they must have made pretty rapid progress with all those things, because when i was diagnosed in 2004 remicade was the first treatment i was put on, and it was just a normal IV bag. never had a...
Technically we're all aging! Why, just last year I was 26. Now I'm 27. Horrifying....
your mileage may vary. i typically feel fine, but my usual rhythms are always disrupted in some way- take too long to fall asleep, wake up early, feeling restless, etc. usually just 1-2 of those for...
I had one on my anus when I was diagnosed, and it was extremely irritated, but once I started getting treatment it got so small as to be negligible. The other is in my belly button, and never gets...
Concur with beave regarding prednisone. My doctors use it as a we-need-to-keep-you-from-getting-any-worse-while-we-implement-another-solution drug. Prednisone is a pretty heavy-hitting medication,...
Others have touched on this: If a diet is so restrictive you can no longer stomach it and your appetite goes down, it is not an effective diet for you. An effective diet, first and foremost, provides...
They're generally pretty targeted, only blocking certain barriers (usually the one in your guts) to prevent your immune system from getting in there and wreaking havoc. Just be more conscious about...
Been feeling better so haven't been checking this board as much. Just saw this, though, and had a good laugh. "Stereotypes" hah! Some people just have a victim complex. I find it best to either laugh...
Never to both. I was diagnosed at 16 (27 now) and used that as an excuse anytime people would try to pressure me. Worked great. Didnt have my first drink until I was like 22 or so. Only smoking ive...
Crohn's itself doesn't really lower our life expectancy. It's all the usual stuff: nutrition, general level of health, that sort of thing. Same as anyone else. Where the discrepancy comes in is that...
I'm more embarrassed by being on disability than having Crohn's. No one ever asks about your poop when making small talk. But "What do you do for a living?" is smalltalk 101. I usually tell people...
most people cant tell the difference between correlation and causation, sadly...
Are you passing stool easily? My pain meds shut down my guts, which resulted in the most awful bloating. Passing anything was a chore, and so was eating. If you're on opioid painkillers, that could...
Could be as many as 12, if they're on weekly. I doubt that, if they're healthy enough to go hiking, but they could be. Also might be syringes. And you'll need to carry your sharps container, too, now...
Battery/solar/fridge is still my best idea....
I don't know how you'll keep it cold. The best I can think of is to bring a solar panel, high efficiency battery, and either a portable ice maker or a small fridge. Rig up a backpack so that it can...
he's a cardiologist, dafuq does he know?...
I just try not to think about it too deeply. I escape into books, video games, Lego, whatever I can. Sometimes, when it all gets too much, I have myself a good cry. That helps, too. I understand...
It was removed to try to stem the anti-vax hysteria. Mercury (Hg) isn't Mercury (Hg) when it's C9H9HgNaO2S. While Thimerosal is an organomercury compound and therefore might be toxic, there is no...
Pretty much all states had, at one point, laws like that. The only way out of vaccination was medical necessity, or in some states religious exemptions. Then Andrew Wakefield made up that bullshit...
The mercury used in vaccines isn't even the toxic kind. Totally different molecule. Freaking out over it is akin to freaking out over salt because it has chlorine in it (it does). Another fun fact:...
Powerade and Gatorade are pretty much interchangeable. I don't recall how they compare to soda, aside from "way better" but they've still got a significant amount of sugar. But the sugar thing was...
We have Powerade in the States. I used to drink Gatorade all the time but stopped because it was too much sugar and it was loosening my already extremely loose poo. But other than that, no problems...
I stick to what I think of as lighter foods, which typically means they're easier to digest. pasta, oatmeal, bread, rice, that sort of thing. 'course it's hard to eat the required number of calories...
see this? this right here is why people argue with you tooth and nail. you're being arrogant, dismissive, and rude. No one likes to be told they'r wrong (whether they are or not) and people like it...
People are often surprised when I mention blood in my poo. like i'm still filtering it heavily because i dont want to gross them out too bad, and they're suddenly deeply concerned because of bloody...
Well I know there's a Crohn's subreddit (/r/crohnsdisease), and I know there's a subreddit for teenagers (/r/teenagers) "As per reddit's privacy policy, if you are under 13 you require parental...
Of all the theories I've heard this makes the most sense to me. If it were simple we'd know for sure already....
yeah, my parents have a detachable showerhead. it's great. but i live in an apartment and i'm not allowed to modify things....
mine was a gift, but I think my mom got it on Amazon. Search for "portable bidet" and it should come up....
I realized today that this is a problem we all share, and that my solution may not be very common, at least in the States. So I thought I'd share. I use a portable bidet, similar to this one. It's...
mine never subsided at all after surgery, but that's because getting all the disease out wasn't an option. i'd have no digestive system left at all. it's waaaay too dispersed. so they just took out...
Didn't feel ignored, don't worry. I just saw an opportunity to try to get the same idea across in a new way. Mental stuff is hard; everyone thinks in a slightly different way. So the greater the...
yeah, Mayo does tylenol/benadryl pre-meds as a preventative measure. i also get solumedrol (sp?) as a pre-med because i've been on it before. for side-effects, i haven't seen that many. i noticed for...
sometimes when my guts are shifting to a new normal, i'll feel constipated but still be passing formed stool. i picture it like a traffic jam due to lane closure. cars still get through and behave...
[X] Person is alive. [X] Person wishes to remain that way. [X] Person is talking about their problems. [?] Person enjoys X. [?] Person does Y. [?] Person plans to do Z. i don't know you well enough...
Hopefully the medication will put her into remission and she can eat what she wants, but if issues persist, I second the diet recommendation. Diet can (not often, but it does happen for some people)...
section 8 is actually being phased out; it's being replaced with a more direct system. my rent is income-based and capped at 30% of my income, so when my income was ONLY disability, that meant i paid...
i love my parents, and they're hugely supportive, but getting out of that house was the best thing i've done in years. my mom and i are too much alike, and living together just means we're pushing...
are you eating not long before bed? or have you tried sleeping in a different position? dunno how much that'd help, but maybe your system is having trouble keeping things moving while you sleep,...
pretty sure we have folks who deal with constipation. i'm not usually one; it takes a drug reaction to do that to me. when it happens, though, it's really, really awful and by far the worst pain i've...
i get pain from gas. severity of gas determines the severity of pain. only solution i've found is to get rid of the gas's source and wait until i've passed it. you're not constipated? because that's...
my mom has that. it's awful. i'm sorry....
hey, man. i'm a guy and from MN, so no luck for you here. but threads like these, you kinda bare yourself. feels bad if no one replies. dunno if that'd happen, but figured it can't hurt to make sure...
You guys ever think about who you would be if you never got Crohn's? It's been on my mind a lot the last few weeks. My disease presented at 16. That age, you really grow a lot as a person. And I'm...
I answer with "I don't." and then at the questioning look continue "I'm on disability, because of my Crohn's." Sometimes I don't wait for the look. That's usually enough to quash any interest. Of...
ouch. yeah, that one sucks. i try to get ahead of that one; i often make mournful/sarcastic jokes about how much time i have. buddies will be talking about having to work the next morning and i'll...
I get this, too, any time i transition from feeling bad to feeling decent. i think it's my body re-adjusting itself to my new normal. i adjust my loperamide use and my diet to match (more variety,...
i don't see anything at all wrong with "i'm sorry." The guy's video/complaint seems to be based on a very common misconception, though: Sorry is not necessarily an apology, it can mean a several...
this is how my body tells me i need to poop these days. i think its just because my guts are so used to liquid poo they over-react to normal poo....