Best of luck with it. I have been on Remicade for about 5 years now and doing great. It was given to me so that my fistula would heal and by the 3rd treatment it closed completely and has not...
Hi All, I know this is slightly off topic, but just wondering have any one of you ladies used the "lady care menopause magnet". It is also supposed to relieve symptoms of IBS. I bought one yesterday...
Hi NDBC, I honestly know what you are going through. I was excatly like you about 4 years with a fistula that just would not close up. I spent all my time wearing pads, and soiling through pads onto...
Hi colly_irl, I am laughing here to myself as I am also from Ireland and "fanny fungus" certainly does not refer to the butt area. Hope you get sorted soon, even if it is a fungus :smile: ...
Hi Ladekat, To be honest I think everyone is different, what works for one person may not work for another e.g. diet etc. I think its all about getting the balance right. I developed crohn's when I...
Hi Ladekat, I have been on Remicade for 5 years now and thank god no side affects. I can understand your worry with your son as he is very young. Has it healed his fistula ?...
Ya I do think Remicade will help. It closed up my wound completely. It will take until about the third infusion before you know if it works (well that's the way it worked for me) I still say give it...
Hi exit 4, I had continous fistulas in my anal area for about a year. They never really healed and to be honest by butt was very very sore. I went on Remicade and I can honestly say it changed my...
I always have a taste of metal after Remicade. It usually lasts the whole day and im fine the next day. It's not a nice taste but I can put up with it when I think of the positive things I am getting...
I had a fistulotomy about 3 years ago. It never really healed to be honest. Had a lot of drainage and blood etc. Then I was put on Remicade which was a miracle for me. After the 3rd. infusion my...
Mine is called after Roy Keane...... ex man. united soccer player and also played for Ireland and my Husband and 3 sons are fans....
Well I had my iron infusion. No side affects, but my god my veins....... eventually after the 4th attempt they managed to get it to stay in. Tks for all your replies. Very much appreciated :smile:...
Thanks for that J_web. It will be a miracle if they get a vein on first go ! ! Good to hear that its not as long as the Remicade....
Hi all, Just a quick question. I am going for my first iron infusion to-morrow. I have to get it over 4 afternoons (maintenance dose apparently). Just wondering will there be any side affects from...
I live in Ireland, and they set up clinics. The first people to get the H1N1 are the high risk groups i.e. people with long term illness, and also pregnant women. They will then go on to give it to...
I got mine yesterday and all seems fine as regards side effects etc. They did say I may have to get a second injection in about 2 to 3 weeks, but will let me know....
I was on holdiays recently in France with my husband. I needed to go really badly, so the nearest place to me was a gas station. I could see the toilet but the stupid woman would not give me the key...
Hi Kann, I too have peri anal crohn's and I get a B12 injection every month. Recently though my hemoglobin levels have dropped so my GI is starting me on Iron infusions. I will be getting them when I...
Hi Carmen, I have been taking codeine for at least 30 years 30mg twice daily. I'm on it so long now that I don't think it would be safe to come off it. I have to take it for diarrah (sp !) Have you...
I have a rash on by behind and its very very itchy. I'm wondering is this thrush. Dont have it in my front area, and am not on antibotic. I also think I may have a fissure. Is this a crack in the...
Hi bachi, I had a bowel resection done also and went on to have 3 healthy boys. So ya it can be done. Best of luck /community/emoticons/smile.gif ...
Thank's Gail for such a quick reply. You're always at hand when needed. God Bless...
Just wondering if any of ye get the flu shot. In light of the up surge in swine flu at the moment I was wondering if it was worth getting the shot. I know that the vacine is not available here in...
Hi dancingwithcrohns, I know exactly what you are going through. I had an abcess like that and it would not stop draining. Very uncomfortable. I found wearing pads helped , and also kept staining...
Hi Alana, I have crohn's for 30 years. I had a bowel resection about 20 years ago. I only started having fistulas about 3 years ago. To be honest when they did clear up I asked my doctor to take me...
