Glad to read that you are having positive results. Old Hat who is a member in this forum has been in remission on Colazal for quite a long time. Keep us posted on how you are doing....
Back on September 2, beave gave you some excellent information. Proximal is the duodenal area. You are stuck in limbo because all of the extensive you have had done the findings are not enough to...
My first thought is it could be costochondritis. When you have this pain what do you normally do to try & relieve the pain?...
I was not able to access HW yesterday, I kept getting a "404 error" anyone else? I am guessing the new owners are working on the site, it would be nice if they would at least give us a heads up when...
iPoop, thanks for letting us know about NCOT....
@Lab, it's been nearly a year since NCOT has posted. Some time ago IPoop said she was posting a little at Reddit. I do wish she would come back....
I didn't say the Maalox was to replace your PPI, you said the dr added it. Maalox can help with irritation to an extent. it's up to you to decide if you want to try it or not. If you are not...
I don't normally post in this forum, however, I saw your post & wanted to respond. I am sorry to hear about your Dad. Hospice is also there for the family too. Perhaps you should get in to see your...
Minnie, you said your gi has recommended Maalox 3 times a day, this was just a few days ago. I would give the Maalox a good trial before doing anything else. Searching on Dr. Google will drive your...
I've more than my fair share of scopes after 21 years with crohns. I have never had any issues after a scope & hope that it continues. One thing I've learned here at HW, everyone has their own...
Always good to hear improvement. Just a thought, have you tried any honey for the throat? The weight gain is temporary, keep this in mind, same with being on edge. Remission is the goal, once you are...
@poopydoop, my long standing gi (whom I trust) says a scope will not cause a flare. I have never had a flare after one either. The first 2 years after being dx'd I was scoped every 6 months. The prep...
@Wayne, yes there are several on Xeljanz & doing very well & are in remission without side effects. Please don't let one post turn you upside down in your thinking. You can scroll through several...
Cordelia, I have seen some instances in this forum that it took several years for crohns to manifest itself to be picked up for a clear & precise diagnosis by way of the standard testing. I would...
I have not seen anyone on Rinvog complain about this. I don't understand why you were put on an antibiotic, that makes no sense. I've had it & always was put on PPIs, never an antibiotic. You've been...
Back when the chronic pain forum was active we had members on Linzess caused by taking pain medication. I never read any of them drinking above normal amounts of liquids or drinking warm water. I...
Sorry to hear about the blood, is this something new? Perhaps give your dr a call or send a message over your patient portal. How are your other symptoms?...
Minnie, back in June in the crohns forum you were having problems with constipation. If you got it under control back then, I would try to remember what you did to take care of it. How is the...
Great report, hopefully this will put your mind at ease somewhat. I know it's hard at times because we tend to blame so many things on crohns. Just remember, sometimes we hit speed bumps. Take care....
Ask your gi to refer you to an ENT for this issue, tinnitus is not within a gi's realm to diagnose or treat....
Did the dr diagnose you with vertigo? I know you were waiting to hear from your dr. Check on rinvog's website for potential side effects, I could not find this listed, perhaps I overlooked it. I...
Hopefully someone will comment on this, it's the weekend so it may be slow. I used the search feature at the top right, typed in rinvog & dizziness & did not find one post....
Chef salads, lettuce gives me the trots, same with Olathe sweet corn from Colorado, we only get it here a few weeks in August, all veggies cooked to nearly mush. No fried foods, I cook most of our...
Wayne you are experiencing the usual side effects of prednisone & for many of us they are not pleasant. It seemed like all I wanted to do was eat, weight gain from hell & a temper to match. Many of...
My gi suggested that I try to find an online support group. He said a good group can be beneficial to some. I waited a bit & joined the crohns forum back in 2003. Boy, talk about an eye opener, lol....
@Clo, Google brings up the most active forums at the top. I just did a search on google, typed in support forums for UC & HW was about midway down the page. I don't think the new people did anything....
PM would be great. Back when chat was available mods in many of the forums had a group chat schedule. At first it worked good, but then new people came in & things got nasty & vulgar. These were...
Glen, sounds like the revision will be a success according to what you wrote in the PCa forum yesterday. Follow their instructions & give things time. Take care....
Clo, back on the 8th you said you had made an appointment with a new urologist that you were seeing that Thursday, what happened? You seem to be on a mix of things, hopefully the stone will pass....
I hope they don't change the format, that would be a huge undertaking. The main thing they are wanting to do is to attract more traffic to HW, via advertising as one example. HW starting going down...
Emails were sporadic, not all mods received one, lol. My understanding is they will be making an announcement across the forums soon. None of us know what changes they have in mind for HW. We will...
According to their website if a person has the side effects you are experiencing contact your dr to rule out a possible infection. Not running a fever is a good sign, minor night sweats most likely...
Astroman, a psychiatrist can prescribe medication if it is needed, a psychologist is talk therapy only....
I've always been told to take my medications at the same time every day as much as possible. It's to keep the serum levels as consistent as possible. Get yourself a routine with your pills & you will...
I am hoping CC got this straightened out. When I was on Remicade my insurance paid the contractual amount agreed upon with the facility. After my deductible was met I paid zero for my infusions. I...
Wayne, there are quite a few members on Xeljanz & doing very well. I hate that you had such a rough time but the good news is you get to take a good medication. Hopefully it will work for you too....
I looked back on your post of June 19, you said after 7 days on Rinvog you saw major improvements with your bowel movements per day & consistency of your stool was improved. I know you were quite...
The treatment for TN varies from person to person & the extent of condition. Some people manage with OTC medicines to some needing surgery. Anticonvulsants can be recommended too. Perhaps you can go...
Patience & above all listen to your body. Your body will let you know when you are doing too much....
Everyone heals differently, I am assuming because you work in an office this is why the dr released you to return to work. Most individuals with a one level fusion are off work 6 weeks to allow for...
I have to wonder if your dr was looking at the wrong biopsy report. Do you have a copy of the biopsy report, if not I would get a copy. I would then discuss this with the dr. Something is not right....
Clo, one thing I want to pass on to you is, back when I passed a kidney stone (something I hope to never experience again), my gi & gp told me not to take any calcium supplements. People that get the...
Sleep can be difficult for many people. Look at the age of your mattress, perhaps trying a new mattress topper may help. I cannot sleep on anything soft, I need a firm mattress. Some people take...
beatUC, enough of your snarky comments, this type of behavior puts you at risk of being banned from HW....
Sara, if you decide to try this medication be prepared for it to make you somewhat loopy, no driving a vehicle. I have been given it several times while in the hospital & it just knocks me out. I am...
Ribbon, it's frustrating having to wait for answers. After how they handled your situation while on Humira I understand your concerns, you are not over reacting. The only thing I can suggest is,...
Anyone that wants to follow Pravda go to his website or any of the other sites that he participates on. All you have to do is a net search, how hard is that....
I don't think we have anyone here that is on Rinvog. There are quite a few on it in the UC forum & they are very happy with their response. In your prior posts you say you have UC, has this changed?...
I looked in the archives & could not find any posts. I have looked around in the larger medical websites & found nothing that lists Entyvio as a medication to avoid with these injections. I suggest...
Ribbon, let us know what you hear back from the drs. When I was on Remicade they had to increase the dose & move the infusions closer together. Take care....