Welcome to the PD Forum here at Healing Well. I am sorry to hear about your Grandfather's recent fiagnosis. Unfortunately, I fo not have any experience taking that medication, I am sure one of out...
I have a form of PD called atypical PD. It started out like regular PD but progressed much fast than normal PD. I quickly used up all my PD meds until they became ineffective. PD is very individual...
My dear friend had DBS surgery twice. The first time the leads were poorly placed and the results were less than stellar. The second time she had a slight bleed during the surgery and ended up having...
You and your family are in our thoughts and prayers. Be strong....
Straydog, I received your e-mail and sent you a responce....
Straydog Have you ever experienced a time that your pain dramatically flared-up that you could not get it under control. Here is the story, I have baclofen for muscle cramps and morphine for pain. On...
Are you seeking a diagnosis or follow-up care? IF you are going for a diagnosis and treatment recommendations, all of the major teaching institutions are great. Since you are a distance from Hopkins...
Jay I would give anything to have the opportunity to mee with friends for dinner at McDonalds. My condition does not allow be the pleasure of making plan ahead of time. If I fee good enough that day,...
Welcome to the CHronic Pain forum here at Healing Well. I am glad you joined and posted with your introduction. I was sorry to read all the pain you are going through. I you continue to post and let...
I too am having problems with my sleep. I have difficulty both falling asleep and staying asleep. I have been working with my neurologist to develop a successful treatment plan. I have tried...
Welcome to the Parkinson's Forum here on Healing Well. I was diagnosed with PD when I was in my late 40's and then rediagnosed with Atypical PD or better known as MSA (Multiple System Atropy) when my...
Welcome Fordman to the Parkinson's Forum here on Healing Well. I was first diagnosed with Pd at the age of 49 and then had a very rapid progression of my symptoms and also rapidly maxed out on all of...
First of all welcome to the Healing Well Chronic Pain Forum. There have been quite a few postings about stimulators over the past year. I suggest that you use the search function to search the forums...
Welcome, We have had quite a few postings about stimulators. I had one implanted in 2007 for chronic whole body and back pain due to spasms. I suggest that you use the search feature on this forum...
Quilting is my godsend! i love to make things for my home and as gifts for others. You can make things as small as a table runner or a little larger like a child's crib sized quilt. they make...
First of all, welcome to the Healinf Well Chronic Pain site. I so wish you did not have the pain issues you are dealing with and did not have to seek out this website for insight. Dani Henson did an...
I just posted this reply to another HW member trialing a stimulator. The I notice we have several members considering stimulators that might benefit from my expience with both. Here was my reply to...
I am glad to hear that you finally got the opportunity to trial the stimulator. I have a Boston Scientic Stinulator that was implated in 2007 at the Cleveland Clinic. I did have what I consideredto...
Lindaloo,If there is anyone that deserves a "group" hug, it is you. Your ongoing battle with chronic pain has made you battle ready for this new contender. You of all people should not be forced to...
Straydog is right, there are many threads on HW about pain pumps. Use the HW search feature to find them. Another good resource is a Yahoo site called Pumpsters that deals strictly with intrathecal...
Wather here on the Grea Lakes has been all over the board. We going for days of "Noah's Ark" down pours to result in lush mushroom fields in my lawn and garden to sahara like hot and dry spells that...
It sure is nice t hear from everyone. i thank everyone fr keeping me in their thugths. Chutz is right when she mentioned my husband. I dn;t think we praise ur caregivers enough. My wonderful husband,...
I wwrote a short posting a couple of weeks ago, so this one will be brief. I am doing much better each and ebery day. The biggest problem I am having is getting this new congested heart failure under...
Welcome aboard! Sounds like you have a wonderful family. I sorry to read about all of your pain. No one should have to handle so much. Good luck....
Chronic pain is a horrible beast try and tame, but you have no choice. You have a wonderful family that needs you. First of all, are you taking an antidepressant? It sounds are though you are...
Neilp I just responding to your other posting on this matter. I also suffer from severe muscle spasms. Please read my answer on your previous posting....
Neilp02 I have exactly the same thing that you are experiencing. My Neurologist would classify these intense muscle contractions as spasms and not dystonia. Dystonia is a form of spasm but a little...
I have several friends that have had DBS surgery. 2 were PD sufferers and the other one was a dystonia patient. All 3 had maximized their medication use and were at the end of the line regarding...
It is grea to hear from everyone. How about some of other CP posters, won;t you join us. I is nice to hear how everyone is doind, not just when they are suffering major problems. Let us know what is...
Dear Pam, Soory to hear about your daytime sleepiness. If it really get to be a problem you can always talk to your doctor about Provigil. It does a wonderful job at making you feel aakre but not...
Dear Kimber, As always are prays are with you and for guidance of the surgeons hand. We look forward to hearing from you after your procedure, when you a feeling up to posting....
Dear Retired, Good luck on your test. Too bad it is all or nothing. When I took the CPA exam, it was in four sections. This allowed to you passed certain sections and fail another. I passed 3 of the...
I have a combine of Morphine and baclofen in my pump. The Morphine has done a fantastic job for me. I have had better pain control with Morphine verses that with Fentanyl Patches. I do use Dilaudid...
Hello from the Great Lakes: The weather here has been wonderful. The bluebirds are back and busy looking for places to nest. If I am lucky, I usually get a family or two in my bird houses. We are...
I am so sorry that you received this diagnosis. I have had two lumbar punctures and both went without any problems. You certainly want someone experience to do the puncture. It does take a little...
I am sorry but I do not have any answers for you. I hope one of our other Posters can help you. My girl was on Rebif and suffered severe flu like symptoms for about 3 days after each inject. She felt...
I am so sorry about this recent flare-up. Is it possible they are related to your shots. Have you checked to see what the side effects of the shots are? How many more do you need? I would definately...
JoAnn, I am so sorry that all this is happening to you. I went through the exact same thing. I was a medical research cooderinator for all of the projects in specific departments at the Cleveland...
THanks for the information. I had no idea if it was animal, mineral, vegetable, or something to eat. Great name - Daisy. She sure is lucky to have you. Do you keep her at home or board her....
Donna, I am so sorry this is happening to you. I think Mikal99 gave you great advise. The only other thing I would recommend is docement docement document. Note down every odd, different, etc. You...
Hello Pasty, Welcome to the CP Forum. I sorry you had to seek us out becuase of pain issues that you are having. I was on the Fentanyl patch too for several years and also had good success with...
Dear Barb, Thanks for the information. How often will you be getting these infusions. I agree, you have to stop all of the flare ups. If it were me and the other medications were not doing the trick,...
Thanks for the info Robert. I don;t think I will be using Botox for esophageal spasms any time soon. A little too much botox and we may never have to worry about those spasms in the future. I use to...
Dear Queen of the Colon, WOW - I am glad you have meet someone that you mesh so well with. That is wonderful. I think everyone who suffers froma chronic disease worries about what impact it will have...
Dear Purplehaze, Thanks for the update. I hear where you are coming from about watching children. I know when I was feeling better I was asked to watch my niece for a few days. I did not think it was...
Merrygirl (Melissa) I was happy to read your recent post. I am glad your procedure was pain free. You were probably stiff from laying on the table during the procedure. Now is the time to take good...
First of all welcome Puppybreader. What kind of puppies do you breed? Have you taked to your current PM doctor about your upcoming move. He or she may be able to recommend a PM doctoror two or evern...
Hello Donna, Welcome again to this Forum. I think all my fellow CP members haave given you great advise. I know what you are going through, as I had to change PM doctors too! Me patient. Start...