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Roni

HealingWell Forum
>
Member Profile
Display Name
Roni
Profile Created
5/1/2003 4:57 PM
Last Seen
12/26/2017 7:00 AM
Total Posts
2481

Last 50 Posts

randynoguts near death again, but pulls out!

Oh my goodness, Randy, I'm so glad you pulled through that! Miss you and think of you often. God bless, Roni....

12/31/2012 10:55 PM

Crohn's Disease
Ways to help my 3 year old?...

Sorry to hear about your son. I second the flagyl/cipro combo. Also you should look into some probiotics for kids and also reducing or eliminating gluten, dairy, and sugary foods until he gets into...

11/6/2012 6:05 AM

Crohn's Disease
just an update on me....

Hi Randy. How's the humira going? I've heard the needle is less painful than the pen. Which are you using?...

11/6/2012 6:02 AM

Crohn's Disease
Does anyone know if there is a company i can buy human hook and whipworms for Crohns in Australia ?

Oh, that's a little concerning. I've been sort of following that treatment through the years. There was a supplier in Europe (for pig whipworm) and another supplier in Mexico (hookworm). Please...

6/11/2012 7:09 AM

Crohn's Disease
...family support

I think it's very hard for some people (usually ppl close to us) to have ongoing empathy. It's unfortunate for us, but no matter what, we have to be strong for ourselves, and surround ourselves with...

6/11/2012 7:04 AM

Crohn's Disease
All pooped out.

One of the possible causes of having d after resections is because of the removal of the ileocecal valve. I've been going through the same thing. I use cholestyramine to help bulk me up, and take...

6/11/2012 6:57 AM

Crohn's Disease
Crohns destroying my happy go luck person

Hi, I don't know much about seton drains and fistulas (hopefully someone else will respond soon), but I just want you to know I can relate to the rest, the pain, fatigue, tending to young children...

6/11/2012 6:50 AM

Crohn's Disease
Do I have seizures?

You can provide a link, retype, or copy and paste....

6/8/2012 6:41 AM

Epilepsy
Dilantin

Ask the pharmacist or doctor....

6/8/2012 6:40 AM

Epilepsy
1 or 2 glasses of wine & prednisone can I ??? Do you ?? Just for today??

Prednisone has been known to cause or increase psychological disturbances in some patients. 40 mg. is not a low dose, it is definitely a moderate dose. I think you should contact your doctor and...

6/8/2012 6:33 AM

Crohn's Disease
For the ladies, (birth control)

The pharmacist should be able to tell you. Hope she's being safe and smart....

6/4/2012 7:11 PM

Crohn's Disease
Humira and hotels, dorms, camps

Just A Drop will drastically reduce the smell of stool in the toilet. You put a couple of drops before you go and it really really helps. Check your local pharmacy. As for gas odours, you might want...

6/4/2012 7:10 PM

Crohn's Disease
What is the correct way to take predisone?

Usually once per day in the morning, and definitely with food. Hope it helps!...

6/4/2012 9:11 AM

Crohn's Disease
Recently feel no good

Symptoms of a blockage include (but aren't limited to): very bloated tummy, unable to pass a lot of gas and very little or no stool for a while, a lot of pain and discomfort, very full feeling....

6/3/2012 7:31 AM

Crohn's Disease
OT: Just a quick update on me and my pregnancy

Congratulations on the twins and having a healthy pregnancy! That's fantastic news! When the twins are born, make sure your GI is readily available to keep you as well as possible. Also, ask...

6/3/2012 7:12 AM

Crohn's Disease
how to cope with Crohn's

Hi and welcome! Hopefully, as you ween off the pred, your mood will improve. Your best friends and closes family around you should be understanding and put themselves aside. It's not about them, it's...

6/3/2012 7:06 AM

Crohn's Disease
Recently feel no good

If you have a stomach ulcer, you should be tested for H. Pylori, you can't be on antacids for this blood test. Do you have Crohn's Disease or an ulcer?...

