually felt alright this morning and was doing...
Sorry to hear the tests came back "normal" as usual. I'm sick of all the tests and doctors who don't listen to the darn patient when they tell them they're not feeling well - and only look at test...
I had a twitching eye for a long time too. It must have lasted for 3 months, then stopped for a month, then began again and lasted for a few months again. I think that went on for about a year. I'd...
There's a comma in the link, remove it to get to the page. It should be this: http://www.measussex.org.uk/ ...
Well, he's a full physician... so he can prescribe Cortisol - it's just that he approaches medicine from a holistic standpoint. He tries to avoid prescribing if at all possible and treats initially...
Well, my cousin (who has gone to this homeopathic doctor) said she was experiencing some of the same symptoms that I am. She's feeling much better now, although she said it took her a good year to...
I can never tell when I'm heading for a collapse. Each day, I wake up no knowing if it's going to be a good day or a bad day... and then when there are good days, I can't find any rhyme or reason to...
sleepy, yes, I'm in the USA. I know what you mean on giving up your normal life. I struggled for so long, as you're doing, to not give into the fatigue. For a long time I felt like I was giving up or...
Hey sleepyheadgirl, sorry to hear you're feeling so bad. I can't tell you I know of any cures.. but I believe you're experiencing the same symptoms that I and Orion82698 are experiencing. We're...
Had dentist appointment this morning. They rattled off the standard ADA line that my amalgum is mercury based, but that the mercury is bonded and sealed and can't get out, etc. He did say however...
Yeah same here... although I've had some scrapes here and there, I've always been in excellent health and full of energy. Being sick is totally unlike how I used to be, which makes it more difficult...
Yeah... 7 fillings all in the molars. They're all old since I had them all before like 1980. I'm gonna have to imagine they're mercury since they're old and they're the silver based fillings. The...
Well, I have hope that between us we may find the reason for this fatigue and some way to cope. It makes me feel better that at least there's 2 of us with identical symptoms and that we're both...
Well, hopefully you'll find some results from those tests. How's it going otherwise, still the same? Feeling any effects of the vitamins at all? I can't say I've felt any better due to the vitamins...
I hear ya, I'll likely have to pay the $250 out of pocket for this holistic guy. I'm already starting to hurt for cash as I'm not getting my full-time hours in at work. Interesting enough though, my...
Well, went back to the endo this morning for my followup, and got pretty much what I expected. He started going through the test results one by one and said "this is normal, this is normal". I...
No problem, in fact I'll post my entire test result. I scanned in the 5 pages and you can compare if you like. Maybe someone will see something I don't or my doctor(s). It's a pdf about 600 kb in...
I don't understand it. Why did our saliva tests show low Cortisol and a drop in their levels through the day.. while the blood tests showed a normal level. I'd like to ask ZRT labs how that can be.....
Sorry to hear you got bad news as well. I know exactly how you're feeling.. it's like (for me at least) the little bit of hope that I was carrying along just got yanked from me. It had been so long...
I got mailed the results of my exhaustive blood tests, and they've all come back normal. So, I'm back to square zero with no real idea where to go now. They tested the following (as written on my...
That's great news on getting a great doctor Orion! Just reaffirms again how much mine sucks. Are they going to redo the ACTH test? When you say you read it's worthless, do you mean the one they took...
Can't believe it's already here... let us know how the appointment goes! Good luck....
Strange, but I just realized that my movements are like every 3-5 days. I don't think that's good. I just never get the urge. For a while there, I'd only get the urge when I was about to explode....
No, I made copies of my test results before I gave them to him. He's treating me in that he ran blood tests 2 week ago, but I won't see him until January. He said he'd call if the tests found...
I appear to be on some sort of cycle of energy. My lifestyle doesn't vary much at all, but I've noticed that lately every 4 weeks or so I completely run out of energy regardless of my eating, sleep...