Probiotic-thank you for your post....it definitely helped ease my anxiety...I have been looking at the ostomy supplies and wow have they changed in 22 years! ...definitely helpes hearing all of your...
Thanks Poucher! You have definitely given me some hope......
Thanks Poucher! I'm curious, how long is the recovery? Do they cut you open again or do it laparoscopy...do they create a new stoma where the old one was or somewhere different?...wondering how long...
Thanks Eva...I appreciate your response...I'm just trying to wrap my brain around this...thought the jpouch was my "cure"...fortunately I work in health care so my coworkers are quite supportive as...
Hi...I'm 46 and I've had a jpouch for 22 years...originally had UC, dx with Crohns around 2008...chronic pouchitis for at least 17 years...humira worked but I built up antibodies...remicade was great...
Can anyone recommend a Crohns specialist in the Boston area? I've had a jpouch for 22 years and in 2008 I was diagnosed with Crohn's...I have been fighting to keep my pouch as I struggle with chronic...
Hi...I'm a jpoucher with crohns and I've been on xifaxin for the past year for the pouchitis and its helped a great deal....it's nonsystemic so very little gets into the blood stream...also, its...
I went to my derm recently b/c I am having a problem with my pinky finger nail...I was afraid it was psoriasis (I have that on my scalp only) but it turned out it was yeast infection...I had been...
oreos and sugar in general doesn't do anything to me...thank g-d!...I love my sweets!...
I've had a jpouch for 17 years (1992)....I too was originally diagnosed with UC and the biopsy confirmed this after the jpouch procedure....now 17 years later, I've been diagnosed with...
From what I've read, Humira can cause headaches...I've suffered from migraines for years and was nervous about starting humira as a result...I've been lucky though as my headaches have not increased...
I'm a medical social worker... ...
I am one of the unlucky ones that may have had both... I had classic UC diagnosed 1991....I was acutely I'll and lost my entire large intestine in1992...it was at that time I had my J-pouch surgery...
Thanks everyone for your support...this website is a g-dsend!....wishing you all a great weekend :-)...
I've been on humira for 4 months now...took about 3 months for it to really start working so don't give up if you don't feel better right away...I still feel fatigued a day or so after the shots and...
I'm so tired of this illness and all my other autoimmune diseases (psoriasis, graves/hypothyroidism)...I have been dealing with this crap for the last 17 years...I want to wake up just once without...
never heard of that one.......
Forgive me but i don't understand ...didn't your doc order the pain meds? Since when is it the job of a nurse to over ride a docs orders or decide it's not indicated?!?!? I would have reported her......
A TSH of 14.27 is definitely high...I am symptomatic over 4.0...and I get hyperthyrod symptoms when I'm hypothyroid...I get horribly exhausted, anxiety, migraines, tingling in my hands and feet and...
I have TMJ....was diagnosed years ago before the crohns diagnosis but after my UC and pouch placement...I did notice that my TMJ and teeth clenching became worse after my crohn's diagnosis...most...
RA&CD-my rheumy gave me ultram for pain...haven't tried it yet but it's not supposed to make u feel drugged...
I don't grind but I clench my teeth in the middle of the night....I wake up with a throbbing jaw and teeth hurt...it started 2 years ago when I had complications after being sick with my gallbladder...
RA&CD- This is only my experience with it....some people feel better right away with humira...unfortunately, I never respond that quickly to meds...I hope it helps you and you find the relief you are...
I've never tried remicade but I've been on humira for 3 months now...it was a rocky start as I had unbelievable joint pain the first few weeks on the medication, also experienced flu like symtoms the...
This sucks but if it's a choice between my hair or my health I will choose my health....I'm finally feeling better after being sick since November...maybe I'll start looking at wigs...my hair thinned...
Hi ides... I did get tested for lupos about a month ago after reading your postings and others regarding humira induced lupos and all my blood tests (ANA,etc) were normal...I'm also seeing a...
I'm having hair loss from humira now as well...been on it now for 3 months and it is finally working for me...if you lose hair from this med, does anyone know if it eventually stops and grows back...
I started humira 3months ago and I'm finally starting to feel better....the first two months were rough as my body adjusted to the medication....I had increased joint pain, flu symptoms etc....now...
I get joint pain as well even when the crohn's feels quiet... a lot of us here do and it is related to the crohn's...I saw a rheumy who confirmed it but has done nothing for it but give me pain meds...
very powerful and moving! unfortunately I understand all too well...I hope you have supportive people in your life to help you thru the bad times.......
I use culturelle and find it helpful...you can get it at CVS...
Sounds promising....anyone in this study?...any thoughts about it? http://news.prnewswire.com/DisplayReleaseContent.aspx?ACCT=104&STORY=/www/story/06-01-2009/0005036194&EDATE =...
I have the same problem with my ankles...rheumy has been useless!...very frustrating...sorry I'm of no help :-(...
No one has used these meds? I'm thinking of trying one of them for my crohns and pouchitis and was hoping someone else had some experience with them......
Anyone here use alinia or tindamax for crohns or pouchitis?...
I hope it works for you...I've been on humira 8 weeks now and it's finally starting to kick in....hope you find relief sooner.......
I'm not...I'm seven weeks in and I now take 1 shot every other week...still waiting for it to work miracles....good luck!...
Hi Wild_Swan, Yes I do suffer from migraines...not sure if they get worse when I have one though, will have to take notice...thanks for the thoughts....have a good day....debbie...
well I saw the opthamologist today and he said that while he sees the floaters, my eyes look great...no signs of uveitis, no tears or detachments, vessels look good and he noted that my vision is...
My optometrist examined me for uveitis as he knows I have crohn's...he saw no evidence of inflammation and I don't seem to have any of the other symptoms except floaters...but who knows,this is why I...
I have an appointment with an opthamologist on Thursday......
I've been on humira since march 23rd...initially I thought it was helping as I was able to get off cipro and decrease my entocort...it's been a rough 7 weeks as my body adjusts to this med...the...
I really don't know how they could tell if it was the humira...I have an appt. with an opthamologist this week...I don't even know if the humira is helping...I thought it was initially but now I'm...
Normal range according to labs is .5 - 5.0....however in 2007 they recommended that people be treated over 3.0...I personally am very symptomatic over 4.0 with severe anxiety and depression...over...
What do they consider normal? I'm symptomatic with a TSH over 4.0 and normal is supposidly up to 5.0...new guidelines like to see you between 1-3......
You say that you are on Levothyroxine, can I assume you have hypothyroidism?....I can tell you that since I was diagnosed with crohn's in January I have had major problems with my thyroid...my TSH...
Has anyone experienced floaters from humira or changes in vision?...1 week prior to humira I noticed increased floaters and had them checked out by my optomotrist...he said everything was fine and...
I have two thoughts...do you suffer from Gerd?I often get pain in that area as well as nausea...my other thought Is perhaps it's your gallbladder? Just a thought...feel better soon....debbie...
Hi Nana, Just wondering how your grandsons first day home was...hope he is doing well...take care....debbie...
I was diagnosed with UC in 1991 and had the two step Jpouch procedure in 1992, I was 24 at the time...I was acutely ill and never went into remission on the various meds...the surgery went off...