6/1/2012 7:31 PM

Crohn's Disease
So confused.....

Mother Risk at Sick Kids in Toronto has world-renowned research about these meds. My kids just participated in one for long-term effects of imuran use during pregnancy. They should be able to give...

6/1/2012 8:38 AM

Crohn's Disease
Recently feel no good

If you want to make some fairly easy diet changes, try going gluten free and dairy free, and limit your processed foods and sugar. Hope you will feel better soon!...

6/1/2012 8:30 AM

Crohn's Disease
Friend from high school "cured" Crohn's! Here's how:

Oh, pb4, you had to mention the McCain chocolate cake! I've been trying to forget about those for years. :-P And to this day, it is painful to pass by them down that aisle at the grocery store....

6/1/2012 8:26 AM

Crohn's Disease
Friend from high school "cured" Crohn's! Here's how:

Tell that to my picky kids, please. haha....

6/1/2012 7:26 AM

Crohn's Disease
Doesn't make sense

Thanks for sharing that beave. One thing I find interesting is that it also doesn't work well if the patient doesn't take it regularly. I take my pentasa regularly, and I can understand why it...

6/1/2012 7:25 AM

Crohn's Disease
Friend from high school "cured" Crohn's! Here's how:

I appreciate you were sharing a story and not implying you or your friend found a cure for crohn's. Does you friend know you posted her message? She's not going to be shocked seeing it online, I...

5/31/2012 11:18 AM

Crohn's Disease
Friend from high school "cured" Crohn's! Here's how:

ConfusedByCrohns, I think you can see the word "cure" is a highly sensitive one with people who are chronically ill, and many of whom have exhausted diet and treatment options. None of us are exactly...

5/31/2012 8:17 AM

Crohn's Disease
Doesn't make sense

Guess we'll find out at some point, if that's the case. Insurance cos are still covering it for now. And it is expensive, isn't it?...

5/31/2012 8:03 AM

Crohn's Disease
Back home after surgery.

bella, I'm so happy that you got those fixed. I hope you will have years and years of remission and freedom to eat a little more and enjoy life. Go slow with trying new foods (if you are planning on...

5/31/2012 5:52 AM

Crohn's Disease
Friend from high school "cured" Crohn's! Here's how:

When CDers are flaring, I think there is something to eating a highly nutritional, easy-to-digest diet, that hopefully can help reduce bad bacteria too. There is a study being conducted by a US...

5/31/2012 5:47 AM

Crohn's Disease
Clindamycin and crohns?

So the clindamycin caused an overgrowth of other bacteria? That does happen sometimes. Sorry to hear about your suffering. I can just imagine how horrible it was to have your jpouch in such a state....

5/31/2012 5:42 AM

Crohn's Disease
Doesn't make sense

sc91, probably a good idea to see if there is a better option for you, if you think the pentasa was causing side effects. I'm glad you're feeling better though. Take care!...

5/31/2012 5:34 AM

Crohn's Disease
Doesn't make sense

thanksclindamcyin, I suggest you talk with your GI about the efficacy of your treatment, especially if you are still sick. One thing we know for sure is that there are newer and older studies (90s...

5/31/2012 5:29 AM

Crohn's Disease
Large Amounts Of Blood

Oh, I hope this issue will resolve quickly. Don't hesitate to go into ER. Take care!...

5/30/2012 8:35 PM

Crohn's Disease
Doesn't make sense

I need more than just heresay though. Studies are still posted online and in health journals that don't say that. Do you have any links (articles or studies) about that?...

5/30/2012 5:25 PM

Crohn's Disease
Doesn't make sense

My understanding is that for patients with ileo disease, Pentasa does help prevent recurrence. Pentasa probably won't help moderate/severe CD, or prevent recurrence in patients who have resections in...

5/30/2012 4:21 PM

Crohn's Disease
Doesn't make sense

What were your symptoms on pentasa? Maybe you should try switching to something different and hopefully a little less expensive....

