I agree with the other posts just wanted to add with asparagas and similar stringy friuts and veges can also cause blockages if you eat too much. Not too long after I had my ileostomy done I ate a...
I agree with ddd45, dont tell them anything, unless asked because its none of anyones business, and I have flown a few times since having my ileostomy as well and nothing has ever been said and its...
Hi Lolly, I looked into the Koch Pouch as well, and I live in Australia, my surgeon said there were no surgeons in Australia that do it anymore due to the high failure rate. I have an ileostomy and I...
Hi there,It is a nervous time for you, I'm sure we all felt the same, I know I did, but I can tell you that since my ileostomy and proctocolectomy was done almost 3 years ago now I have never felt...
I agree with blueglass, you need more in your diet and also need a second opinion and surely your primary doctor can't deny you that. If he/she does then go to another one that will give you a...
I also live in the tropics in Australia and have had my ileostomy for 3 years now and I have never had a problem with it during the hot months. I always have carried an emergency kit in my handbag in...
I have never heard of anyone using deodorants under the wafer, I personally would think it would compromise the adhesive ability of the wafer. So I wouldn't advise you do that, it could also irritate...
Hi Mystique,Most will use tic tacs whether its peppermint or spearmint doesn't matter and I have used them before and personally didn't find it helped much but others swear by them so I guess its...
P.S I mean't to write micro fibre cloth...
I wipe my pouch with a micro cloth and that works really well. But same as Blueglass I'm unsure whether you mean the pouch or are u taking it off and getting your stoma wet? Thats ok to do too though...
Thats great news! So nice to hear when people are doing well, but also good to know we are all here for each other in times of need. All the best for continuing good health Doreen...
I shower with it on mostly but on occasion take the chance that I won't poop all over myself and shower without it on and it is heaven. Such a nice feeling having the pouch off for that short time,...
My thoughts are with Rosemary, hope she has a speedy recovery. Please pass on my wishes...
Hi Summer Thanks for your very kind words, your right that we probably never really get past that self esteem issue and you never know what may be around the corner for me I guess. I live in hope...
Thanks for your replies everyone. I do however feel really grateful that my ileostomy saved my life and I do know there are people worse off than me, I was hopeful to be off all meds after surgery...
I have to wonder some days, one minute I feel so blessed to have my stoma as it did save my life and then on other days I am so sad that the possibility of a JPouch will never be possible for me....
Wow that is very soon after your surgery to be having problems like that. I'm with Rosemary, I think they need to check into it and make sure theres no narrowing or adhesions happening. I am the same...
I was diagnosed with crohns/colitis at the age of 25 I am now 49 and have had a horrible time with it over the years. I have a sister that has UC and now my eldest daughter who is 30 is having lots...
Mine was done Lap but I have had problems with adhesions from the start. Have had surgery once for adhesions and soon after began twisting up again really badly whenever I put any kind of pressure on...
Correction its actually just gone 3 years since my ileostomy and proctocolectomy was done...
I have struggled with Crohns/ Colitis for the best part of 24 years before having my ileostomy done over 2 years ago now, my surgery was done as an emergency as they didn't think I was going to...
Hi Rosemary, So sorry your still having lots of problems, I really hope you get things sorted soon as you have been through enough already. I don't really know anything about gastroparesis but I sure...
Yep just like everyone said there is nothing you can't do with a bag. I love my life now with it and do as much as I can unfortunately for me I was diagnosed with RA and suffer terribly with...
Great to hear your doing well. So happy for you Take Care Doreen...
Hi Nice Cup of Tea,I agree with what the others are saying. I have had my ileostomy now for just over 2 years and I couldn't be happier. but it wasn't an easy road, I also have Crohns/Colitis my...
yep thats very surprising heatmiser, I always have antibiotic drops along with the prednisone drops. Good luck hope your better soon...
I totally understand how your feeling as I was diagnosed with crohns/colitis almost 24 years ago now and have had several surgeries with my last major surgery done almost 3 years ago and now have an...
Hi heatmiser,I feel your pain, I also get bouts of iritis and its nasty, I live in Australia and over here I'm pretty sure an optometrist can't prescribe meds like that, but I'm happy to hear you...
Glad to hear it Rosemary :-)...
I sure hope it was a one of for you too Rosemary, you sure don't need to start having pelvic pain on top of everything else. I often wonder when or if I will ever have any time in my life where I...
Rosemary I am in Queensland on the sunshine coast, which is a little way from the Barrier Reef but I have been there a few times and it sure is beautiful. Best wishes for you and Gilda on feeling...
Hi Jackie, I agree with villager, you will feel emotional and its a good idea to take your time with it. I have permanent ileostomy and had proctocolectomy as well and still have adhesion problems...
Oh Dear Rosemary, you have had it tough as well, sorry to hear all the stuff ups you have endured at the hands of someone we are supposed to trust, our surgeons. I am lucky I am extremely happy with...
Hi Gilda and Rosemary, My stoma is nice and small only 20mm width and no more than half an inch use salts flexible wafers and find them to be excellent. I understand with the weight thing Rosemary as...
Hey Gilda,You sound as down as me at the moment, today I saw my doc and had a total meltdown and couldn't stop crying so he got me in to see a psychologist tomorrow since I have so many issues that...
If you are itching under the flange it could also be that you may have some leakage under the base plate. I know mine itches a lot if some poop gets under the plate, the rashes also would be an...
Rosemary when I say open it was a right hemicolectomy and the cut was about the same as if your appendix were removed, so its a cut about 4 inches long and on the right side only there was no cut...
Forgot to say Gilda that for me it depends on what I eat as to how often I have to empty, I mostly have to empty around about 3 times a day but I also take some immodium to slow it down especially if...
Gilda I completely understand the way you are feeling with the bag, I still feel that way at times too as it has not quite been 3 years since my surgery was done but its so much better than they way...
Hey Rosemary I am in Australia and my surgeon Dr David Clark in Brisbane takes care of my adhesion surgeries. I am annoyed that I wasn't informed about the problems with adhesions, it is extremely...
Thanks guys, all is good today, no bleeding, seems like the stomas are a lot tougher than we think. Still a bit stingy but nothing too bad. Take care Doreen...
I agree with Rosemary, I think you need to be checked for adhesions, I have had adhesion surgery and have more adhesions that will need fixing in the near future as I too am on pain killers on a...
Hey All. I was changing my appliance tonight and when I use sure seals I cut them down in size and once I got it in place I wanted a little bit more cut off so I snipped away and slipped with the...
Oh Jackie, I feel your pain and completely understand where your coming from. Like you I too hate the prospect of more surgeries, I have had my butt sewn up so theres no chance for JPouch for me but...
Good for you! I am happy for you and pleased to see that you are getting on with your life, thats what I love about my ileostomy, it hasn't stopped me from doing anything and I am off on a cruise of...
I had the same experience when I ate a mango, and I love mango's so I was devastated and thought I could never have one again but since then I have eaten just a half a mango and put the rest in the...
I have a permanent ileostomy and have crohns/colitis after my surgery 2 years ago I saw my GI and he said there was no need to see him on a regular basis unless I had symptoms again, which so far so...
Hi Ju330, I was freaked out when I first saw my stoma but then my surgery was done as an emergency due to crohns/colitis and although I knew I was going to wake up with a stoma it was still pretty...
I was nervous at first about wearing tighter fitting clothes so I went for the elastic wasted pants, they were very comfortable, but a few months after surgery I was happy to wear my firmer fitting...
Good for you! You will be amazed at how much better you will feel and you have every right to be nervous, every one of us were before our surgery. I know I was petrified but I am forever grateful at...