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isergodur

HealingWell Forum
>
Member Profile
Display Name
isergodur
Profile Created
1/9/2009 3:58 AM
Last Seen
6/27/2017 9:44 AM
Total Posts
832

Last 50 Posts

Lung problems on Humira

I have been on Humira for 7 years and it works well. Now I am in the hospital with shortness of breath and low oxygen saturation when walking. The docs think its Humira that is causing me lung...

6/26/2017 1:41 PM

Crohn's Disease
New humira formula

They changed it for all I think but I have heard that it will not be in the US until jan 2017....

12/1/2016 4:59 PM

Crohn's Disease
New humira formula

I have been on Humira for 6 years. It works well but the shots are a nightmare, they hurt so much. Its like a burn. Well last week I got a shot and it did not hurt at all! They have changed the...

11/28/2016 8:01 AM

Crohn's Disease
Blood work and flares

Just had a scope and my colon is inflamed almost all the way through and it came as a surprise to my doc due to my blood work being so fine. Now I am on Humira every week for a month then another...

4/21/2016 5:43 PM

Crohn's Disease
Blood work and flares

Thank you. 10 is high for me. But I have had it in the 100 range but that was due to other infections on top of crohns. I am talking to my nurse today she is ordering a scope...

4/6/2016 6:13 AM

Crohn's Disease
Blood work and flares

I have been getting worse now for the last month with urgency, cramps and bad pain that is either sharp on the right upper side or heavy all over my abdomen. The problem is that my blood work is...

4/5/2016 7:56 PM

Crohn's Disease
Question - I have UC but have not had surgery

Thanks for asking this question Chrissy. I was logging in to ask the exact same thing. I have had UC for almost 8 years and I am having a rough flare at the moment and I honestly feel like I could do...

5/2/2015 5:30 AM

Ostomies
STOPPING HUMIRA

I quit over a year ago. Did well until recently. flairing with drastic weight loss and bruising. Plus so so sleepy. Starting again after easter...

4/5/2015 5:29 PM

Ulcerative Colitis
Picoprep picolax

The scope was ok I had inflammation in the rectum and lower colon and esophagus from GERD. They also found one polyp hope its nothing. But I had a hard time after the scope so much gas pain that I...

3/10/2015 3:08 PM

Crohn's Disease
Picoprep picolax

I just wanted to share my cleanse for a colon scope I have used golytely before found it hard to drink so much but prefered it at room temp. I did vomit a bit Then I did fleet I think very salty...

3/9/2015 1:45 PM

Crohn's Disease
Feeling full and nauseous, need input

I was dx with crohns in 2008 and mostly had trouble with my colon and d. But also have GERD and diaphram hernia. I was on humira until march last year been doing great for the most part except last...

3/7/2015 4:26 PM

Crohn's Disease
Humira and pregnancy

I have 2.5 year old identical twin girls. I was om humira the entire pregnancy and all went well. They are born at 35 weeks but where strong and healthy. I just went into labour early and had a...

3/7/2015 2:31 PM

Crohn's Disease
Starting Humira again? Anyone done it?

So I started remicade in jan 2009 then got allergic and started Humira in feb 2010. After 4 years I was so done with Humira and the awful pain it was causing me when I got the shot so I stopped. Now...

10/6/2014 12:21 PM

Crohn's Disease
I'm afraid my period will not come :(

Your period is one of those things you wait for but when its there you wish you would have gotten it later :) So just relax it will come one day and until then enjoy being free from it. " Most of the...

10/6/2014 12:17 PM

Crohn's Disease
Need help. Wondering whats going on

That is what I think is going on, I have been on Humira for 5 years, Remicade before that but recently stopped taking Humira and this all started after that. My dad's sibling are on Remicade for...

7/9/2014 7:48 PM

Rheumatoid Arthritis
Need help. Wondering whats going on

Met with my doctor today he sent me in for more blood test's he will be calling me with the results. Last fall I had an MRI of the brain and all of the spine it was clear but the doc talked about...