5/30/2012 3:15 PM

Crohn's Disease
apriso and Pentasa: Make anyone else vomit?

Osteo is a possibility, but there are other meds to help correct that. Mostly likely won't happen from entocort as much as prednisone, in my understanding. I think you should ask about Imuran, it's...

5/30/2012 2:58 PM

Crohn's Disease
Doesn't make sense

Pentasa has been proven to reduce the chance of recurrence, specifically after resections. Pentasa is hardly absorbed systematically, it's probably not worth taking the risk. Are you on any other...

5/30/2012 2:53 PM

Crohn's Disease
Friend from high school "cured" Crohn's! Here's how:

I also learned a lot from his book, The Maker's Diet. I use the GOL Primal Defense too. They work the best for me....

5/30/2012 11:44 AM

Crohn's Disease
apriso and Pentasa: Make anyone else vomit?

Hi and welcome. Sorry you're having such a hard time. At least you do your homework for everything, which is great. I'd say that makes you a great patient because you know what to watch for. Maybe...

5/29/2012 8:21 PM

Crohn's Disease
ileocecal valve removal

Thanks, Vilan. That is interesting. I wonder what is in bananas that is so helpful for you. I also eat bananas and find them helpful sometimes, but sometimes they don't always sit well with me. Also,...

5/29/2012 8:15 PM

Crohn's Disease
Female crohns complications?

There's no way that could come out the "v" or uterus from the intestines, unless you had a big fistula, which would also leak stool and gas, not white stuff. Follow the advice of your gyn. or get a...

5/29/2012 6:19 AM

Crohn's Disease
Violence and looking for objects to throw

I'm not an expert in epilepsy, but "Attention Seeking" isn't a proper diagnosis for your mother's bad behaviour, and people with epilepsy exhibit spasms and jerks during certain type of seizures that...

5/28/2012 6:26 PM

Epilepsy
Female crohns complications?

I don't think it's crohn's related. Is it possible you had a cyst that burst? Or could it be related to the iud? I would definitely request an ultrasound to make sure the IUD is still working...

5/28/2012 5:58 PM

Crohn's Disease
Mild Crohn's

I insist this feuding stops immediately. Put each other on ignore and exchange emails to debate and argue. :nono:...

5/28/2012 12:08 PM

Crohn's Disease
I don't think I have the patience to post here for much longer

Instead of posting complaints here and going back and forth, it's better and less stressful to email or alert admin and to press the ignore button. I'm alerting admin and locking this thread. This...

5/28/2012 6:53 AM

Crohn's Disease
Suggestions needed please

Could be scar tissue too, or even stool passing through scar tissue. Also adhesions (which commonly form after surgeries) cause sharp pains, especially after moving a certain way that causes them to...

5/27/2012 7:47 PM

Crohn's Disease
Question

Clardner, I encourage you to be monitored by your GI and continue with your check-ups after this flare gets under control, which I hope will happen quickly for you. Sorry for the bickering here. I'm...

5/27/2012 7:32 PM

Crohn's Disease
what possitvie changes should i see with remicade

Little stringy meaning skinny, but more solid? If the stool is solid but skinny, it could indicate that you have some scar tissue or narrowing. The bleeding might not be from active CD, it could also...

5/27/2012 7:13 PM

Crohn's Disease
Do These Results Mean Anything?

Vit. D is common with CD as well. Many CDers take D3 regularly. Probably a good idea to discuss the results with your doc though. Good luck!...

5/27/2012 7:10 PM

Crohn's Disease
I don't think I have the patience to post here for much longer

Meds are not bad. Everything has a purpose and it all comes from God's green earth in one way or another. Moderation is key....

5/27/2012 7:08 PM

Crohn's Disease
Violence and looking for objects to throw

That doesn't sound like a seizure. Certainly not normal behaviour, either. Is she intoxicated? Does she have mental illness? She needs to get some medical help, maybe a psychologist or some other...

5/27/2012 8:40 AM

Epilepsy
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