That sounds painful and scary. :( Do you normally ever have pain and nausea as soon as you take a few bites? That has happened to me but not back pain and it was in the middle of a bad flare where...
Yeah, I’ve had MRIs before where they look at the small intestine and bowel and have had me do the prep so I’m going to do it again for this one - it was a medical secretary who books the...
Sara14, they’re going to do an MRI so hopefully can see something with that. I asked about fasting/bowel prep beforehand when I was scheduling it and the woman just said fast for 4 hours before (then...
Hi Barbz, just wanted to let you know I’m sending you some healing energy! That sounds like it could be scary to get news like that and I hope you’re feeling ok - hopefully your dr has a good plan to...
Sara14, not prednisone often but it’s always pushed as a first line of defense. It’s a great drug in that it works so well but the side effects and long term damage is so bad that I usually make sure...
EruditePaul, thank you, that is helpful! My last CT scan was probably 3 years ago (an MRI last year) and I have never had any strictures (that I know of or have shown up in imaging or procedures)....
Sara14, I haven’t asked the dr yet but I have an appt next week - I wasn’t sure if an endoscopy is the best thing to ask for since I have never had one. (Just MRIs & CT scans X-ray abdomen & obv...
I feel like I’ve had Crohn’s issues everywhere and definitely my gums (or maybe that’s just part of the inflammation in my body). One thing I do that I find helpful in general is oil pulling (an...
NiceCupOfTea, that is so stressful! 😕 I’m sorry you’re going thru this! I’m on Humira and it’s def worrying with the refrigeration and delivery - one time I had it delivered to my pharmacy directly,...
Thanks but I’m not interested in changing my medication if the dr can’t determine where the problem is. I was fine/in remission after last year’s flare that lasted a few months. I’ve had to change...
Ahhh, that’s good to know. I’ve had Crohn’s for 15 years and have been on Humira for about 7 years. I’ve has MRIs to look at my entire colon but my colonoscopies only go as far as the beginning of...
Straydog, have you had the pill cam test for your Crohn’s?...
The colonoscopy (in my experience) is just to see the large intestine and ileum, not the rest of the small intestine. I’ve had MRIs and CT scans before for that but this is a different experience now...
No, the last flare was last year, the most recent colonoscopy was just this week. Lots of inflammation and ulcers, etc but I’m wondering if since I’m not normally constipated if I should ask for my...
Hi all, I’m having another crohn’s flare (after my last one a year ago). The colonoscopy shows ulcers, cobbling, inflammation etc etc and the main symptoms I’ve been having are mucus and blood either...
I had psoriasis show up about 8 years after I was first diagnosed with Crohn’s. When I’m having a flare it tends to try and erupt thru my skin in general but for a while I had huge blotches of red...
Oil pulling with coconut oil is an Ayurvedic practice which is generally beneficial for good health - by swishing the oil in your mouth first thing in the morning after tongue scraping it draws the...
Also, you may want to try sipping it over the course of an hour and drinking the water slowly - better to keep it inside you than chugging it and throwing it up (I don't know how you drank it but...
That does not sound fun :( If you aren't having diarrhea that is frequent and eventually turning into clear water (that is slightly yellowish) then the prep won't work. I recently used the Suprep for...
Just to update, it seems the burning starts 24 hours after my dose of Methotrexate and lasts on and off for about 3 days. It's not just mild burning, it's like the kind where of you're chopping...
That sounds awful. :( This happened to me once, I was having a flare but all my bloodwork was coming back normal - I finally insisted on a colonoscopy (like anyone wants one willingly unless they...
Same, I've had 2 previous perianal abscesses and they had to be surgically drained both times - antibiotics alone don't work because they can't reach the abscess. My GI drs also usually prescribe the...
Dale, I tried to be more aware of the time myself and the burning in my eyes and watering seemed to slow/almost stop as the week went on - I took my Methotrexate dose on Tuesday and yesterday and...
I agree and was just thinking that today; it has slowed down so much since I first found this years ago. I agree when people are well they're not here as often/at all and I'm the same - but if I am...
ASellers, I originally was diagnosed with UC then later they changed the DX to Crohn's - it's not uncommon. It can be scary at first but it's good they found the fistula and a good colorectal surgeon...
