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ALI9

HealingWell Forum
>
Member Profile
Display Name
ALI9
Profile Created
1/15/2008 5:30 PM
Last Seen
6/5/2009 9:38 AM
Total Posts
95

Last 50 Posts

Adhesion or scar tissue/inflammation?

Camjames , I feel for you I to have been experiencing this they really dont like to talk scar tissuse, But the obstructions are killing. I watch what i eat i usaually know but some times it is...

6/3/2009 10:00 AM

Crohn's Disease
Crohn's and my story

Thank you for reminding us to stay positive even when things are crazy!!!!!!!!...

8/27/2008 5:28 PM

Crohn's Disease
Bloating and Crohns

I can relate to your bloating I just came out of a very short remission and I have been so bloated and nfeeling like I also am 9 months pregnant. They did a CT Scan and told me that I had fluid...

7/31/2008 6:12 PM

Crohn's Disease
Finding The "Good" in Those Days That May Help Us .......Or WILL Help US

WoW what a thread !!!! The good in my days are my Husband and son for their understanding every day is not always easy and for my wonderful Friends who are just as understanding. Thank God for all of...

7/31/2008 6:03 PM

Crohn's Disease
Staples removed today

Glad to hear that you are doing well, remember to rest when your body tells you to. My sons name is Micheal :)...

5/10/2008 12:39 PM

Crohn's Disease
TPN update

I was on TPN all last summer it takes a while to get built back up, it will come. Can you eat along with it????...

5/10/2008 12:28 PM

Crohn's Disease
URGENT help, please!

I agree I think you should go and be checked out....

4/28/2008 5:53 PM

Crohn's Disease
CrohnsDaddy

Thanks for the reply about the serology test, I was just curious I dont ever remember having one done. Has it been around awhile???...

4/28/2008 5:49 PM

Crohn's Disease
Serology 7 test

Do you need to have active disease for this test???...

4/27/2008 7:12 PM

Crohn's Disease
Remission not

Kay, I too are very sorry to hear your news and my support goes out to you. But really sometimes dont you just want to SCREAM LIFE REALLY SUCKS IN OUR WORLD!!!!!...

4/24/2008 7:07 PM

Crohn's Disease
It's a shame.

I too was on humira for a short time and had an allergic reaction to it and stopped. I went for a colonoscopy a couple months later, thinking I was going to have to have surgery for I had tried...

4/24/2008 7:02 PM

Crohn's Disease
giving up on sleep for tonight

Sorry to hear about your sleeping problems it really sucks !!!!!! I dont sleep with out taking something either and sometimes nothing works. I take muscle relaxers (2) Soma 350mg, Temazepam 30mg or...

4/12/2008 8:28 PM

Crohn's Disease
Difficulty passing stools/constipation/Stricture.....

Hi Julie I to have constipation and very narrow stools, My Gi told me to take miralax 2x daily and to add fiber to my diet.Being constipated is not something I ever thought I would have to worry...

4/12/2008 2:13 PM

Crohn's Disease
surgery

I had this surgery back in 1992 and the walking is very important along with the breathing. Also use a pillow when you cough it helps so much even with walking it helps. Good luck...

4/11/2008 7:51 PM

Crohn's Disease
surgery

I had this surgery back in 1992 and the walking is very important along with the breathing. Also use a pillow when you cough it helps so much even with walking it helps. Good luck...

4/11/2008 7:51 PM

Crohn's Disease
Gonna have surgery. Really scared!

You have had a rough time sorry to hear this, Good luck with your surgery', and you will also be in my prayers. Do you trust your surgeon??? If so it will be ok and you know to take it slow and as...

4/11/2008 7:40 PM

Crohn's Disease
mrsa infection

I have had the MRSA infection and the doctors said that being on remicade gave me more of a risk. Ihave had it a total of 4 x's since last may. So yes inform your doctor....

4/11/2008 5:15 PM

Crohn's Disease
Just had a breakdown with my "bosses" OY !

I am the same way I do my Job but not as upbeat as normal, I get very quiet when I dont feel well. I agree I dont think they will think less of you for crying it is a natural response, and most...

4/11/2008 2:42 PM

Crohn's Disease
10 years younger on tlc, right now

TLC in Wisconsin also, I watched it she looked good as usual when they got done i say good for her !!!...

4/9/2008 8:01 PM

Crohn's Disease
Crazy Question! Does anyone have a fun cake receipe for a Gastro Doc?

This is too funny...

4/8/2008 7:06 PM

Crohn's Disease
Oral Crohn's anyone?

I have been told by a cancer survior that you swish around malox in your mouth it will help with the sores, kinda like swish and swallow...

4/9/2008 1:03 AM

Crohn's Disease
Man, this sucks.

I took Humira also and became constipated, peoplw would say oh well thats good your not going !!!!!!!!!!!!! little do they know its not that you want the dig D but when you are use to going 8 or more...

4/7/2008 3:40 PM

Crohn's Disease
Nerve damage due to low B-12 levels?

I Know am am so bad about remembering to get them when I am at the doctors office, I was better when I could give them to myself. I had to qiut in 2003 after I lost so much wieght and had a hard time...

4/5/2008 11:11 PM

Crohn's Disease
Prednisone

When I first was diagnosed in 1987 60 mg was my initial dose for a long time and every time I tried to wheen off I couldnt. I experienced the moon face and moodiness, weight gain (which is nothing...

4/5/2008 11:04 PM

Crohn's Disease
B 12 patch

I found out about it looking up a lab test, thought it was interesting and just wanted to know if anyone has ever tried it. It dose seem expensive compared to B-12 shots. Dose anyone remember giving...

