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mdf34

HealingWell Forum
>
Member Profile
Display Name
mdf34
Profile Created
2/22/2010 3:47 AM
Last Seen
4/21/2012 12:30 PM
Total Posts
925

Last 50 Posts

What drug has the least side effects?

This is really hard to answer because everyone is different. I think for the most part, prednisone is the only drug that has pretty universal side effects. All the other drugs, each person here...

4/19/2012 12:57 PM

Crohn's Disease
questions about starting remicade

Most likely not still a cold but after effects of some sort. You should go to your PCP and get checked letting him know you will need to be starting remicade soon. I have started antibiotics the day...

4/19/2012 12:54 PM

Crohn's Disease
New diagnosis and too tired/sick to work.

I take a Super B complex with my first meal of the day, and a B12 and folic acid a bit later, along with C. My Vit D is a once a week strength pill. They seem to help but I have to admit I was...

4/18/2012 3:54 AM

Crohn's Disease
Crohn's Commercials on TV

Good for you! /community/emoticons/smilewinkgrin.gif ...

4/18/2012 3:39 AM

Crohn's Disease
Crohn's Commercials on TV

Mine were for "livingwithcrohns.com" or something like that. The were shown all across the US, even my dad called me to tell me about seeing it on TV. I wish the others you are talking about were...

4/17/2012 2:35 PM

Crohn's Disease
Crohn's Commercials on TV

I was getting the idea that the Living With CD commercials for the website might have had something new or helpful, but it turned out to be a kind of survey about your condition and then finding a...

4/17/2012 1:19 AM

Crohn's Disease
gastroparesis

Dawg!!! Dawg is dealing with this now. Sorry you are having to deal with this....

4/17/2012 1:12 AM

Crohn's Disease
Question

High furctose corn syrup is what I meant, but couldn't think of it when typing. /community/emoticons/smilewinkgrin.gif ...

4/16/2012 4:19 AM

Crohn's Disease
Scope results: Not in remission :(

I know I kinda slid into remission without realizing how good I was actually feeling (although I may still have a rough day) until I FELL out of remission. I never realized how bad my insides were...

4/15/2012 4:10 AM

Crohn's Disease
Question

Double check the ingredients of the jelly beans themselves. Sometimes I find things that surprise me that do cause problems, like MSG, although I seriously doubt there is any in candy. Maybe the...

4/15/2012 3:56 AM

Crohn's Disease
Gastroparesis????

I personally don't have to deal with this condition, but I know from recent discussions several members here due. I am sure they will check in soon. That really stinks for a kid so young. Well it...

2/14/2012 9:25 PM

Crohn's Disease
Am I supposed to be embarrassed to have Crohn's?

I would have been that blunt! /community/emoticons/tongue.gif /community/emoticons/smilewinkgrin.gif ...

2/14/2012 4:12 AM

Crohn's Disease
Tale of a Crohnie

Yeah, my last outing to Laughlin a couple years ago was seriously delayed before I felt comfortable enough to start driving that distance....

2/12/2012 11:44 PM

Crohn's Disease
Double Blind Remicade Study

I would NOT under that set of circumstances, myself anyways....

1/26/2012 1:15 PM

Crohn's Disease
NEED A GI IN ARIZONA.....

I see Dr. Khosla, he is indian, if it matters to you. He has been pretty good to me. But to give you all the facts my wife did not care for him, for no particular reason and went and found her own...

1/25/2012 12:30 AM

Crohn's Disease
Have a Hemmi question.....

Well the fissure was pronounced healed and one of the major hemmie banded internally this past week. He did it right in the office when she asked about it. So back to that question, how long does it...

1/22/2012 11:09 PM

Crohn's Disease
A quick imuran question

I am only on 50mg a day to keep the risks down I guess. But the cold chills and muscle tremor in the left did not start until I started the pills. NOthing bad, just curious about the time coincidence...

1/22/2012 11:06 PM

Crohn's Disease
Started new med, need some help

And don't forget that the coating on the pills are red maybe causing the discoloration??? At least my lialda pills were....dark red that is. It was so long ago that I took that I don't remember any...

1/22/2012 10:51 PM

Crohn's Disease
A quick imuran question

Or 2...Has any one taking imuran noticed a change in your tolerance to temperatures? I get so cold so easily these days that I sometimes get the violent shivers. I have lost some weight and can still...

1/19/2012 3:10 PM

Crohn's Disease
Remicade... How long?...

NOt to worry you, but it took me 9 months to start getting relief. We had to find the right balance of meds, when to take them to go along with the remicade. Because of the osteopenia I am taking...

1/17/2012 4:32 AM

Crohn's Disease
NEED A GI IN ARIZONA.....

East Valley has offices in Chandler and Gilbert. I use the one on Dobson in Chandler. I live betwen QC and Florence. Probably not the closest, but they saw me the fastest back when.... They only do...

1/13/2012 2:18 PM

Crohn's Disease
Have a Hemmi question.....

Got it and got it. Didn't mean to seem to question, but the vicks idea took me by surprise. What ever made you try it?...

1/11/2012 6:05 AM

Crohn's Disease
Remicade and leg pain?

I almost always get a bit of bone pain up to 14 days after an infusion. I take some tylenol and chill for a bit if able. Never lasts more than a day for me. Also found a hot shower helps....

1/10/2012 4:34 AM

Crohn's Disease
Have a Hemmi question.....

Thanks all. They are hemmie as stated by 2 different doctors. Vicks?!?!?!? Doesn't it burn? I will have to pass along these suggestions...

