I just wanted to add a quick reply. I haven't been here in a bit. I'm now in tears. Pentasa doesn't work very well for me (makes me nauseous). Tried so many things. Asacol DOES work and found out...
Hey all, It's been awhile since I've posted. It seems I'm having a hard time of things as of late. I thought last year was rough, but this year is starting out just as bad. They had to move my yearly...
Also with proctitis you will tend to have fissures more. And there are different ways to treat them as well (I get a compounded niphedipine/lidocaine ointment. It's not generally found pre-packaged...
Preparation H also has some flushable wipes too. A lot of the flushable wipes are located in the toddler section (but make sure they are flushable). What you also describe could be fissures...they...
If you are having liver issues, please see you doc and get it tested. I have a liver disease that is associated with Chrohn's and UC...I'm glad my Dr. caught it in time. But I'm glad my Dr. is on the...
Hey all...kinda having a rough year...but mostly with things I've dealt with before, yet when things get bad I go into turtle mode (which I've done for about 6+ months, heck ask my RL family and...
I'm on the 25mcg patches...honestly, they start working in about an hour. For me it takes the edge off, and in the beginning I think it took ALL the pain away. I have BT pain meds, but I only use...
mtgman, just wondering, would seeing the patches in person help with some decision making?(as they've changed a lot in the last couple of years, they are now more like a bandaid and have lost the...
I am thinking much the same as most of the other people here...PBP, please see someone soon, and I agree, an ultrasound can let them know about gallstone, I also had an enhanced MRI(MRCP, no real...
I was also thinking, when I'm in big flare mode, I got into turtle mode, meaning I kinda hide out...so I don't really think she's blowing you off, then you add the prednisone, which will make your...
Shikamaru...nice to meet you...I too have a flavour of AIH (I have PSC, along with some other autoimmune issues). I can't add more to Dany has said......
All I can say is WOW!...I've been away for a bit (I don't visit as much for much the reasons NY Veggie stated), but Ivy and Nanners have made this forum a nice and safe place(where one is not...
Monkiray...funny thing...I call my daulidid pills...the "end of need" pills...you know from LOTR, and like the ring of power..."to be used in only the utmost end of need"......
I saw that Champange had talked about foods for right after...but take it a step further...not to mention here in the northern latitudes, pumpkin is coming in season, and it is one of the best things...
Also, baby food is a good start (and a lot of people forget)...I tend to like the "baby's first" foods, especially the rice cereal, and I use soymilk usually to stir it up(and works well when on...
This is a question that comes up a lot...sometimes I go over to the "Chronic Pain" side of Healing Well and they help out...My Honest opinion...there is a lot of fear of narcotics right now...and...
Marji, Hope you are finding some relief...and again, I just wanted you to know that you are not alone, nor a hypochondriac...Fatigue and malaise(that general yuck, feeling bad all over) is common...
I think fatigue is the bane of anyone with any AI disease...(I have PSC along with crohn's and AS) where every cell of the body feel exhausted and tired. I'm dealing with that HARD right now, and so...
They are willing to use it more often now, as it helps milder sufferers achieve remission and stay there for quite awhile. The biologics (Remicade, Humira, Cimzia) are pretty new and expensive(they...
I have meds for break through pain, and have meds for times when the crohn's kicks it up to "I'm ready to die now"...I used to have to go into ER at these times but since I'm on a lot of...
Crackles...I too have AS, I get trigger point injections from my Rheumy...however my issues seem to be with the insertion and origin points of the shoulder girdle muscles (mainly the trapezius) due...
goodluck...and take care...k?...
My GI also suggested zinc (in addition to the other supplements already suggested)...also had to get hair done so the bald spots didn't show...and I used the hair products (Nioxin, but I think there...
mgmtman, I live in AZ with a patch...actually I think I had it on when we met up for lunch (which the next one, lunch/dinner, is on me k? whenever you feel like it)...the patches have changed in the...
I used a face mask, made by 3M, can't remember the name of the mask, but we used in the lab for pathogens, and my dad used it for painting, not the dust mask but the N95 type (we used it in labs,...
