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Laughing Willow

HealingWell Forum
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Member Profile
Display Name
Laughing Willow
Profile Created
10/20/2008 12:06 PM
Last Seen
11/27/2018 10:24 AM
Total Posts
69

Last 50 Posts

For SCDers - Plantains

I've been eating them for the last few weeks with no problems. However, I'm currently blessed with a perfect remission, so I don't know if my experiences with plantains means anything or not. I know...

7/1/2011 10:12 AM

Crohn's Disease
For SCDers - Plantains

Dave, the information on scdiet.org came directly from Elaine Gottschall from a question posed to her on the old listserv. Her reply was the following: "If you can be sure there is no sweetener added...

7/1/2011 7:49 AM

Crohn's Disease
For SCDers - Plantains

The other week I passed by a bag of plantain chips and after checking the ingredients I felt reasonably confident about buying them. I checked scdiet.org and found out that they are an approved food...

6/30/2011 4:22 PM

Crohn's Disease
When SCD doesnt work. Im free of crohns.

That's pretty cool. It sounds like you're doing an extreme version of Dr. Lutz' Life Without Bread diet. His reccomendation was to limit carbs to 72g per day. He also wrote about the traditional...

6/26/2011 1:18 PM

Crohn's Disease
SCD Diet

Dave and CDS1, I definitely agree with the sentiment of your posts about doctors and nutrition. It can't all be on the doctors to fix us. I personally believe that anybody with a chronic or life...

6/8/2011 9:01 AM

Crohn's Disease
SCD Diet

Not trying to be argumentative, but I've been pretty clear throughout this thread that the diet does not work for everybody, nor have I ever referred to it as a cure....

6/8/2011 7:48 AM

Crohn's Disease
SCD Diet

Funny story: last time I was getting Remicade, my nurse told me how bad the diets were of the GI docs at the office. She said that they had recently had a catered lunch from some fast food place and...

6/8/2011 7:06 AM

Crohn's Disease
SCD Diet

As to why doctors don't tell us about this diet if it works, the reason is simple: most doctors neither care about nor understand the effects of diet on the body. They receive very little education...

6/8/2011 6:57 AM

Crohn's Disease
SCD Diet

Dave, I've been trying to find the exact quote on the web from Elaine Gottschall about these numbers, but I think I remember it fairly well. These numbers are strictly based on anecdotal reports that...

6/8/2011 6:50 AM

Crohn's Disease
SCD Diet

Sooper, 6 months is probably long enough that you should have seen some results. I've heard of cases where it has taken that long and even longer to see results. But for most people for whom it...

6/8/2011 4:03 AM

Crohn's Disease
SCD Diet

That's great news! I hope this trend continues for you well into the future. I do use a store bought mayonnaise that as far as I can tell is legal. It's called Canola Mayonnaise and its put out by...

6/7/2011 8:36 AM

Crohn's Disease
Doc insisting on Cimzia...scared...

Well, I'm not a woman, however, I have been on Remicade for over three years. I teach college students, who are incubators of illness. I've only had one cold since I've been on Remicade. I've not had...

6/6/2011 1:57 PM

Crohn's Disease
To have my large bowel removed or not....

Before going the surgery route, you ought to give the SCD diet a try if all else fails. You wouldn't have anything to lose at that point....

6/3/2011 2:34 PM

Crohn's Disease
DMSO for cramping

I've used it plenty in the past, but no longer do. It's hard for me to say whether it worked or not because I was using other methods at the same time. It definitely did not hurt me. DMSO is nothing...

6/2/2011 4:40 PM

Crohn's Disease
Smoothie recipes

Coconut milk also makes a fantastic base for smoothies!...

5/23/2011 4:49 PM

Crohn's Disease
Reminder regarding wordy/long posts

Here here. And let me point out that you are more likely to receive replies by using good punctuation. I don't usually bother to read posts that are one big block of text with no punctuation. It's...

5/23/2011 3:03 PM

Crohn's Disease
Employment question

Squid Bait, it's great to hear about another CD patient maintaining a med free remission with some form of a carbohydrate restricted diet....