1/10/2012 4:32 AM

Crohn's Disease
HELP!!! Disability questions for anyone on it

WOW! /community/emoticons/shocked.gif What was the reason given for the termination? If they cited your health I would think that could open doors for you there, lawsuit, or towards you disability...

1/9/2012 2:35 AM

Crohn's Disease
I need an honest answer

Bumped cuz I hadn't found another post on this matter. Is Sniper doing OK?...

1/9/2012 2:30 AM

Crohn's Disease
Nightmares on Entocort

I take mine with my first meals of the day. Generally the fatigue of this DD has me sleep pretty well. I need at least 6-7 hours to function. So no nightmares, no problems sleeping, but it would...

1/9/2012 2:28 AM

Crohn's Disease
Have a Hemmi question.....

This really isn't for me, thankfully. I have a family member (wife, shh, don't tell her) with pretty severe hemmies, and recently discovered fissure with them. Has anyone had surgery/banding for...

1/9/2012 2:21 AM

Crohn's Disease
NEED A GI IN ARIZONA.....

I use East Valley Gastro, they have offices in Chandler and Gilbert. I see Dr. Khosla, (pronounced coleslaw) I will watch for a reply to see if you want/need the number. I live outside of Queen Creek....

1/4/2012 6:37 AM

Crohn's Disease
Imuran questions

Well I took my first dose this morning going to bed, just as I was dozing off, I got this bed spin feeling, forced it away and went to sleep. Feel like crap today, although if I was getting sick it...

11/21/2011 8:08 PM

Crohn's Disease
Imuran questions

Thank you all so much! keep 'em coming....

11/20/2011 11:48 AM

Crohn's Disease
Imuran and pregnancy

The only reason I am answering is that I just got my first script for this and it has warnings all over it that it will effect a fetus and is translated through breast milk. It sounds like a definite...

11/19/2011 5:25 PM

Crohn's Disease
Imuran questions

I know there was a similar thread not long ago, but I didn't find it. Soooo, a short lived remission is over. (fit all the colorful metaphors and expletives you know or can think of in here to have a...

11/19/2011 4:43 PM

Crohn's Disease
Mental Attitude

Um, yeah, just a wee bit /community/emoticons/rolleyes.gif Hang in there!...

11/8/2011 6:22 AM

Crohn's Disease
Remicade and memory loss?

I know my memory issues pre-date the remi. or so I have been told /community/emoticons/tongue.gif ...

11/7/2011 11:38 PM

Crohn's Disease
Generic Entocort?!?!?

so that would seem to prove my theory wal-mart is clearing out their supply of the Ento, which they were probably stocking just for me anyways I am guessing. Thanks. That also means I can't comment...

11/7/2011 11:36 PM

Crohn's Disease
flare but with "normal" lab work and CT results

All of my tests were inconclusive or showed nothing for my crohn's. The pill cam was the proof that was needed. My GI had told me the blood test only showed CD in about 30% of the people that have it....

11/7/2011 11:34 PM

Crohn's Disease
Proud to have Crohns

Well Grin, You Go GIRL! To have that attitude about anything is a good thing. Personally, I hate this DD and the problems it has caused. The fact that you can find a way to spin it to a positive is a...

11/7/2011 11:26 PM

Crohn's Disease
They sent me back .

And how are you today Mr. Sniper? Doing better I hope. Haven't been on much lately and was shocked to see this....

11/7/2011 8:36 PM

Crohn's Disease
Tuesday tlc

Roni, all I can say to your previous comment is ooooooooooooo, bad! hahahahaha...

11/7/2011 8:31 PM

Crohn's Disease
Generic Entocort?!?!?

I would love to offer an answer, but I have to ask a question first. Do your generics say "entocort" on the capsules? My generics do, which makes me suspect the pharmacy is unloading the brand name...

11/7/2011 8:26 PM

Crohn's Disease
Question for men and women

Cottonelle All the way!! That Angel soft really isn't and it comes apart way too easy. Charmin just gives off too much dust. /community/emoticons/smilewinkgrin.gif ...

10/3/2011 4:51 AM

Crohn's Disease
Vitamin D Levels?

Yeah, what Ivy said!...

9/26/2011 6:49 AM

Crohn's Disease
Vitamin D Levels?

I am on 50,000 weekly due to extremely low levels. I will be on it for a year if that helps answer that question. ( I have other issues I need the "Vit D" help for. Las blood check I was not over 30...

9/26/2011 1:53 AM

Crohn's Disease
OT just a thought

When is the book coming out?...

9/17/2011 5:48 PM

Crohn's Disease
My answer to SSDI . What I do each day .

I know, me personally, that my sugar cravings have gone through the roof. Not the kind that can be controlled by will power, I mean I need it, I gotta have it, I WILL have it. I voiced this concern...

9/15/2011 1:38 PM

Crohn's Disease
Biologics question and more

AccessOne is assisting my Remi I am given to understand. You may also be eligible for RemiStart to help you out. Talk with the GI as I am sure they have all that info. I myself am singing the praises...

9/7/2011 12:59 AM

Crohn's Disease
Generic Entocort question

So far I am fine, although I started the ento back at a reduced dosage, just to help me through some stressful times....I could feel things changing inside due to the stress. That was one of the...

9/7/2011 12:57 AM

Crohn's Disease
A Tunrnaround Tale

Waiter.....I'll have what he's having! Congrats to you!...

9/7/2011 12:53 AM

Crohn's Disease
Weaning off Entocort and Severe back and hip pain??????

You may want to ask about a DEXA (bone density) scan to make sure you have no bone loss to worry about. I have been having hip joint problems throughout. using the ento and the remi doesn't seem to...

9/4/2011 3:30 AM

Crohn's Disease



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