When I have upper-stomach pain, especially right after a meal - it usually means I have a little bit of a bacterial imbalance. It happens after I eat out, usually. I blame weird out-of-my-house germs...
I'm from the crohn's forum, but found this post when digging for things on slippery elm. I harvest my own slippery elm this year - our property here in the rural midwest has a very healthy population...
I was always under anesthesia when setons were put in, so don't stress on it the way you would getting one drained in the office. Recovery is miserable, but I always found that staying on my back for...
I've been through all the meds, Rango. None of them like me. Glad to hear the SCD is working for a couple of folks. I'm afraid with two kids I wouldn't be able to stick to it, though it might be...
Does anyone have a success story for maintaining remission without using pharmaceuticals? I am disease free (post surgery) and would like to remain so, but without pills. Herbal regimens, meditation...
Posting for my brother who has Avascular Necrosis, Fibromialga, and RA... Dx'd 2012 Methotrexate for the past year, up to 20mg (smaller doses were ineffective/wore off) Liver enzymes last week were...
http://www.flickr.com/photos/ravenscroftcollective/sets/72157625801506450/ Here's a short flicker photo set of my post-stoma journey thus far....
I have an ileostomy, and I've started to use Immodium all the time. For me, it slows or stops the output depending on how much I have eaten and my nerves. Each dose seems to last 4 hours or so, then...
Hello all. I am having difficulty with my stoma. I use convex wafers because my stoma has always put on occasional disappearing acts, but it's never been a real problem. These last couple weeks,...
Thanks blueglass. I don't think I'm spooked enough to call in the cavalry yet (plus I live in the boondocks, so a trip to the city to my docs is a major ordeal, lol). The pain has subsided enough...
I ordered samples from every company that would send me some, which turns out to be a LOT. The horror that I was sent home from the hospital with was clear, crunchy, and I dread to even think about...
I'm 14 months post total proctocolectomy with rectum removal and the sewing shut of the anus. I have had little or no issues with it thus far. The rectum was where my crohn's was the most severe, so...
Just took a really hot bath and the pain was gone almost immediately. As the water cooled, the pain returned. No more indecision, though - this is def not stomach flu or something. I knew people said...
Happy Sunday, all. I awoke this morning with the most intense abdominal pain I have ever had, all localized in the general area of my stoma and slightly to the right, but deep. 2 hours of cramping...
If the pain has increased, and the drainage has increased with blood, I would be calling the doctor. I had a peri-anal abscess before my ileostomy, and now have been sewn shutt too... so i'm...
I think I must be having a similar problem... I'm only 1 month out of surgery, but I've gone through a mountain of "free samples". Among those free samples, the only pouches that worked really well...
People need access to this. Publish it. Please. It has me in tears. I hope you don't mind if I paste a link to this from my facebook? I'd love for some of my family and friends to be able to read...
I was cath'd for my entire post-op time in the hospital (about 12 days), and then I self-cath'd at home for about another 2 weeks. Then one day, I just had to pee so bad I sat down on the toilet, and...
So... I got out my edgepark catalog last week and sent away for every free sample I could find. I am now ovewhelmed. I have called my home health nurse in a panic. Bless her heart, she is coming...
Thanks for the replies, guys. I see my doc on friday now, so we'll see what he says. I'll keep my fingers crossed that all is as it should be. Meanwhile, I think naming my stoma is a fabulous idea....
I'm not on any antibiotics... but that's a very good point. I haven't been running fevers, but that doesn't mean that something couldn't be amiss down yonder.... uhg. I do so hate the flagyl. But,...
Greetings! I'm a regular from the crohnie board, but just had my rectum, colon, and terminal ileum removed, so I'm officially an ostomate now, I guess. 'Ello Mates. My question is for others who have...
I've had a rubber-band type of seton before, which I think is what it sounds like you're getting... After several perianal abscess and fistula surgeries, the number one thing is - Make sure your...
I appreciate the concern and suggestions, guys - thank you. I have nothing but the worms to thank for the solid stools. Unfortunately, not enough is known about this therapy to really give me any...