5/20/2011 11:53 AM

Crohn's Disease
Employment question

Dear Squid Bait, welcome to Healing Well. As for your job situation, all I can say is be honest and straight with your employers, but don't reveal any more information than that which is required....

5/19/2011 2:17 PM

Crohn's Disease
SCDers

It's both the processed and whole form of stevia that have the compounds resembling steroids, but there's no solid evidence that they cause real harm to people. Can you tolerate and obtain saccharin?...

5/16/2011 5:33 AM

Crohn's Disease
SCDers

Elaine Gottschall said that stevia could be used if a person absolutely had to use it . Her main beef with it was that it resembled a steroid in molecular structure and its long term effects on...

5/15/2011 2:59 PM

Crohn's Disease
Remicade and hot flashes

Has anybody ever experienced hot flashes as a result of taking Remicade? I've had several in the last week after receiving my last infusion on April 29. I've never had any before and being an...

5/8/2011 1:30 PM

Crohn's Disease
Self Healing Colitis and Crohns

I am very fortunate to be able to say that I've never experienced any side effects on Remicade. It is currently the only med that I'm taking....

4/18/2011 7:40 AM

Crohn's Disease
Self Healing Colitis and Crohns

I briefly considered the diet when I was first diagnosed and even paid to download the book. Ultimately it seemed way too restrictive and I was too thin at the time. It didn't seem possible that I...

4/17/2011 1:32 PM

Crohn's Disease
wormwood herbal

I did go into remission after I started using Sedacrohn. Prior to that I hadn't been able to achieve it. But I also had been on Remicade for 2 months at the time I started taking it. Whether or not...

4/6/2011 10:38 AM

Crohn's Disease
wormwood herbal

I've taken Sedacrohn a few times, but never to taper off of prednisone. I can say for sure that it didn't hurt me any....

4/6/2011 4:31 AM

Crohn's Disease
Herbal remedies for Crohn's

It's not herbal, but you might want to take a look at DMSO. Just do an internet search of Crohn's and DMSO to read about it....

3/30/2011 4:21 AM

Crohn's Disease
New - tell me about remission

I can empathize with the weight issue. I'm 6'3" and dropped down to 139 at my lowest. I'm very close to 180 right now and would like to keep adding for posterity's sake. It's taken a couple of years...

Today 12:15 PM

Crohn's Disease
New - tell me about remission

Dear JustAnother, I am in an almost entirely symptom free remission at the moment. The only CD symptom that I've ever had was abdominal cramping, although it could be excruciating and frequent before...

Today 11:17 AM

Crohn's Disease
Need advice re Hubby

You and your husband really have my sympathy. I'm 6'3" and at my worst I dropped down to 139. I know all too well the depressed feeling that comes from being so thin. I felt deeply ashamed and didn't...

2/26/2011 4:26 PM

Crohn's Disease
Best test for determining location and degree of scar tissue?

I've been in remission from CD since about July of 2008. Periodically, however, I experience excruciating bouts of abdominal cramping. These last around 12 hours and it feels like somebody taking my...

11/9/2010 5:49 AM

Crohn's Disease
Does stress worsen our symptoms?

I must be an anomaly because I went into my first flare at a time when I was feeling about the least amount of stress I've ever felt. Months later I found myself facing the most stressful situation...

10/11/2010 9:26 AM

Crohn's Disease
SCD Weight Loss

Dave, how do you feel the SCD is impacting your Crohn's? Are your symptoms on the wane? I started when I was already in remission, so I can't say for sure how I've been affected. I can't deny the...

10/10/2010 1:17 PM

Crohn's Disease
crazy harry colonoscopy results

Crazy Harry, you are truly an inspiration! Whenever I see that you've posted something, I know it's gonna be good food for thought!...

10/9/2010 1:35 PM

Crohn's Disease
SCD Weight Loss

It could be a matter of you not absorbing nutrients if you are in a flare and still inflamed. How tall are you? I'm 6'3" 172 right now. But I've put on close to 20 pounds since I started the SCD in...