Dale, that is so similar to what I am experiencing. I've been on it for about 4 weeks now (12.5 mg each week) Since I never get headaches I noticed that right away but the eyes burning is concerning....
Thanks straydog, I've read everything I could about methotrexate, especially since it has so many side effects. I'm mainly just looking to see if anyone has had a similar experience since this is...
After a recent flare my (new) GI dr put me on methotrexate to supplement my Humira so I don't develop antibodies to it - I've been on Humira for about 7 years now so am not really sure why the...
It's definitely thrush? The first time I had a Crohn's flare (it was by far the worst) it was also untreated and progressed to the point where I developed mouth ulcers (which probably went down my...
What kind of prep did you do for the colonoscopy? I would think it's just the laxative still in your system causing this; did you use saline? Usually afterwards I still have a bit of water coming out...
Thank you! Straydog, you’re right it doesn’t feel like constipation either but I didn’t even consider it might be something else or new. Maybe because I loaded up a lot of doses of medicines? It’s...
I'm at the end of a flare (hopefully) meaning my flare started about 2 months ago with all the regular symptoms - extra gas, extreme urgency, blood & mucous in stool, diarrhea 20+ times a day, waking...
Hi Labradorite, I'm on Humira and have been on Remicade before that. I don't know if I've ever thought of a connection between these meds but I do have anxiety and get panic attacks (more anxiety...
Update: I’ve been using the Nystatin swish & spit suspension and also tongue scraping and oil pulling and it looks like it’s finally clearing up! In case anyone searches this thread in the future for...
No, I don’t smoke. I asked my Dr if we could try nystatin swish mouth rinse in case it is a bacteria/fungus. So I’ll try that for now, I wish I had more answers on this one....
Thanks beave, I’ve been using a tongue scraper and brushing my whole mouth and it’s still here. My dr has no idea. It could be from the antibiotics but i finished them weeks ago so I’m wondering if I...
Snappy2000, do you mean you think Remicade after working for so long has now stopped working? I was on Remicade for years and it was great then I started having a bad flare - they ran every test...
Susie, so weird, right? Like what new crazy symptom is going to appear next. 😂 I do drink tea and coffee (no coffee now but weak decaf tea) but I have my whole life, this is different - it’s dark...
I’m (hopefully) nearing the end of a 2 month Crohn’s flare and since this disease just keeps giving the weirdest twists and turns of symptoms, here’s a new one on me - my tongue has turned brown. Not...
Hahaha, totally - I just ordered a 3 tube pack so will be sure to keep them separate 😂 I’m glad you know you can use them on other parts of the body too - like when I think of all the years I...
I just found the best rectal ointment for pain and relief after 13 years from my colorectal surgeon after a recent abscess surgery - Calmoseptine! And it’s over the counter! I guess it can be used...
Yes. I was dx’ed with mild ulcerative colitis for years and didn’t have many symptoms, didn’t need much treatment, just canasa suppositories to kind of calm the area. Then after about 10 yrs all at...
Also, especially since this developed after a stretch of antibiotics I think that may be pretty common - antibiotics always throw my body out of whack! :/...
In my opinion doctors often guess at a lot or may say something like that, they can’t see by looking at it - but it’s your body and you know it best so def take the initiative and look into an...
I’ve had mouth ulcers during a couple bad flares, is it in any one spot? I’ve also noticed that during a flare crazy things come up in all parts of my body, skin rashes, lumps, bumps, swelling etc....
Hmm, have you had a colonoscopy and updated blood work? In most cases since I was diagnosed any problem I had was really only solved/properly addressed by the dr actually getting in there to take a...
Thank you so much - I used to be on Remicade and it worked great for years until I developed antibodies. I’ve been on Humira for several years as well but with this flare I just had an abscess...
I’m having a crohn’s flare and my GI wants to add either methotrexate or azathioprine (I think that was the one he said) to my Humira - I looked them both up and th side effects are scary - does...
That does not sound fun :/ Have you tried maybe looking at the bigger picture and doing a Candida cleanse to get rid of excess yeast in your body to see if that is what’s causing it? It can’t hurt;...
Thanks Randy - it’s definitely tissue and looking at it again today maybe it’s from where they cut the abscess? It has to drain so they didn’t use glue so it stays open, can an abscess drain tissue?...