Hey Everyone! Long time no posting. I did the 'got a little better and didn't post as much' thing. I'm currently on Entyvio (from the Millenium trial) and Azathioprine. Maintaining. Acting career is...
Thanks everybody. Like I said, I'll let you know if my GI says anything different than what's been posted, but its good to hear from you. Yeah, all told, my wife and I are happy with the Cimzia, it's...
Yeah, the reason I posted here was because on the Cimzia warning, they mention nervous system side effects and specifically mention the nerves of the eyes. I've had some luck with cimzia, maintaining...
I ended up marrying someone who knew about my Crohn's long before we were a romantic item, but it never seemed to hinder it. I've been pretty sick during our marriage, and we just celebrated 5 years....
I am having some eye styes in my left eye, and they started a few months ago. Has anyone else gotten these? It's listed under the nervous system warnings with Cimzia, so I'll be calling my doctor...
Yeah, cramps are usually a mineral deficiency. That's a lot of water. I would drink when you are thirsty, not slamming two gallons of water a day. That's a hellavu lot of work on your kidneys....
It's so tricky! Spam has gotten more and more sophisticated and I didn't want to sound like I was hocking chia. "Hey guys, I just found the AMAZING prodcut (sic) and it's TOTALLY CURED ME OF...
Humira is part of that second generation biologic, based on human genes instead of mouse genes (like Remicade). I'm on Cimzia, also the second generation, and have had really great results (in fact,...
Hey every body, I'm one of those "got well, stopped loggingon to the forum" people, but I thought of everybody this week. I've been doing really well on Cimzia, back to normal on blood, toxicology,...
I had great experience with Remicade. Wish it had continued to work for me, but due to insurance issues, I jumped off and on it and it stopped working for me. Good luck to you, sir. I know you care...
Hey guys! Long time no post. But I had a quick question. For any of you on Cimzia (and I'm aware of their aid program to get $500 off the meds, leaving something like $1200-$1500 for someone like me...
Brother, I'm so sorry. Suffering is the greatest mystery there is in this world, and Crohn's is about the unluckiest disease to get. Unknown, expensive, debilitating and painful. Emotionally, I'm...
Hey all, it's been awhile since my last post, but I had a question regarding a few symptoms I'm experiencing. 1) Peri-anal fistulas have really started to act up around my anus, and the one on the...
Holy Cow! I've been dealing with this for about four weeks now, and was at my wits end as to what this might be. All my doctors are baffled, and interested in other things. The pain can become so...
Hello Ibusn, That all sounds tough, and all too familiar for me. I was diagnosed with Crohn's in 95 and those sypmtoms are very similar to what I had. It certainly seems likely that some gut problem...
IF you want to make that smoothie high calorie, then I would make yogurt out of half and half, that's got lots of fat in it. And if you can get it locally, or organic, you don't have to worry about...
I know that I use Dr. Mercola's Vitamin B12 spray and my last blood work came out great for that. My doctor said to keep diong whatever I was doing. Having said that, he has a D3 spray as well, and...
That's strange, the dripped yogurt is quite thick for me. I think the reason it is so liquidy is that it is very fresh, and there are no thickening agents added to the batch. Just a guess. Too bad...
Just sounds like the fistula is healing. Pentasa is a 'topical' medication designed to just coat the intestine, so I wouldn't think of it as a fistula healer. Which means the healing is happening...
Thanks aoccc and spooky. I'm VERY excited about this diet, it makes me feel very positive about my future. I'm taking way to many meds right now, and recently have been coming off of hydrocodone...
I think that in the SCD the reason the cheese needs to be aged is because of the lactose, but research is now showing that recent varieties of cows have a protien, casien, that people are showing...
Hey All, It's been awhile, seton implants have improved quality of life DRAMATICALLY. I love it. Anyways, been on SCD for about a week now, used the anagram on purpose so only SCDers would peek. Had...
That's funny, I should have figured the little guy needed a friend. Well, I still am looking forward to it. My wife just finished the bar exam, and that tuesday is her second day of work. I convinced...
