Hi folks I've having problems with joint pains - CT scan showed sacroiliitis but I get really aching elbows and hands as well. I'm having an MRI scan in a couple of weeks time (not sure what this...
Hi - I'm new to the RA forum. I've had joint pain problems on and off for years - mainly hands, wrists, elbows & occasionally knees; both sides but not really swollen just aching and tender if...
How do they test for RA or AS etc? I don't know how it works in the UK for getting referred to see a specialist or at what stage they think it important. I've had these pains on and off for years but...
I absolutely love the Greek islands and Kefalonia is stunning, as is Crete but when I went to Zante earlier this year I forgot about the plumbing systems - you have to put your used loo paper in a...
I've had lower back pain and stiffness for years as well as aching elbows, sometimes so painful I cry with it, but have always put it down to having played lots of sport, riding motorbikes, heavy...
Thanks Gail - I appreciate you replying Do you also take your probiotics and vitamins etc in the morning as well or do these have to be at different times? Penny x...
I know it's probably a very basic question but I'm rubbish at taking any tablets - I am now on Asacol 3 times per day (x800mg) - does it matter if I forget to take the middle one and double up later?...
Hi all I got some great news the other day - I ended up in hospital recently for a query obstruction and a colonoscopy showed that the CD was back which was very upsetting. But....had full range of...
Hi Bev Crohn's is definitely included in the list of conditions for DLA. There's a really good section on the NACC website. I know someone who has got this - mostly care component but if you get DLA...
hi all I got through the test ok - yep the taste wasn't good but managed it and it didn't take long cos I've not too much bowel left (had to get me in quick!!) /community/emoticons/tongue.gif is that...
Should I not eat stuff for a few days other than low residue or isn't that how it works? I've got some Lactulose in my cupboard but I might go to the pharmacy and get a laxative just in case. sorry...
I've read loads about the test itself and am readying myself for the yukky taste of the barium drink for my small bowel follow through test tomorrow. What I don't understand is the appointment letter...
I know it's probably a really basic question but I hope you don't mind me asking anyway - I'm being careful what I eat because I have inflammation/stricture and don't want another stay in hospital...
Hi all I'm waiting to start treatment for flare - probably looking at Remicade but doing blood tests and barium follow through first. So......given I've just been in hospital with blockage (partial -...
following other posts, just wondered if there is an alternative to going to the hospital and ending up on IV fluids when a blockage is happening? mine came on quite quickly last weekend and I coped...
I've just come out of hospital after the same thing - I was feeling 'full' (a bit bloated) and generally lethargic then started having waves of pain/spasms across my upper belly (above belly button)....
Thanks guys - having a hard time with this at the moment. My reading says poss remission for 7-9 years after surgery so I though 2 months without meds would be ok. Impossible to tell whether it...
I've just had a 5 day stay in hospital - got really bad abdo cramps on Sunday and felt sick (later vomited over doctor when he prodded and several episodes through the night!!). hoped it was a bug or...
Keeper - thank you [u]SO much for taking the time to explain all this in so much detail; it's just what I needed and I do understand things better. I thought I might have had to invest in anatomy...
Nanners - as always I appreciate your comments, but I think I may have not communicated my thoughts well enough. I will be starting maintenance meds (probably Pentasa) after my colonoscopy in...
Hi Keeper I really like the way you respond to posts and explain things simply so I wondered if you could help me understand something? Loads of people using this forum have many symptoms and are...
I'm going for blood tests next week - anyone help with my query as to whether knowing if I've got Hashimotos is important/what's the difference? Also - I am on medication (150 mcg Levothyroxine) for...
hi there when I asked my GI consultant about diet he just shrugged, said don't worry and to get on with my life ................this is after having a resection and being left with only a third of my...
Hi Stasi I have limited dealings so far with the UK system but you will definitely fall under the care of a Gastroenterologist - I bet they're really waiting for a proper diagnosis after a...
