I was on Remicade for 4 years with my first, and 7 with my second. I felt so much better right after I started and then felt fantastic for 6 months, but then it started losing strength. It's too bad...
Pentasa is useless. Get a colonoscopy and/or an MRI to evaluate your levels of inflammation. When was your last one? How we feel does not indicate disease severity. I went 10 years with no meds...
I went to the doctor on last Wednesday when I was still super swollen with really bad feet and high blood pressure. I weighed 192. And then I went back to work teaching. Today, I went to the same...
Well, my feet are still pretty swollen and my blood pressure is still high. I'm on a med to treat both, but it makes me feel kinda pukey and like I'm on a boat. I also wear compression socks. My GI's...
Thanks for commenting, everybody. I'm a bit of a mess after all this. And my blood pressure is super high and no one can tell me why. I used to be 120 and now I'm in the 150s to 170s everyday. Also,...
Hi, everybody. Don't know why I'm telling you all this after the fact, but I almost died on the 19th. I had a little bit of puking and then diarrhea off and on for 2 days. I'm a Crohnie so the idea...
15 years!?! That's terrible! How did you stand it??? I was only on it for a year and that was bad enough. That low grade chemo made my hair fall out and made me nauseous for 3 months straight. If I...
I would say happy hour! You can both have a drink, loosen up, and not really worry about food. You can't even talk to someone in a movie, so I think it's a terrible first date....
I started remicade in may 2010 and by july 2010 it closed up my fistula. Maybe your fistulas are healing and the tissue is starting to reject the setons? Does blood have to mean bad or can it mean...
hmmm I wouldn't know anything about all that. All I know is, Remicade closed up my fistula in less than 2 months, but 5 months it reopened again. My doc put me at 6 weeks, max dose, but it never...
I'm so sorry to hear this. Surgeons willing to work on fistulas are rare and then surgeons who are willing to work on RVFs are nearly impossible to find. My brother says that few surgeons will even...
Hey, MB! Sorry to hear that you're feeling bad right now. I was also diagnosed at 15. My first symptom was a fissure that just wouldn't heal. I wanted to die everyday, but I just kept hanging on....
I had a fistulogram about 8 years ago. You go in, get the gown on, lay on the slab, and then they inject dye straight into the fistula. Then take xrays. The guy said to let him know when it started...
Yeah, I didn't answer this because I couldn't make sense of the question. Maybe the OP meant fistula???...
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