7/9/2014 7:45 PM

Rheumatoid Arthritis
Need help. Wondering whats going on

So I am dx with Crohn's, AIH and some kind of arthritis following the crohn's. 4 months ago I took a break from Humira after 6 years of being on it. Well today I am not doing so well. I have trouble...

6/30/2014 4:49 AM

Rheumatoid Arthritis
Guys, what if we just don't take meds?

At the moment I am doing this. No meds what so ever but I am staying active and fit and I feel great. BUT I was in remission when I quit Humira 3 months ago and my GI is following me closely so far...

6/5/2014 5:41 PM

Crohn's Disease
Quitting Humira :)

So I have been off Humira for 8 weeks now and I feel no worsening of my symptoms. It was not planned to quit but I got sick and have been battling infections so I could not use Humira while we did...

5/14/2014 3:45 PM

Crohn's Disease
Odd question, but I need help for a four legged loved one.

My girls are 21 months old now and doing great. My pregnancy was a dream! I was so healthy and it was like I was not even pregnant with two babies I felt so great. All my diseases laid dormant. I...

3/31/2014 5:13 AM

Hepatitis
Odd question, but I need help for a four legged loved one.

You are so right and I don't know how I did not manage to see this one coming after 17 years of owning dogs :P Her stools are back to normal now but I guess I will have to follow them closely and...

3/31/2014 2:49 AM

Hepatitis
Odd question, but I need help for a four legged loved one.

I know this is not the right place for this but since I have AIH and have been a lurker for a very long time and sometimes post I know this is the best group to ask for advice since I am a little bit...

3/29/2014 3:43 PM

Hepatitis
Boyfriend's family is really evil

What a mean thing to say. How did yoh find out about this conversation? And what does your boyfriend think?...

12/11/2013 5:52 PM

Crohn's Disease
Most heart breaking thing about CD.....

I feel your pain. Its hard having babies and CD My girls are now 17 months old and they sit on my lap while I am on the toilet. Its so hard in the morning because I make them breakfast and have to...

12/5/2013 12:23 PM

Crohn's Disease
Just got diagnosed with ADHD. Concerta and Crohn's

On top of a long list of all my other troubles. Well trying to look at the bright side of life :) So my doctor put me on Concerta and I was wondering if anyone has tried that drug and feels any...

11/21/2013 11:41 AM

Crohn's Disease
Humira - Pen or Syringe?

Are the syringes still available in the US? I was told that I could not get them over here in Europe any more. For me the pen is awfully painful the syringes are much better since I can control how...

11/21/2013 11:39 AM

Crohn's Disease
MRI Bright white spot

I had a MRI of my abdomen today since I have AIH. Well some how I thought it was a brilliant idea to get the images home with me on a CD. So I was running through them did not notice anything wrong...

10/15/2013 6:54 AM

Hepatitis
Humira and Demyelinating disease or MS

I do have a positive ANA but not sure if the anti-dsDNA has been tested. mouth sores is something I am familiar with. The sun shines all summer long here in Iceland its sunrise at 3 am and it sets...

9/15/2013 2:36 AM

Crohn's Disease
Humira and Demyelinating disease or MS

Thanks Ides I am not sure when I will get the MRI but the doctor sent me for a blood test on Friday and I get the results on Wednesday. I always have joint pain I just thought that it was not...

9/14/2013 6:31 PM

Crohn's Disease
Humira and Demyelinating disease or MS

I have been on Humira for 5 years now with GREAT results. But now I have a small problem. Over a year ago I got a episode that was so strange I almost fainted in a elevator at the hospital and the...

9/14/2013 4:11 PM

Crohn's Disease
having a Dog

I would get a dog that has a bit lower energy level than a lab or beagle but I would get one they help a lot with anxiety and other ilnesses. I would pick a pup that loves to go out and play but who...

9/12/2013 4:56 PM

Crohn's Disease
1 y old with blood in stool

We took her to the hospital and her crp was normal and everything else looked good they suspected that she had a virus....

7/24/2013 4:04 PM

Crohn's Disease
1 y old with blood in stool

My girl has had D for a week and today I found fresh blood and lots of mucus in her diaper. I know its most likely from the d and that her bum is just irritaded but how do you not freak out when you...