Hi everyone I was diagnosed with underactive thyroid not long after my first operation for Crohn's in 1996 - it seems likely from what I've now read that it is linked to the autoimmune stuff....
hi all. I'm feeling better than I did - thanks for letting me get it out there. I've read other posts about reactions from family and friends and how disappointing it can be. I've gone back to work...
yes - either too early post op or too high expectations. I'm also glad I tried and I know you appreciate the effort it takes to do that; thanks for your reassurances on this that I wasn't stupid to...
hi everyone. I've just been on holiday to a Greek island for a week. Bliss? no - not really, and I need to admit somewhere that it probably wasn't the greatest decision I've made and this is the only...
Bev Did you ring the consultant's secretary? any progress? Penny /community/emoticons/smile.gif ...
I have had 2 resections - the first one was similar to yours and I remember it taking some time for my system to settle down after such a major disruption. One thing that has remained constant is the...
Thanks for all your replies Nanners - I have just bought some over the counter probiotic capsules - says 4 billion friendly bacteria of lactobacillus acidophilus and bifidobacterium lactis. I've...
Hi it's me again - still looking for answers...........and which supplements I might need to look at or diet stuff. found this section under Healing Well FAQ but the article is dated 1997 - anyone...
Bev I think this is where we differ from our American friends in being less able to get to see people quickly and less choice when we do. I definitely think you should contact your surgeon's...
OW!!!!!!! I'm so glad there have been recent posts about this topic so I know roughly what to do (have already got the Prep H creams and wipes etc). There I was thinking how relieved I am that I...
thanks for your reply - I know food can't cause CD directly but I'm not going to give it any chance to block my system up. I'm always more anxious if I get constipated - a cigarette used to do the...
Hi there I noticed from a few posts that you have had 2 resections and you tend towards C rather than D symptoms. My doctor is saying surgery has worked and doesn't need to see me for a few months...
I've been to see my hospital consultant today - first time meeting the top guy and it was a bit of a mixed experience. He gave me a lot of time, put up with my tears but unfortunately his manner was...
Hi Wolfie sorry about your mixed bag of news - wouldn't it be nice to have one really positive day? Ref the strange pain you've been having - I mentioned in a previous post that I'd been having...
Thanks very much - I feel much better that people have had good experiences of this. I'm back to work next week and have seen the referral to occupational health from my manager - he's asked them the...
Hi Dreamer what a crap position for you to be in!! Just a thought - under the UK Disability Discrimination Act you would be entitled to 'reasonable adjustment' because of having Crohn's. I think you...
Spiceman - did you get this sorted ok? did you apply the DDA? I'm going back to work next week after 3 months post-surgery and my manager is referring me to occupational health; they want to get info...
wish I'd been better at biology & science when I was younger!! just trying to get my head round stuff and have read lots of posts/articles on CD symptoms, treatment etc but some bits fall...
Hi all I've just got a copy of a letter sent from the GI I saw a couple of weeks ago to my doctor - great news as all [color=purple>blood] have come back [u]normal so looks like the [u]surgery I had...
thanks for your replies everyone Wolfie - did you check with your doctor what it could be? given my history (and total lack of previous awareness) I worry more about obstructions and adhesion...
I had small bowel resection 10 weeks ago and just getting used to my 'new' body and its various functions. I'm getting some strange twinges/pain and wonder if anyone else has had these? 1) tingling...
Thanks all for the replies. I know I have had caecum, appendix and part of ileum removed. I have seen the same figures as Rider Fan - we have an average of 20ft small bowel and 6ft large bowel...
just seen a letter sent from my surgeon to my GP (family doctor) with details from my recent resection. Says that she did a redo hemicolectomy and small bowel resection/anastomosis and now I have...
I'm confused.......... I had a resection 13yrs ago - right hemicolectomy so they removed a chunk of terminal ileum but no-one mentioned B12 then or since; more a problem of bile salt recycling and...
Thanks FallColors - only another 3 weeks to go on Flagyl; will be nice to taste things better as well. Nanners - I appreciate your comments. Just seems that all stories I hear are about people who...
hi all I'm feeling really low at the moment so it's a struggle to make sense of anything. I've read a few things and this seems to be a normal reaction to a 'new' diagnosis (remember I didn't think I...