4/5/2008 10:48 PM

Crohn's Disease
Immodium Users

I always carry them with me especially when I travel, If I have a feeling I take one to stop what could be a disaster and if you can believe it my GI wouldnt give me any lomotil because it could be...

4/4/2008 11:30 PM

Crohn's Disease
Hii....

Welcome to the forum and I have to agree u are very young and I think when you are young for some reason are better handled, maybe you are busy with other things and that helps. I have found as I get...

4/4/2008 11:22 PM

Crohn's Disease
B 12 patch

Has anyone tried the b12 Patch and if so how dose it work????...

4/4/2008 10:56 PM

Crohn's Disease
happiness for me

That Is GREAT!!!!!!!!!!! And Oh what a feeling........................

4/4/2008 10:41 PM

Crohn's Disease
Potasium problems

Yes I have had the infusions and believe it or not my levels didnt go up the first two times now that is strange !!!!! I couldnt take the leg cramps and discomfort and my heart is always racing but...

4/4/2008 10:39 PM

Crohn's Disease
Potasium problems

I am not anaemic my hemoglobin runs around 11-12 but my red count is usually on the low side 3.2-3.4. My sodium is a 138 low normal, The internist belives that it is an absorbtion problem we just...

4/4/2008 10:25 PM

Crohn's Disease
Newbie here.....

Welcome, You will find his site very helpful in many ways,dealing with Insurance companys can be so frustrating. I had a hard time a few years ago with them paying for remicade, I ended up having a...

4/4/2008 10:00 PM

Crohn's Disease
Potasium problems

Never had anything with Iron...

4/4/2008 6:46 PM

Crohn's Disease
Potasium problems

I was wondering if anybody has a problem absorbing potasium, for the last 6 months or so mine keeps dropping. I dont have the big D problem as much actu.ally i cant go. I started taking pills but...

4/4/2008 4:46 PM

Crohn's Disease
The ultimate No

I did the ultimate no....I was hungry for popcorn and feeling pretty good so I ate it /community/emoticons/sad.gif oh boy I was so constipated and bloated I looked as though I was ready to deliver a...

4/3/2008 7:38 PM

Crohn's Disease
Update on my ER visit

Zanne, Glad to hear things are moving. Sorry to hear about the E.R visit, I remember years ago it wasnt like this at all. now it seems as though they dont want to take care of another D.r's problems....

4/3/2008 7:05 PM

Crohn's Disease
Addiction

I think we are all addicted !!!! Its so good to know we are not alone.....................

4/3/2008 5:13 PM

Crohn's Disease
Anyone have hyperthyroidism

I have actually had all the ths and t3,t4 levels done and everything keeps comming back a normal low. But i have all the symptoms of overactive thyroid tremors,rapid heart rate which i take cardizam...

4/3/2008 5:12 PM

Crohn's Disease
Anyone have hyperthyroidism

I am being checked for hyperthyroidism, I have read post on people who have hypothyroidism but dont recall reading to much the otherway????...

4/3/2008 2:45 PM

Crohn's Disease
Experiences with side effects after Remicade infusion?

I would get very tired and just not well feeling the first 4 days, cramps, no appetite. Then I would feel some better until around 2wks before the next infusion....

4/2/2008 5:36 PM

Crohn's Disease
Prednisone and hair growth

I wish mine would go away !!!!!!!!!!!!!!!...

4/1/2008 2:58 PM

Crohn's Disease
AGONIZING CRAMPS- HELP NEEDED

Glad to hear everything is going to ok. Something to try for pain is a heating pad of some sort, that helps me with some of the pain....

3/31/2008 7:40 PM

Crohn's Disease
Eye Problems and Hip Pain, Feel like Im 100 years old.

I dont have the eye problems, but i do have the right hip with lower back pain, all they tell me is that it is bursituis for the hip and my crohns contributing to the lower back pain. Sometimes my...

3/30/2008 2:38 PM

Crohn's Disease
MOVI PREP

I know that i couldnt do it agian for awhile, I also have to take a potasium that you drink and I am having a very hard time getting them down twice a day. I also liked that is wasnt a large...

3/30/2008 8:19 AM

Crohn's Disease
MOVI PREP

Well i survived the new prep for colonoscopys it wasnt bad at all. It was much better than the gallon of golyghlty. THe scope came out good it showed no imflamation of the colon, but my CRP came back...

3/29/2008 6:13 PM

Crohn's Disease
Insensitivity toward under-weight people

I find this all the time, people wondering or assumming that I have anorexia. I just reply also, do you want to trade bodies for a week??????...

3/8/2008 8:54 PM

Crohn's Disease
I think my friend with IBD is noncompliant...

Sometimes i feel as though my family and friends get tired of listening to me so i keep things to myself, I have a good friend that has learned to read between the lines and she will tell me I need...

3/1/2008 4:47 PM

Crohn's Disease
If you could eat anything without consequences what would it be?

Popcorn, nuts, citrus friuts,most vegies and tacos and pizza !!!!!!!!...

2/29/2008 8:39 PM

Crohn's Disease
Diarrhea now constipation how do you handle this

The same thing happened to me only I just plain stopped going, I called my Gi he told me to take miralax daily for a week. I did this but I stiI ll had days where I wouldnt go at all, I would get...

2/29/2008 6:02 PM

Crohn's Disease
Dark stool?

What do you mean when you say dark??...

2/28/2008 9:04 PM

Crohn's Disease
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