I'm on Remicade and Pentasa, both for the last ten years. I had a fissure at the start that wouldn't heal for a year and a half. It was so awful I literally contemplated suicide. Remicade healed that...
I have had a fissure for almost 12 years. It was once awful until I got on Remicade and the first major fissure healed. But ever since, I have had small fissures that hurt more or less depending on...
So I guess after 6 years I'm convinced that I'm going to have fissures my whole life. Some days I'm in more pain than others but I have them at a manageable level thanks to Remicade. Still, I wonder...
Not ignorant at all! thanks for the reply. He says it's a bit low, but not too bad. And the Remicade really works for me. I was on imuran too, but it was killing me....
One appointmant he tells me 3.8 is low but normal for Remicade patients. Then on another visit he says it's worthy of concern and something to watch. Then I have to ask him about it on the NEXT...
Hi Auburn! I'm so happy that the Toomers exist. That just almost makes me want to cry! I live in Leeds but am from Tuscaloosa. All I got was a lot of wind in Leeds, and my mom only lost power in...
Nawlins, I'm sorry you had to go through that and I'm glad you made it through! With the flooding there really could have been some deadly mold everywhere. My boss is being lenient and letting us...
that's what I was thinking, Nanners. Even bacteria from bird droppings or bat droppings that once was safely inside people's attics might be everywhere now. and I hear that stuff can be lethal to us....
I am a Remicade patient in Alabama. Some areas close to me were completely devestated by recent tornadoes. Now is the time for volunteers and cleanup, but I have to consider the risks. Should I worry...
Well, funny how we find comfort in knowing at least we aren't the only person to experience a wierd symptom? Thanks! yes, I often feel like I have a high temp (head pulsing) and then my temp is too...
I've had an issue lately that I get a spell of one or two days when I feel very tired, weak and my body temperature averages about 97.4. Anybody experience this? yesterday I decided to fight my...
Hey everybody! I was on SCD for 6 months, (strict except apparently I shouldn't have been eating peanut butter) and had some succcess but not as much as I'd hoped. However, three weeks ago I was...
Got a question: why do you guys consider Imuran and 6MP lesser drugs? I had to quit Imuran because it was frying my liver but am doing fine on Remicade, as far as liver function goes....
having said that, I should tell you that I once thought my GI had actually conspired with the surgeon to get me on Remicade. Surgery was my option without Remicade and the surgeon HURT me during exam...
Since Remicade is designed to put you in remission and maintain remission, I'd do it now. I messed around an entire year avoiding my doctors advice to try Remicade. It makes it less likely you'll...
seems there are a few of you that mention the pain lasting a few minutes. Mine lasts for at least 4 hours. wonder why? oh well, still count my blessings....
WOW! I was out a few days and came back to all these replies! Thanks, peeps! Know what's funny? I kind of hope they don't completely go away, because if they did I'm afraid a relapse might just be...
Never had constipation, never had diarhea. Never even had to strain. Just lucky. I have no idea why I keep getting fissures and can't get rid of them. As for medication, I tried absolutely everything...
Remicade keeps me sane, but I'm really tired of this daily pain. and some days are worse than others,like this one!...
Hugs and prayers for Nanners!...
mental stress wasn't a factor in mine. I was running my best and loving life and my job has never caused too much stress. But I was also running A LOT!!! I think the physical stress lead to mine,...
I was just reading that Crohn's disease lurks until you run across a triggering factor. I've always thought that I triggered mine by running a marathon with the flu, and the resulting pneumonia that...
Makes me think of that Henry Rollins song "Liar" And now you're desperate And in need of human contact And then You meet me And you whole world changes Because everything I say is everything you've...
some guy was pushing his probiotics that were "far superior to that junk you buy and the drugstore". HA!...
The spam email thread reminded me that twice I have been the "victim" of people who befriend me on forums and claim to have all my same problems and want my email address so they can talk...
I did SCD for 5 months and yes, I did fail to eliminate a couple of things (peanut butter, apple peel) but I feel like I gave it a good honest try. Didn't heal me but I did learn something: complex...
I have tried twice to take Omega 3 fish oil capsules because I hear they are great for inflammation. However, even at half the dosage they cause my guts to gurgle like crazy and then the next morning...
Ouch Sara! Sounds like trading one for another! But I do understand. Once I had foot pain while I was running but the my knee started hurting. Took my mind off my foot!...
I just wanted to share a pain relief method I've been using for a long time. This method works for anything that is relieved by relaxation (fissures, cramps, some headaches). Here it is: tell...
I don't know what to tell you except to agree it's frustrating. I am the opposite of you. I have only one symptom (fissures) and was told by my GI it was crohn's although my biopsies, CT scan, etc...
Thrombosed..yes!!! Man that hurt and it was only a small one. I remember constantly sitting back on my heal to make it stop pounding. I eventually got a shot of cortisone right in the hemi! cleared...
Thanks, nanners. I'm also worried that maybe it could be a hernia. I had a hernia in that spot (I was born with it) repaired when I was about 3. But I don't feel any bulging guts, so who knows....
For the past 3-4 months I've had some pain in my groin area (about 3 inches below my navel). Kind of feels like it's muscular and if I try to do crunches it really makes it hurt badly. Then within...
Thank you, PV!...
with a little reseach I blew my theory out of the water. marathoning causes an INCREASE in WBC count! and that is only for a short duration....
Not taking anything like imuran. I couldn't tolerate that at all. Hopefully it's just one more thing my marathoning was doing to me. I ran 3 marathons in 3 months and really got run down. caught...
My new infusion doctor tests my blood everytime and for everything. This time he told me my WBC count was lowered to 3.6. He said there was no cause for alarm but that I should stay vigilant and if...
and there's always that slim chance it won't hurt you. Right?!...
After being on the SCD diet for 5 months I pretty much determined most food don't hurt me, except one category: desserts. Specifically cookies and cake. Yes, I've made SCD friendly desserts and yes,...
Exercise is great for letting your body know who's in control! I recently did 3 marathons. wouldn't suggest doing anything that crazy. i basically did it to prove i still could post crohn's...
The anti was for the sinus infection and it was just moxicillin. yeah, i'm no fan of antib's but i also eat my homemade yogurt to counteract. the stomach issue is something going around to everyone...
I'm just hoping the troops don't set up a hostile puppet goverment after the invaders leave! If my metaphor isn't very clear, I hope my immune system doesn't rev up worse than before and keep...
about three weeks ago I developed a sinus and bronchial infection. Got on antibiotics. My crohn's symptoms stayed about the same as always. But the day after I got off the anti-bs I got a wicked...
Oh, my friend knows WAY more than my doctor. This guy told me my GI was dumb because he put me on a liquid diet the day before my colonoscopy because "food takes only three hours to leave the stomach...
I tell people all the time: I don't have trouble staying on a diet but everybody else seems to have a problem with me staying on my diet!...
I really hate when people try to accomodate me. i know it's just being nice but I'm sick of "we're all going out for lunch..can you eat (such and such)?"...
For real, Sheep. Last week a guy in my office said he has "borderline crohn's". Like being kind of pregnant?...
After righting this post yesterday I talked to my mother on the phone. She read that Archway brand (and ONLY Archway brand) coconut macaroons ease crohn's symptoms! God bless her. Ironic that I...
Nanners, that's hilarious. I also hate when people try to guess what you can and can't eat. Today I was offerred cornbread. I said "well, I can't eat it if it has corn, or bread in it". :tongue:...
My own sweet Mom is guilty of this. She's always seeing some colon health product advertised and telling me about it....