Thanks for all the suggestions, I've actually done everything I can do to advocate for myself in a HMO--not easy when you're weak and not feeling well. I did talk to my latest GI yesterday and I...
Yeah, PPO to expensive b/c of copay; on a lot of meds and on average hospitalized twice a year at 20% copay--yikes....
Remember me? the one that goes to the chronic pain clinic that no longer believes in narcotics and was taken off of them this summer. Well, Nothing, I mean, nothing has changed. I go to the ER, I'm...
I have crohns and ulcerative colitis with very bad chronic pain and have never been offered a nerve blocker. I have, as others, been given everything including the kitchen sink and I've come to the...
Don't know you, but good luck girl!...
Being an American means never having to say your an idiot. /community/emoticons/smilewinkgrin.gif ...
So sorry you're going through this and I hear you and empathize with your pain problem. I would probably faint out of shock if one of the many doctors I've seen cried for me--not getting good care...
Look into the Americans With Disabilities Act and see what options you have. Also look into any organization in your area that assist in advocacy. Filing some sort of complaint almost always works...
Novice-I've been DX w bowel diseases for well over a decade and the inability to not eat just began a year ago and I definitely have many physical sx's that just can't be psych. Although, I will...
OMG what am I going to do. How much longer I'm I going to be able to keep my job if I can't control my pain. On top of that I don't eat at all at work bc I don't want to cause any possible problems...
I noticed this years ago as my illnesses and pain progressed. I've dubbed them "brain farts" and have told my coworkers why this happens. I've noticed my memory is worse now that I have been refused...
Zanne- thanks for the reply, I am a little apprehensive so few people are on this drug or know about it. I have UC and my GI just DX Crohns; about a year ago, I lost the ability to eat all solid...
Once again, thanks all for taking the time to write. Update: I had to go to the ER yet again yesterday to bring my pain levels down (my fifth visit since going off pain meds); I wait until I don't...
GI just prescribed it. Have to get it in Canada. I feel like like it's another shot in the dark....
My first pain MD visit with the "new and improved" pain clinic I went to several years ago AND about the fifth pain MD I've seen in total. An hour and a half with this guy and he had no...
Is there anybody out there going to a private pay pain MD--no insurance involved? Does it exist? The few I've contacted so far are into "holistic" medicine, which, ironically, I'm on 15 different...
I hear you; I'm right there, but I'm in a numbing stage....
OK, even though I have insurance I am looking for a private pain clinic that will prescribe me the pain medication I need to live a pain-free life. I look on the internet in my area, found some...
Thanks for the replies and being mad for me; I'm too numb right now to have any feelings at all. I don't know how I'm suppose to live like this?...
The thing is I belong to an HMO, this is it, this medical facility and all the affiliates are taking this stand. And this is a BIG HMO, watch out people, this way of "pain management" may be coming...
Dr Oz, Dr Phil, Dr Drew and all my current doctors can (Snipped) ... Do you think any one of them if they lived with debilitating daily pain would not run to a PM that would RX relief immediately....
Yes, that's right folks, I've been cut off for three months now; the result, chronic, I mean chronic discomfort (and I'm not talking withdrawl, that's over with). I go to work and come straight home...
Just happen on this thread b/c I am scheduled to due a "hyper-mobility" test which my GI states is done by drinking a contrast and then take a succession of x-rays to see how things are processed...
Thanks for responding Red. As a matter of fact, I just ate a small bowel of cereal b/c I have to go to work and I'm really weak; it isn't going well, just feel bloated, pain (although mild right...
I am in total bummer period: two hospitalizations within six months b/c body rejecting food/water, severe stomach pain any time I put something in, lost a lot of weight--which very soon will get to...
Hi, usually at the CP forum, but I think this question is more relevant to this one, I have ulcerative colitis, IBS, GERD, Fibromyalgia been hospitalized past six months twice because I have lost all...
