I'm really sorry to hear that you're still struggling and suffering, NCOT. I wonder if you might find this site helpful. It offers free psychological support programmes for people with IBD-related...
Very sorry you're going through this, pb....
Hi NCOT, Funnily enough, I posted here in about 2007 asking something very similar, so if you can do a back search on this forum, you may just be able to find some extra posts from some other...
Thanks, C2. I very nearly missed this, and that would have been a shame. If VV wants to email me (addy is in my profile) that'd be lovely. I miss Eljay, too, and want to know how she is. I hope Keah...
I just wrote a longer reply and lost it, and don't have time to rewrite it now, but basically: rapid healing (as you can get on Rem) can lead to an abscess forming, so I'd call my doctor asap and let...
Wow. Not ok. At all. I like the strategy your decent nurses suggested, of having one of them sent for. At least you can be assured of better treatment that way. I'm so sorry you had to go through...
(((mgtman)))...
Yay! Congratulations! I'm so happy for you. They're beautiful little girls :-)...
(((Dorri)))...
OK. Aunty Ivy is going to get moderately cross for a minute. Note to NCOT's family: NCOT IS VERY SICK. Stop asking so much of her. Yes, it's fun and good to go to the fair, but it's not good to eat...
I agree with Ambling: gut imbalance is oooooooold news... but it is nice that your gastro doc has caught up with it :-)...
Good heavens! What did you do to get noticed by the nurse? I'm glad you aren't having any obvious side effects from the mtx. They generally hit me for six and really dominated my weekly routine, so I...
I think it's time to call the doctor, Jet....
What Beave said....
bump...
I would advise you to just take one step at a time, and to try not to think too far ahead. You'll probably find that you feel a lot more comfortable once you've had the seton inserted, as this should...
NCOT, I think the point with the honey being banned on fodmaps is the type of -ose it contains. It's late and I'm too tired to hunt out my info sheet, but I think you'll find that glucose is not...
I think Dave and Ambling have a lot of sensible and wise things to say. NCOT, this isn't SCD food, but when I was just starting back on solid foods, I used to have small servings of stewed apple,...
Would the NHS pay for you to have worms?...
Wow. That's amazingly innovative of a regular consultant, then. Do you have a starting date for your Humira? I think you'll find it much easier: no more long trips to hospital; no more long days...
:-)...
Hey, that's really exciting. Was this the whiz-bang super-duper doctor in London?...
I don't know much about US football, but if your players are in their late teens and twenties, it could also be because that is a peak age for Crohn's onset anyway. They get diagnosed, they get...
Grrrrrrrrrrrrrrr...........
My goodness! I am so happy for you, Isergodur! Congratulations to you and your fiance. Please keep us up-to-date on how you're going. It's nice to see good news here :-) Ivy....
And, of course, you're in fine shape to make financial decisions when you're drugged up, aren't you???...
:-0 No way. Horrified. Speechless. :-0...
Wow. That's not good enough, on multiple levels. I'm so sorry you had to go through that, pmedic. At the very least, they should have told you on admission, instead of waiting for two days! Grrrrrr....
Ow. I'm sorry, NCOT....
I had massive pain and a huge impaction once - hospital for a week; lots of pain management - and it came as a real surprise, as I had watery diarrhoea the whole time; the sort of bm you'd expect to...
What about, "I have a surgical wound that isn't healing properly (or has developed an infection / abscess) and the doctors need to drain it and / or investigate it to work out why it isn't healing,...
Hello Vixen! Thanks for asking. I'm ok, thanks; having good times and bad times like everyone here, but at least not stuck in a severe flare the way I was a few years ago. Haven't exactly been having...
Nice to see you! How's your mother?...
*applause* to Gumby. Well said! And I agree....
Any help on the diet / doctor / nurse front? (I owe you email, sorry: been a mad few weeks here)....
Kudos to anyone who does such a hard job with such a tiring disease....
Long time no see! How are you?...
My stoma nurse took great pains to tell me that the posts you see on the ostomies board are not indicative of the typical ostomy experience. Just as with the Crohn's board, people tend to post there...
Generally, no, you don't have to drink anything for a perianal scan. Or at least, I haven't had to. Be prepared: they might want to stick a tiny probe up your bottom, though, that has to stay in...
Just waving hello to a fellow Aussie :-). Hi there, aussiecrohn - good to meet you....
Is it possible that the cravings are a sign of malnutrition, chook? I shall tell you more of my nutty food orientated behaviour while I was on the feeding tube, if you like. You have mail as well....
NCOT, *please* don't give up. As Vixen and the others have said, there's bound to be a drink that's more tolerable. And those pots sound nice. The first two weeks are the hardest. You've done so, so,...
I'd like to know how she is, too....
:-) No worries....
did you know there's a mass spammer on the forum? 102+ posts so far......
(hugs) What did the doctor say, keepingfaith?...
fwiw, I think your doctor and your surgeon should get together and talk, and devise some sort of plan of action, instead of seemingly contradicting each other, and leaving the decision with you. It's...
Oh, NCOT. *hug* What a mess......
Best wishes to your FIL, Dawg....