7/20/2013 7:58 PM

Crohn's Disease
I think my GI has gone off the rails!!

I had a scope in march 2007 everything was perfect this was before my crohns dx, skip forward one year and I am down to 108 lbs and in full on Crohns flare and my GI did not want to do a scope...

5/18/2013 5:47 PM

Crohn's Disease
Humira Injection Pain Anyone ???

I am sorry I was writing this at 1 am and completely forgot the title :S The thing I was wondering about is if anyone else is feeling this pain. I have tried every trick in the book so I don't think...

4/21/2013 4:53 PM

Crohn's Disease
Humira Injection Pain Anyone ???

I have been on Humira for the last 3 years with great results on my disese. But I have gotten to the point where its so painful that I cant bare to inject it myself, my dad and my fiance have both...

4/20/2013 6:28 PM

Crohn's Disease
pregnancy and crohns - what medication did you take while your were pregnant????

I have Humira twins. Everything went great and the girls are healthy 8month olds....

3/28/2013 7:45 PM

Crohn's Disease
I like you guys to confess to---I still have not called my GI

I would take humira/remicade everyday over pred....

1/26/2013 12:21 PM

Crohn's Disease
total colectomy, now I'm scared

I have just one comment on the single male with ileostomy. I dated a great guy with crohn's before I got diagnosed it never bothered me one bit that he had a ileostomy. If you meet a girl and it...

12/19/2012 1:58 PM

Crohn's Disease
My GI called yesterday: surprise!

Congratulations. I never felt better then when I was pregnant !!! So good that on the operating table I was asking them when I could do this again hehe. The doctors reply was when I could handle the...

12/18/2012 10:05 AM

Crohn's Disease
Need advice about 1 1/2 hour MRI- UPDATE

I had to have a MRI of my head and neck in sept this year and I could listen to music that they provided and they also gave me a mirror over my head so I could see my toes and the control room where...

12/18/2012 2:06 AM

Crohn's Disease
Weight gain due to humira?

Have you done a food diary to see what you are eating ? I recommend myfooddiary.com Thats how my fiance lost 30 pounds. I have always been the same 145 pounds while on humira and not trying to loose...

12/17/2012 6:32 PM

Crohn's Disease
Need opinions on what could be going on

Thanks for the reply's I am not trying to self diagnose I was just curious since my GI did not give me much to think about. I went to see my GI about this and he gave me Rabeprazole and I take them...

12/17/2012 6:19 PM

Crohn's Disease
Need opinions on what could be going on

Lately I have had no appetite and when I do force myself to eat in ordor to stay alive I experince great discomfort and feeling of fullness after just a few bites. I am getting more and more...

12/16/2012 8:06 PM

Crohn's Disease
how to get rid of the prednisone induced body hair

It goes away on its own. Just wait...

11/20/2012 4:00 AM

Crohn's Disease
Anti-map and pregnancy

clarithromycin and ciproxin are pregnancy cat. C so I would speak to your doc and change drugs if you are planning a pregnancy or if you are pregnant. Good luck...

11/5/2012 12:18 AM

Crohn's Disease
Flu shot. What to expect?

No side affects for me and I am on humira. My arm was a bit tender though...

11/3/2012 12:52 AM

Crohn's Disease
Crohns and Abortions

If you are planning to have babies in the future I would do the pill abortion not the procedure. Its less invasive for your cervix so future pregnancy's are likely to go better. I had a rough time in...

10/27/2012 12:12 AM

Crohn's Disease
Link between endometriosis and crohn's?

I was at a endo confrence two weeks ago where they where talking about Endo and auto immune disese. Endo is not a auto immune disese but you are more likely to see them toghter. I have endo and CD...

9/29/2012 5:29 PM

Crohn's Disease
I am out of practice and need advice

I think I am heading into a flare not sure if its due to the fact that I gave birth 3 almost 4 weeks ago or that one of my daughters was rushed to the hospital by ambulance on Wednesday and had to...

8/11/2012 3:27 AM

Crohn's Disease
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