I get you Char, my rheumy is like "you're already on the most I can give you and your joints are still deteriorating but there is nothing else I can do." But at least she says it with compassion, but...
I found it hard to give up at first but now I don't miss it at all. It's amazing how you just adjust. I still allow myself the odd glass of alcohol for celebrations but find after a couple of sips I...
Sounds like I'm sending BIG HUGS to both of you. Pain is such a debilitator. Hope things pick up for the two of you, I once was told when Pain is bad- to take it a day at a time or really bad- to...
Hi look there are good rheumys out there who actually listen to your concerns, mine is very reassuring but I have in hospital come across the ones who think they're "it" and you're a lesser mortal,...
I reckon a good podiatrist can help. I was really hobbling with my feet and my podiatrist made me orthotics that have halved my pain. She has put pads under the base of my toes and it takes the...
Hi Mo, It sounds as if you've been given the run around. If everything hurts could it be a form of fibro? It definately sounds more nerve related than joint related. You can have a form of RA with...
Hi Peggy, look up the half life of rituxan, my infusion specialist said it often takes 2-6 months for new meds to fully build up in your system, so don't get discouraged yet. I personally know...
Poor Char, make sure you bring your x rays to your specialist so he can see the damage.I have anti nausea meds which I use if I'm feeling sick from meds, it didn't seem to worry my GP to prescribe it...
I don't know if youre still around, I only drop in occassionally to this site, I can't believe you got no response! I had arava with methotrexate and sulphursolasine and it was the best I've ever...
It was rough for me initially but my body just sort of adjusted to it. Now I have no side effects apart from lower white blood cell counts. I have been on it about 7 years. I miss not being able to...
Have any of you had it? Pros and cons? I also have a couple of cysts along the tendon sheath, one of which is in an irritating spot and is quite hard.Having a cortisone shot into the tendon in 3...
Good luck with it Peggy, I hope it works well for you. After I came off orencia they were going to try me on rituxin but I asked to try humira again and luckily for me thats been working, not 100%...
I tried orencia and found it didn't really work for me. My infusion nurse said because of the half life it actually takes 5 months before you get the full effects of it. It did work for me just not...
For a bad flare you can get infusions of cortisone or prednisone equivalents and they can give you huge amounts over 3 days like 3 grams instead of mg. You go in incapable of walking and come out...
My heart goes out to you, I suffered from a frozen shoulder for only about 8 months and the pain was horrendous. I found the cotisone shots directly into the tendons helped the most. This was done...