I have had my ileostomy for almost 3 years and have had crohn's for 35 and I have been on Cimzia, a biologic since my surgery. With my crohn's I would get the occasional boil/abcess, usually in the...
I purchased my bidet off of Amazon and I love it! Mine is very simple, connects to the water line on the toilet and underneath the seat. No electricity needed. The water coming out is cold, but I...
Have you been tested to see if you have a bacterial overgrowth? It doesn't necessarily have to be c-diff. I was experiencing the same thing, extremely painful gas no matter what I ate, severe...
When I was on Humira I started getting the itchy patches you are talking about. After doing some research online and asking about it on here, I went to the derm and discovered I had developed...
My pain doc told me that tramadol is the mildest narcotic pain med and that he likes to start people who are experiencing pain out on that before bringing out the "big guns". I like tramadol because...
I am one that developed psoriasis after being on humira for 9 months. I started getting scaly patches with what looked like little blisters filled with with water. They started out on my stomach and...
Hi, sorry to jump into this conversation, but I was wondering if one of you would send me the name of the dr also. I live in Vegas and I'm not really happy with the GI that I have. I feel I have to...
Wow! I'm so sorry you are going through this! I get accesses often, usually once or twice a month, but nothing as bad as you describe. Mine usually pop up in the groin area, but they do show up...
I've heard that if you take A LOT of it (8-10,000 mgs/day) it can cause loose stools, but I take it because it's listed as an anti-inflammatory and is supposed to help prevent heart disease, which...
My favorites are the low calorie green or purple ones. They taste like lime and grape kool-aid to me! I was never a huge fan of gatorade and never bought it myself, but since living in the desert...
I've never had a problem with driving and have never felt I wasn't acting normally around people when I have had to take my anti-anxiety meds. The trick is to start with the lowest dose possible. I...
I don't have anything to add but wow, you have been through so much! I'm sure your doc will call in all kinds of specialist to help him deal with this. Good luck to you and stay strong, we are here...
I don't have a particular brand we use regularly, whatever's on sale or I have a good coupon for. With 4 of us in the house, we go through about 48 double rolls per month. I guess I should say I. The...
Welcome home Nanners! Get tons of rest and hope you feel better soon!...
Yes, just started a new job, working 60 hrs a week for less money than I was making previously. My guts are in turmoil right now. Would like to work less hours, but need to make the money to support...
I was on Humira for 6 months and started developing joint pain after the 2nd month. When I developed psoriasis, I went off Humira completely. It was at least 6 weeks, maybe 2 months when my joints...
I remember having to pay for this out of pocket. I paid over $250, but I know some of you have paid more. Hopefully it works as well as the name brand....
I'm 44 and have recently started the same thing. The gyno says I'm peri-menopausal. My only symptom currently is hot flashes and I will have 1-3/day. He told me this can go one for a while before I...
Just wanted to let you know that while I was on Humira, I had really bad joint pain. I had a lot of joint pain and stiffness, especially after sitting or laying down for a while. I have been off it...
Best. Stuff. Ever....
Is it bothering you? Are you having pain or discharging fecal matter? I have a recto vaginal fistula that I have had for over 10 years and other than occasional discharge of fecal matter when I am...
I'm not on Rem, but have been told that it is one of the best for treating fistulas. As for the chronic diarrhea, I take 2, sometimes 3 immodium per day. My doc told me I can take as many as I need...
The flu sucks, so sorry you are feeling horrible! We've just had a respiratory thing going on in our home, so not too bad, just can't sleep with all the coughing from each of the different bedrooms....
Before my resection I had no trouble with popcorn, didn't hurt and actually kinda helped bulk up the D a bit. Now, it kills me! I have tried it twice and both times spent the next day or 2 in bed...
I have a recto vaginal fistula that they have never been able to find, but you're right, if you have one, you pretty much know....
14 I think when I was officially diagnosed, but remember symptoms around 10 or 11......
Just out of curiosity, what meds is she on?...
I have the same problem with our boat. I take 2 immodium the night before and 2 before we leave. It leaves me a little crampy, but better than the alternative. I found this little fold up toilet in...
I love Casey also, he is one of my faves, but everyone is so talented this year! If he is on pred, I can definitely understand that emotional freak out at the end a lot better!...
Hi and Welcome!...
I remember having little to no interest in food until they started me on Pred about 2 months after resection. Nothing sounded good and I had to force myself to eat......
I take a soft gel multi vitamin for women made my Nature Made. It disolves quickly once it reaches the stomach so it's almost as good as liquid. I take mine at night. For me, it's just easier to...
I am horrible at following diets religiously, but I find that I feel better and have less issues if I eat mostly protein. In fact my body tends to crave those foods, so I would say my diet is...
bump...
I also developed psriorsis on it and it greatly increased my joint pain. It did seem to help my crohn's, but the side effects it was causing were just not worth it to me....
I have had several heal with just antibiotics and sitz baths. Unfortunately, they do tend to come back in the same spot but to get you through for now, those should work. I've never had surgery for...
Thank you for the replies! @ kazbern-thats how I have figured out I am perimenapausal, my for the most part regular period is now coming every 18-23 days and lasting 6-7 days. It's driving me insane...
With the length of time that some of you have had this DD, I'm hoping a someone can tell me how going through menopause affected your crohn's. I have (sadly and reluctantly) come to the conclusion...
your medicine cabinet rivals the local pharmacy...
I am an Office manager and I work FT. For me, it's the ideal job. When I'm feeling well, I get tons done. When I'm not doing so well, I take it easier... the work will always be there in a day or...
I tend to agree with most of the others. The Sulfasalizine gave me raging headaches when I was on it several years ago. Why don't you just try starting one, see how your feeling, then a week or so...
Hi Anthius and welcome! You may want to try and follow a low residue diet until you can get in to see your dr. Just google it. That should give you a lower chance of blockage. Good luck!...
Ahh Pred... the drug we all love to hate. For me personally, when I'm flaring badly, pred will get me feeling better fast. It works faster than anything to get me back to or close to remission. It...
Just wanted to say Hi and welcome! Please don't drive yourself nuts right now trying to figure everything out, but do educate yourself on your disease and figure out what works best for you! Good...
Good luck on the Humira! It has worked wonders for a lot of people so here's hoping you are one of the many! It did a great job of controlling my crohn's but caused other issues so I had to go off of...
I love, love, love melon in the summer when they are in season! Cantalope, watermelon, etc. Unfortunately, my insides HATE them! I will occasionally suffer thru them if I'm really craving and have no...
Thats such bull! Is the colonoscopy the only test that they have done? What about a small bowel follow thru? Or an upper GI? A colonoscopy can only see the large intestine and the first couple inches...
My suggestion, if you absolutely have to have them (I have terrible will power) is to cut them up and let them sit for a couple of hours so that they get soft and soupy like you would do if you were...
Hi and welcome!! Give your healing some time, 6-8 weeks minimum. You will slowly start to feel a little better each day. You have to understand that not only have you just had major surgery, but that...
Just wanted to add my welcome to the others!...