After YEARS of CP, I have slowly discovered how to always have at least a weeks worth handy. Learned this really years ago when my CP MD went on vacation and I was almost out and you can imagine...
First, I want to thank all of you for the replies, made me cry, but these days that's really easy to do. palady: seriously, I dont know u but I luv u for always being there for me. Oh, I am fully...
I've been hospitalized 3x in the past 6 months b/c my body is rejecting food and I've lost a considerable amount of weight. I have multiple GI problems on tons of meds but I've completely lost all...
Your post resonated with me. I was just d/c'd from a two week hospital stay where the attending MD insinuated that I was exaggerating my illnesses and no one in the world could suffer from CP the way...
Quick response to say: I hear you and understand. Try to remember there are no "should" or "normal"--something I'm slowly learning as I mature and hopefully get wiser. Go out tonight for your husband...
Just got out of the hospital after two weeks and it was awful. The Attending assigned to my case had the worse bedside manners and I truly believe they became a MD b/c of pressure from their parents...
I think it's a good gift idea if (my opinion) you make things, modern/ trendy/funky whatever you want to call it. For instance, when you say shawl I think of grandmother and a triangle. Call them...
Something to think about. I agree with Chutz if not asked directly offer up nothing but if asked, I would be honest and briefly explain the situation; if you say no and a test comes back positive you...
This is all very interesting to me. I have been in serious PM treatment for approx. six years and have--never--been drug tested. In the beginning I was told that it may be a possibility but it's...
Hello, dear friend, I drifted back again. Sorry to hear about your surgery--I had two myself last year and you know.....still working, I know, right, I'm nuts....
Totally relate. Depression/sadness/fatigue is normal to CI and CPers, why wouldn't it be: all aspects of your life is compromised, struggling daily is draining, the why me can be unbearable and so...
If possible--what I really want to say is insist on speaking to an administrative/manager person. Give dates of cancellations and see if there is a common theme and ask manager what to do in this...
Good for you. I felt your post was smiling. Give that husband of yours big hugs and tell him he is a wonderful human being. I have a friend who through her cancer treatment her husband totally...
Yes second time in six months I have been hospitalized. I just don't know what to say anymore. This chronic illness thing is really messing with my social life-wait, oh yeah, I don't have a life...
Thanks all for the empathy. Yeah, that night was a nightmare, somehow made through it. When my MD quickly figured it out he immediately got a nurse to give me a pain injection. I have an infection...
Super sick, no solids for six days, sinus infection, pain meds not even touching the surface; when I could stand no more I headed for the ER. Now, I loathe the ER, have had many not so great...
Wow, love the instant reply: yes on Zofran, Bentyl, Asacol, Rowasa, Prilosec, maintenance Prednisone, Restoril, and of course multiple pain meds, antidepressants, fibro med, etc, etc. This, ah,...
If it helps any, I feel like an idiot at least a couple of times a day. Fav quote: Being an American means never having to admit your an idiot....
Great suggestion, the first thing I thought of was I need that doctor on that show House. Unfortunately, I belong to a HMO and I'm almost certain they would NOT pay for that type of medical care and...
How about how CP/CI effects intimate relationships or lack there of; loneliness, isolation, etc. For those who work how about a week to vent about all the coworkers that constantly ask you why you...
Thanks for responses. I've tried everything, believe me. No food allergies, when you go for weeks w/o eating you quickly realized its nothing your eating; my GI has repeatedly explained its not...
FYI: I have every GI DX imaginable, plus fibromyalgia (maybe someday I'll make it into the Guiness Book of World Records). Anyway, six months ago my body started rejecting food altogether: vomiting...
Confession time: I only post on occasion b/c I feel out of place a lot of the time; I am the dark horse, the existentialist, think life sucks for the most part, like reading dark poetry, etc. you get...
First, I will admit pain meds can be a double edge sword, but there are some of us--that would be me--that could not work/function w/o them. I'm a little weary of statements of absolute opinions. As...