Hi there, I'm due my next infusion on 21st. September, but I will be on holidays on that date. So I have scheduled for the 14th. (week early) Maybe you could do this. I don't think it will make much...
Hi Alana, I had fistuals just like your son. I was put on every sort of medication, until finally went on Remicade. After about the 3rd. Infusion my fistula healed up and thank god has never...
Hi Stasi, So sorry to hear about your diagnosis. I am thinking about you and will say a special prayer for you. God Bless and try and stay strong....
Hi Aimee, I know what you are going through. That stuff is gross ! ! What I usually do is I mix a small bit of sprite (7-up) with each jug full and it kinda takes that awful taste away. Have been...
Thank you gail. You are truly an amazing woman. God Bless /community/emoticons/smile.gif ...
Gail, I too am 51 and I think a lot of hormones are jumping around our bodies at this age, i.e. the dreaded menopause, so that alone accounts for mood swings and feeling down as well as dealing with...
Hi Nanners, I could'nt agree with you more. I too have crohn's for the last 30 years, and like you each day is a struggle. I very seldom wake up feeling 100% my joints ache. I'm like an old engine...
Hi Katzzz, Yea I am one of the social drinkers with crohn's. My drink is bacardi and coke. Don't drink that often, but I know what you are saying about[b] being on vacation. Im currently on remicade...
I suffered with various perinal abcesses and fistulas. I was put on Flagyl and all sorts of other meds. The only thing that cleared it up for me once and for all was Remicade. I have been getting...
I had one of these drains about 2 years ago. I found it very un-comfortable. I was in hospital at the time and the dr came round each day and cut a little piece of it off. It eventually came away...
Thanks for that nanners. I suppose its just one more thing that comes with this disease unfortunately....
Hi All, Have'nt posted here in a long time. Just wondering have any of ye had problems with teeth while on Remicade. I have been on it for about 2 years, but have found that my teeth seem to be...
Hi Conor, glad you got diagnosed. Its very frustrating. I was going for years not knowing what was wrong with me, they told me I had an ulcer at one stage. To be honest I was beginning to think , or...
Best of luck Conor. Will be thinking of you /community/emoticons/smile.gif ...
I had several peri-anal abcesses, but since I started on Remicade about 3 years ago they have not returned. Don't know if you have tried this treatment. Maybe worth mentioning to your doc. Good luck...
Hi Lucky 1. I've been getting B12 injections for the past 15 years or so. They definately help with fatigue and tiredness. I had a bowel resection done so therefore I don't absorb a lot of nutrients,...
Oh you poor thing. No it never happened to me either. Hope you feel better soon....
Sorry lucky 1 meant to say I am on Pentast 500mg 4 times daily, also codeine for diarhea, and Vitamin B12 injections once a month....
Hi Lucky 1, The infusion takes about 2 hours to go in, but maybe for your first time they might keep you in overnight to monitor you. (they did this with me) Basically you can go about your day to...
Hi Lucky 1. I have been on Inflixmab (also known as Remicade) for the past 3 years with no side affects. I had re-curring peranal abcesses and since I started Inflaxmab they have stayed away. Now...
My aunt also had crohns, and my nephew had a bowel problem when he was born. He is fine now though. So maybe im thinking in my case it runs in families, like aunt to nephew or niece, if you get what...
Well done. Delighted that you are feeling well and are able to have some fun time with your son. Enjoy what you have to day, and as I always say "live in the now". Hope your one day of being pain...
Hi Karen, Im also from Ireland and find this site amazing. Its better than going to the doctor sometimes. Im sure your son will be fine, but I do feel for you. It is an awful worry. I have crohns for...
Hi sugarfoot. Im on B12 injections for the past 20 years (one a month). I have tried to give them to myself but could not manage it. My public health nurse now gives them to me and it does'nt cost...
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