@1 day at a time, perfectly worded. Those of us that are very active can become our own worst enemies. So glad to see you pop in....
Texas4Life, you are in a huge medical facility, you are a number, you are not going to receive individual care, that's how they work. The volume of patients they treat daily makes it impossible to...
They use a combination of different medications in the injections, it's not just a shot of a steroid. They may or may not used Decadron, they could have used something different, regardless the...
I think in time you will be able to sleep on your side, right now is just too soon. Your reaction after sleeping like that was your body's way of alerting you now is not the time. I no longer sleep...
If this were me, I would have already mailed my patient survey in to the hospital. Sure, your dr will hear your complaints about his staff, but nothing will change. Just so you know, many of these so...
No telling what set off your bathroom issues, I typically eat the same foods, however, I am prone to be hit with diarrhea for 24 hours out of the blue. I take Imodium on those days to knock it back....
Hello, yes it is part of the protocol to see a psychologist or psychiatrist for an evaluation for these implanted devices. The purpose of this is to make sure you have reasonable expectations of the...
It sounds to me like you are on the right path to remission which is fantastic. I remember not long ago you said you felt so well that it was like not having UC. My gi runs a calprotectin based on...
@theswan, you may want to go to Drugs.com & read up on your medication....
You need to eat a snack before you go for your infusion. I wouldn't think your BP meds caused this, I was on 3 different BP meds back in my Remicade days. You need to make sure you are well hydrated...
Awesome news, so glad she finally got approved. Hopefully Stelara will agree with her. I know the first dose is by infusion & the rest is by injection. Any idea when her injection will be scheduled?...
You are doing very well in such a short amount of time. Not everyone has some improvement this soon. So much depends on the extent of damage, is the damage temporary or permanent, pinched/compressed...
Yes on the ice packs being very helpful, everyone says this. When my husband had his back surgery he was sent home with a wrap and we put ice & a little water in what looked like a small cooler. A...
There are some older posts in the archives of people taking "tart cherry juice" for arthritis pain. One thing I noted was they took it at bedtime because it can cause drowsiness. You mentioned trying...
By chance did you ask the PM dr about the need to continue with Gabapentin? If your actual pain from surgery is better & the neuropathy is gone, I would be asking if it's still necessary. I know with...
Thanks for the great laugh, I love your sense of humor....
Checking on you, how are things going?...
@poopydoop, I understand exactly what you are saying about the big pharma & medical research junk. I can remember just a few members that are not in the states but not all of them. However, when I...
I looked back in the archives & found several old posts about weight gain on this medication. I take an extended release version & have not had any problems. Why not ask your dr to try you on...
@poopydoop, in many instances members have no idea what country someone is from unless they say I live in ____. Many members do not know there are other meds that can be added to treat, then some are...
Peel the skin off of the salmon & chicken, shred it with a fork & then cut them in tiny pieces. Above all chew & chew some more. If you handled the philly sandwich you should be able to do this with...
The Decadron increases the appetite, sorry I forgot to mention this, calling for late food, yep that's your culprit. You need start back on your regular diet, try a small bite of something, if it...
If you are satisfied with his answers about what went on in the hospital that is all that matters. The only thing I will point out is when someone has trouble swallowing after a reasonable amount of...
I ended up in the hospital with c-diff & was given vanco along with a script once released from the hospital. I was given Florastor (probiotic) & took it the entire time I was on vanco. The only time...
Cathy, do some research going back to 2016 with the DEA getting involved. As I said in my prior post, pharmacies are now all linked in on a prescription portal that shows all scripts written by drs....
Your comment is an excellent question for the surgeon. When you meet Friday, do not be confrontational, you need to be as calm as possible. That's going to be tough one, but as the old saying goes...
I looked in the archives here to see if there were any posts about this & found none. What is your cardiologist saying about this? I have zero knowledge about it, however, I did a quick internet...
Yes, any steroid will mess with the sugar levels. I now refuse all steroids, in 2013 I was put in the hospital & they did IV steroids. Not only do I go into congestive heart failure on them, my sugar...
Gabapentin is being widely prescribed for pain too, this started when they went after people being on pain medication. Look at medications that are used off label for a variety of reasons. Diabetes...
About those muscle spasms in your shoulders, this is normal & many have complained about this. Use your cold packs for this, no heat. The muscle spasms may haunt you from time to time long after...
I've read some people have swallowing issues for up to 6 weeks, then some less than that. You will need to strike a balance on the foods you can swallow & try to put stuff in a blender if it bothers...
Just checking on you to see how you are feeling, check in when you can....
These guidelines from the CDC, FDA & DEA recommended this back in 2016. There isn't a rule, it's guidelines & drs have implemented it. Add in the prescription monitoring program, meaning a database...
damo123, thanks for posting your thoughts. I've often said take everything you read in a public forum with a grain of salt instead of it being the gospel, lol. I am glad we have a variety of meds to...
So sorry to read about everything you are going through. All you can do is take care of yourself the best you can. I can't offer much about your family. This is not uncommon with some & yes it can be...
I don't understand why you were not given the antiviral specific for the virus, that makes no sense. Minnie, you have been posting here about having a lot of symptoms prior to getting the virus, so...
It's a glitch in the system, this happens from time to time. It will eventually self correct....
I would fill out the questionnaire, on regular paper write out your complaints before putting them on the form. Be concise, try not to ramble (easier said than done when livid) & detailed. Keep a...
Thank goodness the resident was in the room! The only difference between Remicade & Humira is one is an infusion, the other an injection. I urge you to go to Stelara's website & read about how it...
Wow, what a epic failure of this hospital. In the future if you ever have to go in a hospital & are not getting the care needed, insist on seeing a patient advocate. They can send someone to your...
Are you home or still in the hospital? Is the dr getting things sorted out?...
Considering all of the issues your daughter developed while on Remicade, personally I think Stelara is a much better choice. Humira & Remicade are so much alike that I couldn't figure out why it was...
Just checking on you to see how you are doing!...
Have you had the RF done or waiting for the procedure? Sorry, I can't figure out how to respond any better....
If this were me, I would not cancel the infusion. After seeing the new dr you may not like him & want to become his patient. This appt should be looked at as an interview for a potential new dr.. Not...
The IV steroids will help you a lot with swelling, pain & inflammation. Keeping my fingers crossed for you....
Keep in mind your throat is swollen inside, your voice will return back to normal. I know you are freaking out, understandable, but try to calm yourself down. It sounds like you have had a reaction...
So sorry to read this! Is it all of the time or when you try to eat or drink something?...
Your dr should let you continue with the higher dose, just my thoughts. If you are wanting to stay on it, I would tell him this, at least let you give it a decent trial since you are getting better....
Good luck with your surgery tomorrow!!! Check in when you feel up to it....