I've attempted to get a sleep study but had no luck. They told me I had to go to the center and that I had to go to sleep at 8pm, which was just absurd. It's 7am as I'm writing this and I haven't...
I am absolutely amazed that there has been no response at all on this forum regarding this stunning news. It has generated dozens and dozens of comments from CFS sufferers in the NY Times, where two...
I think this is huge news. Not to get anyone's hopes up, but it's very promising, it seems to me. Thanks for posting (and to ruggedtoast for posting in the other thread). There are about 300 articles...
Celiac disease, lupus, MS, Addison's disease, and thyroid problems are a few, though most will have other more specific symptoms that CFS and FM don't have and they can be ruled out that way....
I have CFS and fibromyalgia. I've been diagnosed with fibro because I have the classic "tender points" but the pain is not a major issue for me, it 's the fatigue. I'm unable to work and unable to do...
I've had to leave stores and restaurants because the air conditioning was just too cold. Whenever I ride a train or bus for more than a couple hours in the summer I bring a blanket. I don't have air...
I believe that my chronic fatigue and pain (the fatigue is much worse than the pain) are probably almost entirely due to my inability to get restful sleep. But I have no idea what I can do about that....
For me, it was really really awful. Therapy can be very destructive, and you have to go into it with extreme caution. Many therapists, like many doctors, see things only one way, and if you don't...
That's the therapy where the doc tries to convince you that everything you think and know to be true is stupid and that you should believe things that aren't true instead, because it'll make you feel...
I don't think the cause of CFS is known, so it may not possible for you find out the reason for your tiredness, but you can figure out how to deal with it in the best way that works for you. It also...
I think I know how you feel, though I also know that everyone is different and everyone can react differently to illness, so I won't presume to say that I know your personal experience. I've had CFS...
I understand how you feel. I've actually given up going to doctors because I can't handle the stress of how awful they make me feel. I'm constantly debating with myself when I'm at a doctor's office...
Yes, that's how I feel as well. I am utterly exhausted, as if I'd been on a 20 mile hike, but I'm not sleepy, nor do I sleep excessively. In fact, it's extremely difficult for me to fall asleep, and...
Tarja, don't ever feel badly about asking for help. That is the only way that you can get the help you need. Even talking on an internet forum can help you feel like there are people like you who...
spelcheq, I was glad to read your post because sometimes I feel like I'm the only one whose CFS developed very gradually, so gradually that there was no discernible beginning. I'm 43 now, and I've...
Thank you to all of you who put in your time and effort to keep the forum going!...
Thank you for posting that pasara....
I don't know the answer to that, but from what I've read and heard, CFS can take many different forms in different people, and it can manifest with different degrees of severity, so I don't think...
I agree with pasara that the word "tired" doesn't work. Everyone feels tired sometimes, so they assume you just feel the same way they do. It might help to say you feel like you have the flu every...
Angie, I'm sorry to hear how hard things have been for you. I respect your perseverance in keeping up with school even with what it has cost you in terms of your physical and emotional well being. I...
I think the hardest aspect may be the mental and emotional stress of feeling so fatigued that you're frustrated you can't do anything, or even feel guilty for not being able to get things done or not...
You might also want to ask the doctor to check if you have the tender points associated with fibromyalgia. I was diagnosed with fibromyalgia, but by far the most disabling symptom I have is fatigue....
I'm sorry you're having such a difficult time. I often hesitate to give advice here because my own expereince seems to be different from many others, so take what may be useful to you and leave the...
I'm sorry that happened, and I feel for you. I can understand your embarrassment, but I'm sure you know you did nothing wrong and have nothing to be ashamed of. If it's any consolation, when I have a...
I'm in the US, so this may not apply to you, but I saw a nutritionist in a big public hospital that treats uninsured patients (so where you usually have to wait the longest for your care, sometimes...
I think it may be wise to trust your instincts. When I've overdone it I start to feel sort of panicked because the fatigue hits me hard the next day and for a few days afterwards. If you feel...
Hi Karl, I may not be the best person to answer because I'm not srue if I understand this condition myself :) but I'll try to answer from personal experience. 1. It seems, form what I usually read...
My understanding of the term "ideopathic hypersomnia" is that it means "you feel very sleepy (or don't get enough sleep) but we don't know why." It's not a very useful diagnosis, as far as I...
I know this is going to seem like a strange and unsatisfactory answer, but since there is no real treatment for CFS, getting a correct diagnosis is kind of academic (meaning it doesn't really make...
Yes. Every day I'm exhausted. It varies some from day to day, or rather it tends to go in phases, where I'm better for a few weeks and then worse for a few weeks. On bad days I can't do anything...
Yes, irritability is a huge issue for me, and I don't think it's strange: everyone feels irritable when they're exhausted! Having CFS is like having been on a 20 mile hike carrying a backpack full of...