I think it might help going to the Dean of Student Services(not sure how your system works) I always had good luck with the DoSS, when I had particular situations, going to the top usually helps a...
Northernlights, hello from someone else who has a type of AI liver disease...have they given you the steroids yet? Have you ever taken them? Just a note, they can increase your sugar levels and mess...
isergodur, I didn't know you had problems with your liver too...sorry to hear that...and just saying hi to all here, I'm another crohnnie that has liver issues too (I have PSC)... I'm interested in...
Another here who has issues with the SI...I too, like Ides, have AS-ankylosing spondylitis-and crohn's (not to mention a liver AI disease too)...Especially since you have UC, I would strongly urge...
Hello and welcome, I have a flavour of AIH called PSC, and like others have 2 additional autoimmune diseases in addition to the liver complaint (Crohn's and Ankylosing Spondlylitis). Hopefully you...
I also agree with the others on seeing a Rheumatologist...it helps out a LOT (and GI docs are not really trained to deal with joint issues)...Also as a crohn's patient, you should stay away from...
You seem to be having a rough time as late...alas all I can offer are cyber hugs (((((((((((fongers06)))))))))))))))))))...take care......
So I wonder how many of us use TP? Me, being a female and all, I still use TP but not for my bum...otherwise I use wipes only (and those that say they are safe for septic/sewer...not all wipes are...
It sounds as if there are a few of us primary colitis people here...just a note...I've found in myself, though I have little to no small intestine involvement, I DO have stomach ulcers due to crohn's...
Welcome to HealingWell...I'm sure people will be able to help with whatever questions you have...it's a pretty good group (though I don't post as often as I used to, but today is not such a good...
I agree with everybody here...please see your doc soon...and yeah, the bloody stools can be a flare, but your doc will probably want to have a look anyway to see what's going on (as it can...
Hey mtgman...long time no hear (BTW, send me an email would love to go out to lunch again or something...) You're still not on Humira or Cimzia?...I think getting on something soon might help...oh,...
Danny, Yes, the RUQ pain is just under my ribs...I've also had my gallbaldder checked out and I have absolutely NO stones...just a crappy inflamed liver :rolleyes: :rolleyes: Alas, there are times...
Are you not eligible for Cimzia? (I am on that after the Humira failed miserably, but Cimzia has done very well)... C Diff...humira may not have caused it, but it didn't help it(on any...
Make sure to tell your GI about this, maybe she/he can help... I have had a few but surgeries and countless fissures and tags and whatever else in the bum department...so I can really relate. for...
Glad to hear that your scopes came out clear...and the preps are HORRID...I hates them!(a LOTR reference :smilewinkgrin: ) Alas, because of the crohn's and PSC, I get a c-scope annually. For me, the...
It's kinda nice to know that I'm not alone...my liver issues are what scare me the most...what I've read and what I've been told is that my flavour of AI liver disease(PSC) will require a transplant...
No...sorry to hear this is happening to you......
DGinSD, I noted that you were on Ursodiol...I take it too for my PSC (another flavor of AIH, more related to my Crohn's). I was just wondering if you had any effects? I have been taking 300mg/3x a...
Nanners...wow...you have said so eloquently what I too feel...my DH is very much as you describe yours to be...he is a good, kind and caring person (and I think Rose is too I wish I didn't put DH...
I get mine at CVS all the time...it could be that one particular store...honestly, I would complain on the 1-800 number and via e-mail...I have had to complain about a horrid pharmacist, and CVS...
I'm with Nanners on this...alas, all I can offer is (((((((((((((((((hugs))))))))))))))) via computer...my thoughts are with you...I am glad to hear than you have some good doctors on your side which...
Okay another pity party...my crohn's is acting up!!!! I'm not sure what is different, but I've been controlled (loo wise) in my crohn's for a bit (other stuff has been sucking though, including my...
NY veggie...wow...I'm so sorry to hear this, you need some super sized hugs ((((((((((((((((((((((((((NY veggie)))))))))))))))))))))))))))))...and please, come here any time to vent, cry,...
Sorry to hear that you are having such a hard time...(((((((hugs))))))))))... I'm kinda going though a rough patch too...take care......