After 5+ years of battling this disease, I finally have the diarrhea under control. My stools are formed and solid enough, and usually pass in 2 to 3 trips to the lou in the morning. That's enough...
There's a link that I started "I did it. The hookworms are in" or something like that. If I knew how to post links I would, but that's beyond my techno-savvy abilities. Lol. If you do a forum search...
The only "known" harmful things I need to avoid are inhaled anesthetics... even the nitrus or whatever it is in the cans of whipped cream is a "no-no"... but I can have the whipped cream in the tub,...
The "clinic in Mexico" is probably the same company I ordered mine from, and you don't have to go to Mexico anymore. They mail them to your house. Sorry for the lack of updates, guys. I get really...
PV, I'd like to sound optimistic and say that you'll be able to get a straight answer on the IBS vs. Crohn's riddle, but in my experience - there's not really any definitive way to tell the...
Wow... that is TOTALLY not what I expected. I have never been asked things even remotely like this. It truly is a "quality of life" survey - very interesting. Thanks for that Vitak....
Ok... I just went on a wild goose chase there. The NCBI created the Inflammatory Bowel Disease Questionnaire (IBDQ), but I cannot find access to it anywhere without paying $150 and pretending I'm a...
hmmm. not sure if the ncbi was the one mentioned or not, but thanks for the link....
I remember a post a few months back (I think) where someone mentioned a really useful symptom log...maybe it was Nanners? I thought I bookmarked the thread, but not so, and the "search" option is...
((hugs)) Sending good thoughts your way, Ides....
I don't have any experience with Lortab specifically, but I have found that most opiate pain meds give me itchy hands and feet, and itchy earlobes for some reason. I have found that regular...
I am just now going through the nonsense of getting into a "pain management" clinic, so I thought I'd chime in just to warn you - it seems to take an unreasonably long time to go through this...
Hopefully you found some answers on that fistula/seton thread... I'm so sorry you're going through this. I had a "complicated horseshoe abscess" for almost a year and 5 surgeries before I got a doc...
No offense taken, Mag - I completely understand and respect where your doc is coming from. The fact that he dug enough to find out what he did I find very impressive. I wish he was my GI! We'll piece...
If you got scoped in December and everything was fine, but then you missed the Humira in January and that's when everything "started to change", then don't wait too long for your doc to order a scope...
Of course it "could" all be in your head, but I seriously doubt it. I'm always told everything is "normal" until I demand a scope because I know better. My bloodwork, CT's, MRI's - all can be peachy...
You hit the nail on the head, Nanners. Many thanks, as usual! :-)...
Good day, all. I was just wondering if anyone had a good online source that helps them to decode their bloodwork? I found a few links discussing ESR's and CRP's as they relate to crohn's here on the...
When I had a contraption like that I found that the easiest thing to do after a series of bowel movements was to squat (the hardest part for me) so that I could just wash my butt under the tub...
I actually used to look forward to my Remicade infusions. It was 4 or 5 hours where I was not in charge, I guess. I'd check in. Eventually get taken back to the infusion wings... usually had my own...
You're not alone, Frog! I had a drain that almost put me over the edge, but it does get better! I had 3 different kinds of setons in and around and through my rectum/anus... the tube kind, the string...
If you've been off of the prednisone for 3 months... if I were you I would be looking for another culprit. I know it's strong stuff, believe me - prednisone can linger for what seems like forever......
Were you diagnosed from a biopsy from your scope or by visual ID of inflammation, etc? A biopsy is hard to argue with, from my understanding. Anything short of a diagnoses from a positive biopsy......
You're so lucky to have a GI that is willing to run with this, Mag! Most medical professionals react with disgust, even though most of them couldn't tell you a hookworm from a hole in the ground. I...
I chose combination hookworm and whipworm therapy through AutoImmune Therapies. $3900, guaranteed with free "refills" in case of die off (ie, if I accidentally kill them off somehow). The guarantee...
Njmom, Without worms, good days on prednisone still required pain pills, imodium, and still involved a lot of fatigue and nausea. WITH WORMS, good days involve prednisone until I'm tapered off, but...