Hi, Posting again as I'm hoping someone has gastro recommendations in the NYC, NJ, Philly areas. I'd rather not use the CCFA site and hear from others experiences. Thank you!...
What does proctitis feel like? I had an abscess over a year ago and had many drainage procedures. Ever since they started trying to drain it, I can't sit directly on my butt. Always sitting on my...
Hi, I'm wondering if anyone has a gastro that they absolutely love. I currently see one in NYC and I feel like he doesn't call back, it's impossible to get a hold of him, etc. I've been going to him...
For me, I definitely have inflammation in the rectum. I did have an abscess as well, but after many drainage procedures, I believe that is now gone. Do you have a lot of fat in your diet? Again, I...
A little late to post, but my son is 2.5yo. I took Humira throughout my pregnancy. I was never 100% before getting pregnant, but was ok enough. I happened to find out I was pregnant right before a CT...
Hi, Anyone pregnant and currently taking Stelara? Or who took it through their pregnancy? Originally, I was told there wasn't enough data, but now it looks like it's a Class B (which I believe Humira...
Yep..It's absolutely awful. It's been a few years for me now. I honestly feel like if maybe I changed my diet, maybe it would be better. I already feel so restricted though, and I'm a big foodie, so...
Wow..Thanks Keith. How are you feeling now? I just had my first injection this morning. I feel a little spacy, but not sure if that's because I'm a little tired? I've had some reactions to the...
Thanks Keith. I have a very noisy stomach and I've had some joint pain as well. I am part of the medical marijuana program so that seems to help a bit. I was sick last night for no reason. Not sure...
Hi Keith, Just wondering if you've taken another dose yet? I will be starting Stelara in 2 weeks and am TERRIFIED. It's not easy finding other people on this medication for Crohn's/UC so I'm very...
Thanks for replies. Originally, the doctor said he was going to remove the drains in his office, but then he said I probably wouldn't be able to tolerate it (he's probably right). I have a lot of...
I think most people don't really have too many side effects humira. For me, it's just not enough. There are plenty of people that humira work great for!! Think positively!...
Honestly, I'm not sure what a seton drain is but maybe? I have a drain that's sticking out draining anything going to the area where the abscess was. Not sure if that helps? I'm so uncomfortable with...
They're both newer drugs. I think stelara was used for something else & then tested for crohns & entyvio is completely 'new' I believe. To be honest, I'm pretty sure I'm leaning towards adding meds...
I have been on Humira for years. I honestly don't think it's ever fully put me into remission and at this point, we're either going to add meds or switch to Stelara or Entyvio. I'm with you and...
Hi, In the past 2 months I've had 2 procedures to drain a perirectal abscess. I currently have 2 drains in and have been very uncomfortable since the last procedure was done. Before the drainage, I...
Hi, I have been on humira for almost 5 years- on and off. I haven't had any side effects that I've noticed but I don't think it's does much for me. I was just weened off pred about 2 weeks ago and...
Thanks Sr5599. I'm a little nervous about risks of infection and latent issues coming out. I'm currently getting my list of questions ready. I'm so glad to hear it's helping you with your Crohns....
Thank You everyone! Definitely starting to stress as I'm not really liking my options right now. I've decided I'm going to come up with a list of questions in regards to the Stelara trial to see if...
I have Crohns Colitis so the majority of my disease is in my colon. I don't think, there's much, if any disease, in my small intestine..at the moment, but too have severe disease in my rectum. It's...
Hi, Anyone out there taking or heard anything about Stelara? I know it is approved for Psoriasis and there are trials going on now for Crohn's Disease. Had a colonoscopy done this week and my options...
Hope Nanners feels better soon!!!!!!!...
Hi, I've been on Humira for about a year now. I definitely think it has helped but not completely. I'm still constantly running to the bathroom which definitely sucks. Currently I've been taking it...
I would suggest Dr. Steinlauf. He actually was working underneath Dr. Present who I believe actually worked with Dr. who discovered Crohn's disease. I believe he's associated with Mount Sinai...
I felt the EXACT same way. I was in the bathroom a few times before my visit too. I was so nervous. Watching the video right before made me even more nervous. For me, and so far, the anxiety was...
Thanks for everyone's replies. Metallichic, you are definitely on WAAAAAY to many medicines!!! You should probably talk to your doctor! Betagirl- My doctor gave me a choice between Cimzia and Humira....
Hi, So I just received my first 4 shots of humira a week ago. I thought I was feeling better for the first 2 days after, but now I feel like I'm getting worse. It seems like my bathroom issues are...
I have a HUGE obsession with iced coffee!! But both Decaf and Regular seem to bother me..Definitely noticed Starbucks is the worst for my stomach though. But I still can't seem to stop myself!!...
I actually had my first 4 shots of Humira a week ago. The first 2 days after the shots I started feeling less tired an thought I felt a little better. Then, from Friday on, I've been going to the...
So to answer your question, I asked the nurse the same thing yesterday. She said you could but it might hurt more. Apparently she said she's heard it hurts more in your thigh as well. I also was not...
Hi, I actually had my first 4 shots today! I went to the Dr's office this morning and the nurse showed me and my boyfriend how to do it. First we watched a DVD, which gave me such anxiety and then...
I actually have taken Methotrexate (shots) and I THINK I was taking the 6mp with it as well. It really didn't work for me, but that seems to be the story of my life. I know that with the injections,...
I am in a very similar situation Nikki. I've been on almost every medication out there with it either not working or having a severe reaction. I've been taking cortenema recently and within the next...