10/9/2010 1:29 PM

Crohn's Disease
Helminthic therapy, hookworms, whipworms and how I achieved remission from Crohn's - Part 2

Thank you for the reply, HT. Yes, I am concerned about any potential side effects of Remicade. At the time I was put on it, I was in a bad way and hadn't done well on other medications, with the...

9/30/2010 4:03 PM

Crohn's Disease
Helminthic therapy, hookworms, whipworms and how I achieved remission from Crohn's - Part 2

HT, thank you for such an informative thread and taking time to answer questions. I am quite fascinated by any alternative treatment that is ostensibly rooted in scientific evidence. I haven't yet...

9/30/2010 3:16 PM

Crohn's Disease
Starting SCD

I buy my nut butter in bulk online. When you go thru as much as I do, that's really the best way to save money. And I always use equal parts peanut butter to other butter to try to save a little...

9/26/2010 1:19 PM

Crohn's Disease
Starting SCD

The following is from scdiet.org. I hope this helps some. Homemade Pancake Syrups OK, in that "Sweet and Sugarfree" fruit-based dessert cookbook that I mentioned before, I found plenty of SCD stuff....

9/21/2010 6:38 AM

Crohn's Disease
Starting SCD

Yeah, there are lots of recipes available for making SCD legal pancakes and waffles. I hear they are quite good, but I've never tried them myself. Maple syrup is definitely on the illegal list. Honey...

9/21/2010 5:28 AM

Crohn's Disease
Starting SCD

A word about nut flours...yes, they are considered an advanced food. I never use them anymore. They make really great baked goods like muffins and cookies, but the bread is so depressingly awful that...

9/20/2010 1:58 PM

Crohn's Disease
Any nausea suggestions?

Nausea is so unbelievably horrible. There are many different forms of physical pain that I'd rather put up with than a case of bad nausea. That said, I'd give ginger a try before moving on to a...

9/20/2010 11:53 AM

Crohn's Disease
Starting SCD

The Yogourmet is definitely the way to go, but as others have pointed out, you'll need to monitor the temperature of the water inside of it. Personally, my Yogourmet has not overheated to date, and...

9/20/2010 8:28 AM

Crohn's Disease
Starting SCD

SCD is the only thing post dx that has allowed me to put any real weight back on. At my lowest, I was 139 pounds. As a 6' 3" male, you can imagine how depressing that was. I was on a very high sugar,...

9/19/2010 1:23 PM

Crohn's Disease
FRUSTRATED!!!

Just out of curiosity here, if a person is in complete remission, then wouldn't it be possible that no tests of any sort would indicate the presence of the disease? My GI doc says that looking at my...

9/14/2010 2:30 PM

Crohn's Disease
Low Carb or Carb Modified Diet question?

Anybody interested in how a low carb diet affects Crohn's should check out the book "Life Without Bread" by Dr. Wolfgang Lutz. He was an Austrian doctor who claimed great success in treating CD with...

9/10/2010 4:27 AM

Crohn's Disease
whats better for immune system and crohn's: Meat or no meat?

My own personal opinion as someone who was a vegetarian for 9 years (and a vegan for 1.5 of those years) is that the human anatomy is evolved and designed to digest animal fats and proteins for...

9/6/2010 11:49 AM

Crohn's Disease
height and CD?

6' 3" here. No CD symptoms until the age of 33 and dx'd at age 34....

9/2/2010 1:05 PM

Crohn's Disease
DMSO and melatonin?

I've used DMSO a lot. I went into remission after I started using it regularly on a daily basis. What effect it had on me is difficult to say, because I'd been on Remicade for 3 months by the time I...

9/2/2010 12:01 PM

Crohn's Disease
Eczema

I contracted nummular eczema 8 years before being diagnosed with Crohn's. I've never been able to get rid of it completely and I've tried numerous topical steroids and alternative treatments to clear...

8/5/2010 8:30 AM

Crohn's Disease
What did you eat for dinner?

I rarely eat dinner in the traditional sense. Around mid-evening I'll have a a bunch of SCD friendly snacks - such as olives, almondtine crackers with cheese, SCD cheesecake, a nut butter brownie,...

6/16/2010 8:23 AM

Crohn's Disease
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