Is it strange that I'm looking forward to it? Too much pressure, pain, fluid, discomfort. I've got a knot in my back from sitting and lying down funny. It hasn't been fun. I have a very good surgeon...
I have had a lot of success with 6mp and from what I understand it's been around a long time and it's helped a lot of people. If you are going to have really bad side effects from it, you will know...
I have recently started putting a little baking soda on my tooth brush now each night and morning. That's supposed to help....
I think Swine Flu actually isn't that big of a deal. About a hundred times more people have died this past season of regular flu than swine, so there's some conspiracy people out there saying it's...
Hey Kaiden, One of the best decisions I made was starting counseling when I was severely ill with a big flare up, and it was absolutely wonderful. Get to know yourself, it's an important step in...
I took both meds for a while and all my bloodwork came back fine. You just have to stay on top of it, your liver and your bloodwork will tell you if something is up. These two meds, basically a...
It's all about where you are getting your sushi. If its a good source, don't worry about it. And if you're worried about your gut and immune system, take a probiotic. Those help. I wouldn't worry...
Hello Pink, I have actualyl read the Danish study that started all the controversy over the 6-mp and male fertility debate. The study focused on men who had been taking the drug for at least nine...
Total folder. I guess it makes me feel like I'm in control more. A wad might expand a little and I try to be conservative. Now, with the setons, I definitely have been finishing with a sitz bath, so...
I hear you. I am having a tough time too, just had to call my boss on a sunday night and request two weeks unpaid medical leave of absence. Cramping, fatigue, loss of appetite, it's all hitting me...
Hey p47, One of the things I struggled with is blaming myself for this disease. I didn't eat right, didn't take the right meds, wasn't exercising enough, etc. I was even asked by my father if I was...
My doctor told me that our poo should actually sink to the bottom of the toilet and break apart a little bit, as this means there is fiber in your diet. That's all it sounds like to me. If you're not...
I just started the Brasco broth recipe, the one from his previous book "Restoring your digestive health." It's been an adjustment for me, but basically eating the soup breakfast lunch and dinner for...
Hey dusk, I know the feeling. It's pretty tough to determine whats good and whats not with so many voices out there. I have found though that almost every one responds well to chicken soup and stocks...
Lass, this same thing happened to me and I stopped the flagly and it returned! I would say make sure you KEEP taking the flagyl until it is completely healed. I had to have a seton placed because...
Mag, the platform I got is simply that: a platform that just sits over the toilet. You have to raise the seat and have it just over the commode. It doesn't really instal, it's like a bench that just...
Wolfie, that's exactly what a buddy of mine just said, the whole camping thing. I'm still getting used to it, but I think I'm actually feeling better....
Hey Nanners, They gave me this whole booklet saying how that's not the correct way to do it, that it only partially releaves it. There's a lot of physiology involved, on how all those inner valves...
I did it! I just got my squatting toilet platform in the mail and I am setting it up as I type. I talked to my doctor and he said this was the most natural way to eliminate, and it's a preventative...
You know, in emergencies, I've had to get unbuttoned prestall entry with a small crowd of spectators wondering what is so desperate until the noises of exodus clear out the bathroom. Gotta laugh at...
I was having success with LDN until a fistula halted that (I had to take pain pills which counteract the LDN). But I've researched just like everyone else, and I beleive strongly in the gut flora...
I'm doing the jewish diet thing. I think it's like the SCAD, but they allow certain carbs, and disallow certain meats. I'll keep everyone posted on progress. I've been on a liquid diet today, though...
I definitely know the feeling. Being a male, I feel the pressure to not be so skinny. I fall into the complex of wanting to LOOK good instead of being healthy. It's tough, when you're down on...
Have you heard of the Makers Diet? That's a kosher protocol based on a doc. who cured himself of crohn's using the diet and HSO Probiotics. THere are some people on this forum who have had success...
LDN means low dose naltrexone. There's a lot of buzz about it. And gail, it's an anal fistula....
I hear ya, Zanne, but remember, fistulas end up becoming their own thing after they set in. It'd be like if crohn's caused you to break your ankle, and you went on Remicade. It might control the...
i was on 4.5, so that sounds right. I wonder why she feels 5mg is correct? Does she give any reason?...